Doctor of Philosophy / Human service professionals provide a range of services to support the health and development of children with a disability and to assist their families. Over the past two decades, family-centred approaches have become widely acclaimed as a means of providing quality services. To date, research has focused predominately on identifying or measuring discrete elements of professionals’ practice with families, such as parent–professional partnerships, family-centred practice and family empowerment, often neglecting to consider the broader practice context. What is missing is an empirical and contextually grounded understanding of how professionals interpret and enact the multiple concepts informing practice. This study addresses this gap by exploring how professionals think, feel and act when working with families and by examining more broadly, the multi-dimensional and contextual concept of ‘professional practice’. In this study, professional practice with families is conceptualised as a cultural activity. The study sought to identify and describe the culture of professional practice with families and how this culture is instantiated in daily work practice. The theoretical framework underpinning this study comes from Jerome Bruner’s cultural psychology, and specifically his writings on situated action, culture and narrative. Accordingly, narrative was considered a means to identify, describe and understand the daily work practices of professionals ‘situated’ in their cultural setting and their own intentions when working with families. One hundred and sixty three stories about professional practice were collected in focus groups and individual interviews with human service professionals in New South Wales, Australia. These narratives were analysed deductively to identify the culture of professional practice. This culture comprised of ten components reflecting professionals’ understanding of the culturally acceptable ways of working with families. The cultural components reflected principles underlying family-centred practices as well as traditional medically framed and emerging business-like principles associated with managerialism and economic rationalism. Narrative analysis was employed to inductively develop four cultural core narratives grounded V in participants’ stories: Making it work, having to fight, hopeless struggle and making the best of it. Professionals potentially have all of these narratives available to them to explain their actions in each practice situation. The results of this study provide a description and analysis of the cultural world of professional practice with families. For family-centred approaches to become a reality, these findings emphasise the critical importance of education, policy and staff development for professionals working with families that addresses the broader practice context. Suggestions are made regarding further exploration of the crosscultural validity and the application and implications of these narratives for professionals and families. By exposing the culture of professional practice and the four cultural narratives, this study challenges professionals, managers, academics and policymakers alike to critically examine the practice culture and their contribution to creating and sustaining it.

Thesis (Ph. D.)--Ohio State University, 2006. / Title from first page of PDF file. Includes bibliographical references (p. 117-124).

This study, which utilized a mixed methods approach, is the first research study in Ukraine which explored the experiences of parents raising deaf or hard of hearing children. The outcome of the study includes a documented analysis and synthesis of the perceptions held by Ukrainian-hearing parents raising young deaf or hard of hearing children regarding the emotional and communicational impact of the diagnosis on their family functioning, their perceptions of existing services and/or programs, and their perceptions of the relationships with professionals. Three hundred and twenty-five families whose young children were enrolled in grade 0/1 in 48 residential schools for children with hearing loss across the country were sampled in a survey of the study and 17 families from among this number volunteered for follow-up interviews. The emotional impact of the diagnosis on the parents and other family members as well as such factors as communication mode, availability and accessibility of professional services, access to information on deafness, and educational choices were explored along with demographic and other characteristics. Parental thoughts and views in this study were consistent with international perspectives of parents that are documented in the literature: the need for informational support, guidelines and communication options for families were seen to be key factors. The responses of the participants of this study confirmed that greater access to educational options, support for overcoming stress and improving emotional well-being, as well as support for families in establishing healthy family interactions and empowering parents were among their most important requirements. Additionally, the findings of this study, stress the importance of focusing on family resources and family appraisal as key factors in the hearing family adaptation process to having children who are deaf or hard of hearing. / Special Education

Thesis (M.A.)--University of Delaware, 2006. / Principal faculty advisor: Mary Dozier, Dept. of Psychology. Includes bibliographical references.

The purpose of this study was to explore the challenges parents of children with mental health disabilities and disorders in Namibia face when attempting to access mental healthcare resources. The study used a qualitative exploratory approach. Purposive sampling was used to include parents, caregivers and relatives of children with metal health disabilities and disorders. The sample also included key informants. Data was collected through focus group discussions with the participants and individual interviews with the key informants. Overall, a total of 41 people provided information for this study. Thematic data analysis was used to assess the data. The results suggest that parents/caregivers and relatives of children with mental health disabilities and disorders do experience barriers accessing mental health care. The challenges go beyond commonly-reported problems in the literature such as stigma and discrimination and include basic challenges such as a lack of transportation to healthcare services and a lack of acceptance of the mental health disorders by the parents. The study offers recommendations for how service provision can be improved and how parents of children with mental health challenges can have better access to services.

Thesis (Ph. D.)--University of Texas at Austin, 2002. / Vita. Includes bibliographical references. Available also from UMI Company.

Background This thesis addresses the topic of parental bereavement, using a multi-method approach. It aims to add to knowledge about the phenomenon of parental bereavement, outcomes for bereaved parents following the loss of their child, and factors associated with these outcomes. Method An initial literature study and qualitative investigation were carried out. Findings from these informed the choice of quantitative variables to be tested in a group of parents in early and mid-bereavement. Census records were used to provide information on long term health and social outcomes. Results The literature related to the parent’s experience following the death of their child is limited. The qualitative study indicated a variety of factors for testing, related to the circumstances of the loss, continuing bonds with the deceased child, restoration-oriented stressors, for example, employment and relationship problems, and ruminative behaviours. In early bereavement, lower grief levels were found in people who had displayed cognitive restructuring behaviours. Grief and depression were prevalent, and were found to exist independently. Rumination was associated with grief and depression in mid-bereavement. Grief was predicted by depression and self-blame and depression was, in turn, predicted by rumination and education level. Rates of mothers returning to work following the loss of a child in the first year of life were lower than those whose child lived. Mortality rates were up to four times higher in bereaved parents than non-bereaved comparisons, up to 35 years post-loss. Conclusions The loss of a child has ongoing social, emotional and health consequences for parents. Social factors are a particularly important issue, and therapeutic interventions may benefit from reducing negative aspects of coping such as rumination rather than promoting specific coping strategies. Support for bereaved parents should come from a number of sources, in order to address their complex and potentially long-term needs.

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published_or_final_version / abstract / toc / Educational Psychology / Master / Master of Social Sciences