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Living kidney donor follow-up in a statewide health information exchange: health services utilization, health outcomes and policy implicationsHenderson, Macey Leigh 24 May 2016 (has links)
Indiana University-Purdue University Indianapolis (IUPUI) / Living donors have contributed about 6,000 kidneys per year in the past 10 years,
but more than 100,000 individuals are still waiting for a kidney transplant. Living kidney
donors undergo a major surgical procedure without direct medical benefit to themselves,
but comprehensive follow-up information on living donors’ health is unfortunately
limited. Expert recommendations suggest capturing clinical information beyond
traditional sources to improve surveillance of co-morbid conditions from living kidney
donors. Currently the United Network for Organ Sharing is responsible for collecting
and reporting follow-up data for all living donors from U.S. transplant centers. Under
policy implemented in February of 2013, transplant centers must submit follow-up date
for two years after donation, but current processes often yield to incomplete and untimely
reporting. This dissertation uses a statewide Health Information Exchange as a new
clinical data source to 1) retrospectively identify a cohort of living kidney donors, 2)
understand their follow-up care patterns, and 3) observe selected clinical outcomes
including hypertension, diabetes and post-donation renal function.
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