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Needs, preferences and decision-making regarding long-term residential care: South Asian older adults' and family caregivers' perspectivesJamal, Sherin 20 April 2021 (has links)
The aging Canadian population is becoming increasingly ethno-culturally diverse primarily due to immigration. This, together with research indicating increased likelihood of long-term residential care (LTRC) use at older ages and challenges in providing these services, prompt important questions about whether LTRC services are prepared to provide culturally responsive and competent care to immigrant and ethno-cultural minority older adults (EMOA). This ethnographic study, informed by a critical theoretical perspective, explored these questions from the perspectives of South Asian older adults (SAOAs) and their family caregivers (FCGs). In-depth interviews with 18 SAOAs in LTRC, assisted living and those at home, their FCGs, and seven key informants from LTRC and the South Asian (SA) community (n=43) were undertaken. These interviews, in addition to 220 hours of participant observation in two LTRC facilities, provided information regarding the needs, preferences, experiences and situation of SAOAs in LTRC as well as how SA families make decisions regarding the use of such services. A select review of provincial policy, residential care regulation, health authority and facility documents, exposed taken-for-granted assumptions in how care and services are provided and the sociopolitical context of LTRC provision.
Study findings suggest that LTRC services are challenged to meet the needs of immigrant and EMOA and reflect unequal and inequitable care, illuminated by the differential impact of macro-policies and resource-constrained LTRC environments on SAOAs and their families and on the ability of existing LTRC services to provide person-centred care. This inequity in service provision has implications for immigrant and EMOA and their family members in light of findings that the decision to move to LTRC is essentially a (non) decision influenced by a range of social structural factors that interact to necessitate the move to LTRC. Study findings revealed the salience of socio-economic status and economic resources in particular, in the (non) decision for LTRC placement.
The findings from this study along with demographic shifts in the aging Canadian population call for LTRC service providers and policy makers to actively prepare for increasing ethno-culturally diverse resident populations and point to the need for equity informed approaches to the care of older adults. / Graduate / 2022-03-31
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Factors affecting neuropsychological assessment in a group of South Asian older adultsParveen, F. Choudhry January 2021 (has links)
The accuracy of neuropsychological assessment is critical in the diagnosis of
cognitive impairments in older adults. However, existing neuropsychological
tests may not be suitable for minority populations. This thesis aimed to address
this issue by recruiting cognitively-healthy South Asian older adults and
assessing cognitive function in this group. Results showed that typically used
assessments, despite being translated, were not suitable for this cohort.
Furthermore, skills required for test completion such as mathematics and
writing/hand dexterity (which are related to education levels) influenced test
scores. Therefore, new assessments of general cognitive function and
associative memory were developed to improve the accuracy of
neuropsychological test scores. The new tests were not affected by education
and they achieved high internal and test re-test reliability. Time of day (TOD)
that testing takes place is also known to affect cognition. Interestingly, no TOD
effects were observed in this cohort. It was hypothesised that engagement in
the daily five Islamic prayers may have contributed to this lack of a TOD effect.
However, the results did not confirm this. The thesis then looked at overall
prayer engagement and cognition. Results showed that engagement in the
daily five prayers and Quran recitation significantly increased scores on
assessments of processing speed. This thesis demonstrates that accurately
assessing cognition in South Asian older adults is challenging and that the
cognitive tests used must be suitable for this cohort. Interesting findings
emerged for prayer engagement which may have wider implications for the
field of cognitive reserve.
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