This diploma thesis deals with the topic of possible family support after the birth of a child with a disability. The work is divided into theoretical and practical part. In the theoretical part, a literary search was created, based on Czech and foreign professional literature. In the practical part, the research questions were evaluated within the created questionnaire, intended for families of children with disabilities, conclusions and recommendations for practice were formulated. KEYWORDS child with disability, support, care, family

The diploma thesis deals with the care of a girl with Rett syndrome (RTT) in the family. The six main chapters and individual subchapters present the issues of Rett syndrome, the family of a girl with RTT and area of care for a girl with RTT. The first chapter of the diploma thesis presents the fundamental issues related to Rett syndrome with an outline of the history, definition, causes and manifestations. The prevalence and incidence, diagnosis and manifestations of RTT are presented. The following subchapters are devoted to the individual stages of Rett syndrome, their course and the issue of RTT in boys. The second chapter focuses on the issue of the family caring for a child with a disability, presents a definition of the family and the stages of acceptance of a child with a disability. The following subchapters present the complex care for a child with a disability and present an overview of possible forms of support for families of children with disabilities. The third chapter deals with selected areas of care that parents of girls with RTT often have to provide. The individual subchapters include the following areas such as hygiene, sleep, diet, mobility, communication and health care. The fourth chapter is the research survey itself, conducted qualitatively. The research aimed to find out...

Magistro darbe pristatomo tyrimo tikslas yra atskleisti, kaip tėvai, auginantys vaikus su negalia, konstruoja sveikatos priežiūros įstaigų teikiamų paslaugų vertinimą. Keliamas mokslinis klausimas: Kaip tėvai, auginantys vaikus su negalia, konstruoja sveikatos priežiūros įstaigų teikiamų paslaugų vertinimą? Tokiam tikslui pasiekti buvo pasirinktas kokybinis tyrimas. Tyrimui duomenys buvo surinkti 2014 metų vasario – kovo mėnesiais vienoje vaikų sveikatos priežiūros įstaigoje giluminio nestruktūruoto interviu metodu. Interviu dalyvavo 8 tyrimo dalyviai, kurie tyrimui buvo pasirinkti pagal kriterinę atranką. Duomenys buvo analizuojami pasitelkiant grindžiamąją teoriją. Teorinė koncepcija - socialinio konstruktyvizmo teorija. Ašinio kodavimo metu sujungiant atviro kodavimo metu išskirtas kategorijas suformuotos dvi didžiosios tyrimo kategorijos – fenomenai: Negalios pasitvirtinimas “Iš pradžių net nepatikėjome“ ir Vaiko su negalia sveikatinimas „Laviruoti tuose (sveikatos paslaugų) labirintuose“. Atrankiniame kodavime buvo pasirinkta ir aprašoma „šerdinė“ kategorija „Mus prisimena ir supranta“. Visos kategorijos vadovaujasi Strauss ir Corbin (1990) paradigminio modelio logika, kuriame išskiriamos fenomeno priežastys, kontekstas, įsiterpiančios sąlygos, veiksmų strategijos bei to pasekmės. Tyrimo rezultatai atskleidė, kad pagrindinės priežastys, kurios konstruoja tėvų, auginančių vaikus su negalia, sveikatos priežiūros įstaigų teikiamų paslaugų vertinimą yra aktualios... [toliau žr. visą tekstą] / The objective of research of the master thesis is to reveal how parents, raising children with disabilities, construct evaluation of services of health care institutions. Raised scientific question: How parents, raising children with disabilities, construct evaluation of services provided by health care institutions? Qualitative research was selected for implementation of the objective. Data for the research was collected in February – March 2014 in selected children’s health care institution by the method of in-depthunstructured interviews. Eight research subjects participated in the interviews. They were selected for the interview according to targeted selection. The data was analyzed using grounded theory and based on theoretic concept of social constructivism theory. During axial coding, while connecting categories distinguished during open coding, two main research categories – phenomenon – were identified: Approval of disability “We didn’t even believe in the beginning” and Health rehabilitation of the child with disability “Trimming in these (health care services’) labyrinths”. “Core” category “We are remembered and understood” was selected and described in selective coding. All categories are based on logic of Strauss and Corbin (1990) paradigm model where reasons of the phenomenon, context, interfering conditions, strategies of actions and their consequences are defined. Results of the research reveal that the main reasons that construct evaluation of services... [to full text]

The objective of this research paper is to elaborate on issues surrounding coope-ration between families with children with disabilities and social workers who provide them with relevant social services. Family represents a core aspect of nurture, and is irreplaceable in the overall child's welfare. It today's society the families are also supported by qualified social workers who help with care for disabled children. There is variety of rehabilitation programs available with qualified professionals providing services that encompass medical, social, and educational qualities. Within these rehabi-litation programs it is necessary that a multidisciplinary, and well-functioning team is established with each professional playing a specific role. In addition, active cooperati-on of all family members is essential. Social services as well as state institutions play a vital role in aiding these families. The goal of this paper is to identify the role of institutions and social workers aiding families with children with disabilities. The research includes organizations whose social services are primarily focused on assisting families with disabled children. Qualitative research was performed to support the empirical portion of this paper. Coll-ection of data was accomplished by interrogations with structured discussions. The examined sample included ten social workers providing services to families with chil-dren with disabilities. The pivotal question was established as part of this research, as follows: To what extend does the complex support of a disabled child include both the family and an institution? A secondary question was posed as follows: How does a fa-mily manage disabled child's welfare in instances where social institutions and workers are not relied upon? The conclusion of the research established that the social workers mainly function as a support system for families with children with disabilities. Social institutions and workers mainly assist to such families with difficult social aspects, providing direction, and laying out options for child's development. However, the key effort lies within the family itself. Additionally, the study established that utilizing of the social workers by the families is advantageous. It was also made clear that it is extremely challenging for families to care for their disabled child on their own.

Introduction: For children born with physical disabilities, the perspectives and actions of their parents prove significant to their childhood developmental outcomes clinically, educationally, socially, and with regard to community participation. The lived world and perceptions of parents who have children with disabilities however is not well investigated. This study sought to understand parents’ framing of theirs and their children’s disability experiences. Family systems together with family systems intervention models, and disability theory were used to provide structure to interview instrumentation and subsequent analysis. Child-centered and ecologic influences were also used to track the transformative processes over time that infuses parental themes. Methods: Methods for this study followed traditions of heuristic phenomenology. Open-ended parental interviews, written and spoken, together with field notes were used to explore the meanings given to disability. Analysis focused on collective descriptions and critical themes. Results: The nine parents in this study revealed four dominant themes around which their children’s lived lives were both understood and framed. Navigating normal for us; Our pride and joy; Anything but disability; Lived lives, looking back. Each is expressed in the words of parents who reared a child with disabilities into adulthood. Discussion and Recommendations: Parental disability frameworks differ from medical model frameworks and those of disability studies but share similarities with each. The parent themes provided holistic views of what these families have lived and learned. Their perspectives provide potentially vital markers and points of inquiry for interventionists and team members who work with children and families. Themes may also offer categorical means to explore well-being and child outcomes. Additionally, the themes were transformative and empowering for parents, both in the discussion of individual matters and in their narratives. All participants iterated that they welcomed having their voices invited and heard.

Master thesis titled Parents' reaction to a birth of a child with a disability deals with the process of coping with a birth of a disabled child and strategies that can help the family. In the first chapter, the function of a family and roles of parents in comparison with families with disabled children were defined. Reactions of parents when a disabled child is born in comparison with reactions of other social groups is discussed in second chapter. Third chapter focuses on factors which can help the parents to cope with the aforementioned situation. The last fourth chapter then depicts five families that shared their individual stories. The thesis also describes specific phases of dealing with difficult life situations including children born with disabilities. The thesis aims to analyse how parents reacted to birth of disabled child and which factors helped them to accept this reality. A research method in the form of an interview has been used. A confirmation of the hypothesis and thus achieving the thesis goal has been achieved be means of evaluation of answers from five respondents. The results have shown that such a childbirth is an unexpected situation for the parents, followed by a shock. The parents also have negative experience with doctors when delivering the diagnosis. Specific...

The thesis is devoted to inclusion in preschool education with a focus on the child's family. The theoretical part deals with inclusive education, defines the basic concepts, related legislation, describes the benefits and risks of inclusion in the light of current knowledge. Attention is paid not only to the characteristics of pre-school education, but also to the inclusion of children with special educational needs in kindergarten. A separate chapter deals with the issue of the family of a disabled child and also describes some aspects of the cooperation of the family with the nursery school. The family plays a vital role in the development of the child, so the family context in which the child grows up is also essential for understanding the child's individuality and developmental needs. The theoretical knowledge is followed by a research investigation. The practical part introduces qualitative research, which aims to bring experience with inclusive education in kindergarten from the perspective of parents. The research focuses on families of children with disabilities and disadvantages, which are currently included in the category of persons with special educational needs under the legislation. The aim of the qualitative research is a detailed examination of the issue of inclusion in...