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Psychosocial aspects of coeliac disease: a cross-sectional survey of a UK population.Ford, S., Howard, R.A., Oyebode, Jan 16 April 2012 (has links)
Yes / Objectives. Coeliac disease (CD) is an autoimmune condition managed by a lifelong therapeutic gluten-free diet. Previous research suggests that the chronicity of CD, the limitations imposed by the gluten-free diet, and the risk of other associated diseases can have a negative impact on health-related quality of life (HRQoL) and psychological well-being. The aim of this study was to explore the illness perceptions and self-efficacy beliefs of adults with CD in the United Kingdom and to report their subjective levels of HRQoL and psychological well-being.
Design. The study employed a cross-sectional postal questionnaire design.
Method. Participants (n= 288) were adults with CD recruited via Coeliac UK. Measures of well-being, HRQoL, self-efficacy, illness perceptions, and dietary self-management were analysed. Preliminary descriptive and univariate procedures were employed before bivariate tests of association or difference were carried out. Backward stepwise multiple regression analysis was used to investigate the predictive strength of variables on well-being, quality of life, and self-efficacy. Logistic regression was used to look at the influence of variables on adherence.
Results. Results indicate that HRQoL and psychological well-being were comparable to those found in previous related studies. Participants with weak beliefs in the serious consequences of CD and poorer emotional reactions to the condition had a greater likelihood of having enhanced HRQoL, improved psychological well-being, and higher self-efficacy. Strong beliefs in personal control and a greater perceived understanding of CD were associated with greater self-efficacy.
Conclusions. Perceived self-efficacy and illness perceptions could play a role in informing psychological interventions for individuals with CD.
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Pozice žáka se specifickými poruchami učení ve třídě běžné základní školy / In-class position of the pupils with specific learning disability on second tier of elementary schoolJiřinová, Aneta January 2014 (has links)
Title: In-class position of the pupils with specific learning disability on second tier of elementary school Author: Bc. Aneta Jiřinová Supervisor: Mgr. Lenka Felcmanová ABSTRACT: The thesis consider in-class position of the pupils with specific learning disability on second tier of elementary school. Theoretical part deals with characteristic of specific learning disabilities, its reasons, behaves and diagnostics. It also pursues occurrence and predictions of learning disability as well as issues of special - pedagogical support to the pupils having psychosocial aspects of special learning disability. The research part of the thesis focus on connections discovering of success rate, school self-conception, personal characteristics and in-class position of the pupils with specific learning disabilities. The thesis's aim is to discover pupil's in-class positions on second tier of elementary school and how is the position related with pupil's self-conception in terms of school and its psychical demonstrations. In thesis has been used of survey and interview method. The text is added by the tables. KEYWORDS Specific learning disabilities (SPU), in-class position of the pupils with SPU), self- conception, school self-conception, psychosocial aspects of SPU.
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Impact of multiple sclerosis on committed caring relationships: the experience of twelve spousal carepartners dealing with this "uninvited guest"Zuluaga, Beatrice Harrison January 2008 (has links)
This research study explores the perceived impact of multiple sclerosis on “carepartners” in committed caring relationships as the spousal roles change over time. Both quantitative and qualitative methods were used in this study of persons with MS and their spousal carers residing in Australia during ten months of recruitment. Varied recruitment methods were used including the internet. 263 expressions of interest were received, and 203 survey packets were returned with usable data (77%). The demographic instrument and 4 scales measuring mood, reciprocity, life satisfaction and functional wellness were subjected to descriptive statistical analysis. Results from the quantitative phase of the study supported many international epidemiological findings related to gender, age of onset, difficulty in obtaining a diagnosis in the light of vague early symptoms of MS, and high levels of depression in the study sample. The preliminary analysis suggested that these data should be analysed further in dyadic terms (a person with MS and their identified carer). Further inferential statistical analysis examined the data sub-set of ‘pairs only’ which helped to inform formation of a pool of couples in caring relationships from which was selected a sub-sample of 12 spousal dyads residing in Victoria for interview in the second phase of the study. / Emerging themes from narrative analysis (n=24 persons) revealed pressing concerns, personal strengths and coping strategies of interviewees. Two themes of special interest relating to (1) differing perceptions by ‘carepartners’ of the importance of cognitive changes to the dyadic relationship, and (2) expectations of health professionals are explored. Most respondents agreed that their expectations left much to be desired, suggesting that improvements could be made in the area of health care delivery to persons with MS, their carers and their families. There are implications for the development of a multidisciplinary, ongoing assessment, educational and support program for these persons. Further research is needed to define and expand the proposed role of a specialized key contact person to be a valuable ‘advocate’ in the delivery of timely health care resources throughout the disease trajectory.
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Impact of multiple sclerosis on committed caring relationships: the experience of twelve spousal carepartners dealing with this "uninvited guest"Zuluaga, Beatrice Harrison January 2008 (has links)
This research study explores the perceived impact of multiple sclerosis on “carepartners” in committed caring relationships as the spousal roles change over time. Both quantitative and qualitative methods were used in this study of persons with MS and their spousal carers residing in Australia during ten months of recruitment. Varied recruitment methods were used including the internet. 263 expressions of interest were received, and 203 survey packets were returned with usable data (77%). The demographic instrument and 4 scales measuring mood, reciprocity, life satisfaction and functional wellness were subjected to descriptive statistical analysis. Results from the quantitative phase of the study supported many international epidemiological findings related to gender, age of onset, difficulty in obtaining a diagnosis in the light of vague early symptoms of MS, and high levels of depression in the study sample. The preliminary analysis suggested that these data should be analysed further in dyadic terms (a person with MS and their identified carer). Further inferential statistical analysis examined the data sub-set of ‘pairs only’ which helped to inform formation of a pool of couples in caring relationships from which was selected a sub-sample of 12 spousal dyads residing in Victoria for interview in the second phase of the study. / Emerging themes from narrative analysis (n=24 persons) revealed pressing concerns, personal strengths and coping strategies of interviewees. Two themes of special interest relating to (1) differing perceptions by ‘carepartners’ of the importance of cognitive changes to the dyadic relationship, and (2) expectations of health professionals are explored. Most respondents agreed that their expectations left much to be desired, suggesting that improvements could be made in the area of health care delivery to persons with MS, their carers and their families. There are implications for the development of a multidisciplinary, ongoing assessment, educational and support program for these persons. Further research is needed to define and expand the proposed role of a specialized key contact person to be a valuable ‘advocate’ in the delivery of timely health care resources throughout the disease trajectory.
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Psychosociální aspekty změn hybnosti člověka / Psychosocial Aspects of Changes in Human MobilityVotrubová, Alena January 2011 (has links)
The diploma thesis - "Psychosocial Aspects of Changes in Human Mobility," focuses on family and siblings of people with physical disabilities, as well as on finding the appropriate support for these families in their specific situation. It particularly deals with people suffering cerebral palsy and spina bifida and possibilities to support the families with disabled individuals in the Czech Republic. The thesis is based on theoretical knowledge gained from publications and laws, hands-on experience acquired in service as a personal care assistant, as well as own research project on siblings of people with physical disabilities. In the first part of the thesis, the author gives basic information about classifications, diagnostics and manifestations of cerebral palsy and spina bifida with major influence of the change in human mobility. In addition, the thesis focuses on the relationship of both parents and siblings, to the handicapped child. The next part is devoted to a research project called "Life with a Sibling with Physical Disability". The research project deals with the direct experience of siblings of people with physical disabilities, critical moments in their lives, resources of coping with this difficult life situation, but also looks at benefits for their personal growth. The aim of...
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