Background: Diabetes prevalence in Scotland is increasing at ~4.6% annually; 247,278 (4.7%) in 2011. My Diabetes My Way (MDMW) is the NHS Scotland information portal, containing validated educational materials for people with diabetes and their carers. Internet-based interventions have potential to enhance self-management and shift power towards the patient, with electronic personal health records (PHRs) identified as an ideal method of delivery. In December 2010, a new service was launched in MDMW, allowing patients across Scotland access to their shared electronic record. The following thesis aims to identify and quantify the benefits of a diabetes-focused electronic personal health record within NHS Scotland. Methods: A diabetes-focused, population-based PHR was developed based on data sourced from primary, secondary and tertiary care via the national diabetes system, Scottish Care Information - Diabetes Collaboration (SCI-DC). The system includes key diagnostic information; demography; laboratory tests; lifestyle factors, foot and eye screening results; prescribed medication and clinical correspondence. Changes are tracked by patients over time using history graphs and tables, data items link to detailed descriptions explaining why they are collected, what they are used for and what normal values are, while tailored information links refer individuals to facts related to their condition. A series of quasi-experimental studies have been designed to assess the intervention using subjectivist, mixed-methods approaches incorporating multivariate analysis and grounded theory. These studies assess patient expectations and experiences of records access, system usage and uptake and provide preliminary analysis on the impact on clinical process outcomes. Survey questionnaires were used to capture qualitative data, while quantitative data were obtained from system audit trails and from the analysis of clinical process outcomes before and after the intervention. Results: By the end of the second year, 2601 individuals registered to access their data (61% male; 30.4% with type 1 diabetes); 1297 completed the enrolment process and 625 accessed the system (most logins=346; total logins=5158; average=8.3/patient; median=3). Audit trails show 59599 page views (95/patient), laboratory test results proving the most popular (11818 accesses;19/patient). The most utilised history graph was HbA1c (2866 accesses;4.6/patient). Users are younger, more recently diagnosed and have a heavy bias towards type 1 diabetes when compared to the background population. They are also likely to be a more highly motivated ‘early adopting’ cohort. Further analysis was performed to compare pre- and post-intervention clinical outcomes after the system had been active for nearly two and a half years. Results of statistical significance were not forthcoming due to limited data availability, however there are grounds for encouragement. Creatinine tests in particular improved following 1 year of use, with type 1 females in particular faring better than those in patient other groups. For other clinical tests such as HbA1c, triglycerides, weight and body mass index improvements were shown in mean and/or median values.96% of users believe the system is usable. Users also stated that it useful to monitor diabetes control (93%), improve knowledge (89%) and enhance motivation (89%). Findings show that newly diagnosed patients may be more likely to learn more about their new condition, leading to more productive consultations with the clinical team (98%). In the pre-project analysis, 26% of registrants expressed concerns about the security of personal information online, although those who actually went on to use it reported 100% satisfaction that their data were safe. Engagement remains high. In the final month of year two, 44.6% of users logged in to the system. 55.3% of users had logged in within the previous 3 months, 78.9% within the previous 6 months and 91.4% within the previous year. Some legacy PHRs have failed due to lack of uptake and deficiencies in usability, so as new systems progress, it is essential not to repeat the mistakes of the past. Feedback: "It is great to be able to view all of my results so that I can be more in charge of my diabetes".Conclusion: The MDMW PHR is now a useful additional component for the self-management of diabetes in Scotland. Although there are other patient access systems available internationally, this system is unique in offering access to an entire national population, providing access to information collected from all diabetes-related sources. Despite its development for the NHS Scotland environment, it has the potential to connect to any electronic medical record. This local and domain-specific knowledge has much wider applicability as outlined in the recommendations detailed, particularly around health service and voluntary sector ownership, patient involvement, administrative processes, research activities and communication. The current project will reach 5000 patients by the end of 2013.

For thesis abstract select View Thesis Title, Contents and Abstract

Organizations are experiencing problems with the control of information in computer-based information systems. Records management is a system that consists of a number of elements to control recorded information over its life cycle. Previous studies have ranked various records management activities. However, these studies were not conducted in Australia, were not specifically related to computerbased information systems, and were based on the frequency with which records management tasks, or duties and responsibilities were being performed by records management personnel rather than the perceived importance of records management elements for overcoming problems. This study is conducted in Australia on the role of records management within the context of computer-based information systems. It has two purposes: to determine whether there is an appreciable difference in the perceived importance of the various records management elements for overcoming excessive quantity, poor quality and storage media problems in computer-based information systems by RMAA individual members; and to determine whether regardless of professional involvement and level of education of RMAA individual members, there is no statistically significant difference in the perceived importance of the various records management elements in computer-based information systems for overcoming these three problems. To carry out the research a questionnaire was devised and distributed to individual members of the Records Management Association of Australia. The survey obtained a usable response rate of 53.1 percent from a population of 399 individual members of the Association. The study indicated that there is a difference in the perceived importance of the various records management elements for overcoming excessive quantity, poor quality and storage media problems in computer-based information systems. There was evidence to suggest that respondents frequently involved in professional activities are more likely to consider certain records management elements more important than respondents not frequently involved in these activities. The study also found that level of education is associated with the selection of certain records management elements. In particular, those respondents with no tertiary qualifications are more likely to consider the records management elements mail management and a records retention and disposition schedule important than respondents with tertiary qualifications.

In cases of forensic dental identification, a key factor in the comparison of the dental status of deceased persons with antemortem dental records is the matching of dental restorations in individual teeth. Many studies have been performed showing the prevalence of dental interventions. This has mostly been performed by counting the numbers of decayed, missing and filled teeth (DMFT) in each mouth without detailed data collection on a per-tooth basis. The purpose of this study was to investigate the research question: to what extent would data on the distribution and prevalence of restoration types in the human dentition facilitate forensic identification? A database program was developed to allow efficient collection and collation of dental trait information. Provision was made for storing information relating to a subject's individual teeth, such as restorative materials used and surfaces filled. Other data, such as missing teeth, caries status on a per-individual tooth basis and presence and details of types of prostheses may be stored. iii Data from patients attending a private group practice in Hobart was collected and a system was devised to enable the likelihood of dental trait occurrence to be calculated in cases of forensic dental identification. The capabilities of the system are demonstrated in a series of mock cases of dental identification. An opportunity to make use of the database for which it was designed arose in relation to the analysis of person identification evidence in a murder trial at the Tasmanian Supreme Court. The use of this reference database in evidence invoked lengthy debate involving the judge, crown prosecutor and defence barristers. The resulting voire dire was resolved in favour of conclusions drawn from the use of the database being admitted in evidence. The legal precedent set in the Marlow trial may possibly offer encouragement for practising odontologists to further the concept of establishing and using reference databases of dental traits in population groups in other parts of Australia.

Long waitlists and growing numbers of unattached patients are indicative of a Canadian healthcare system which is unable to address the demands of a growing and aging population. Health information technology is one solution offering respite, but brings its own issues. Health information technology includes primary care physician office systems, telehealth and jurisdictional EHRs integrated through interoperability standards to share data across care providers. This dissertation explores effects that health information technology has on primary care. Literature reviews provided context of health information systems adoption. Surveys and semi-structured interviews gathered information from health system actors. Workflow analysis illustrated how technology could change physician office workflow. Exam room observations illustrated how technology affects proxemics and haptics in the patient encounter. This research derived change management models which quantified substantial change management costs related to adoption of physician office systems. We found that physicians have concerns over how health information technology will affect efficiency, financial, quality, liability, safety and other factors. Physicians in smaller suburban physician offices take little time to select a system for their needs. Urban, academic and hospital physicians spend more time networking with colleagues and devote funds to project management and training. Our studies showed that stronger professional networks, more complete training, a managed approach to implementation and in-house technical support are more influential in facilitating adoption than remuneration models. Telemedicine can improve quality of care, the referral process for family physicians and access to services for patients. Teledermatology was shown to make significant improvements in access to services for patients, but referring physicians are concerned about their liability if they follow the recommendations of a dermatologist who has not seen their patient face-to-face. Certification organizations mitigate liability, procurement and financial risk to qualifying family physicians by pre-qualifying vendor solutions, coaching physicians through procurement and reimbursing family physicians for purchasing an approved system. We found that centralization plays a key role in adoption of health information systems at the jurisdictional and primary care level. Online scheduling can reduce human resource requirements used in scheduling, if the system is well implemented, well documented and easy to use. / Engineering Management

The objective of this study was to explore inpatients’ opinions on their hospital paper medical records after they had incidental access to them. One hundred inpatients in the C.T. department at St. Michael's Hospital were surveyed: 65 patients who read their records and 35 who did not. Overall, 75.4% of readers found their records easy to understand, and most found their records correct, complete and did not find anything unexpected or distressing. Seventy-nine percent of all respondents would trust the hospital, approximately half would trust Google Health or Microsoft Healthvault and 5.6% would trust Facebook to provide online medical records. Being female, under 60 years and having a higher education predicted readership. Younger patients were also more likely to think that accessing their records would help decrease errors. Patients with higher education were more likely to find their records useful and trusted the hospital to provide online medical records.

The objective of this study was to explore inpatients’ opinions on their hospital paper medical records after they had incidental access to them. One hundred inpatients in the C.T. department at St. Michael's Hospital were surveyed: 65 patients who read their records and 35 who did not. Overall, 75.4% of readers found their records easy to understand, and most found their records correct, complete and did not find anything unexpected or distressing. Seventy-nine percent of all respondents would trust the hospital, approximately half would trust Google Health or Microsoft Healthvault and 5.6% would trust Facebook to provide online medical records. Being female, under 60 years and having a higher education predicted readership. Younger patients were also more likely to think that accessing their records would help decrease errors. Patients with higher education were more likely to find their records useful and trusted the hospital to provide online medical records.

<p>Within the field of medical informatics, patient medical records are the sole source of information for dealing with clinical activities concerning the documentation, care, progression, and ongoing interactions between the patient and clinicians. Electronic or computer-based patient records (CPRs) have had a presence within health care in some form and magnitude for the past thirty years yet only recently have been incorporated in health care to a larger extent. Due to the wide variation of professions in health care, there is a problem of CPRs not being able to fulfill all the possibilities and demands the individual professionals need, since many CPRs are designed as a generic system, to be used across multiple professions.</p><p>The focus of this report is on the utilization of a generic CPR in a specialist clinical setting, i.e., a physical therapy clinic, and to analyze how the therapists utilize the different components and features in a generic CPR. The purpose of the evaluation was to investigate how viable the CPR was as a documentation tool and to which extent it supported the therapists in their clinical, documentation and delivery of care activities. In this study, a total of seven physical therapists participated in a post-usage evaluation of an existing CPR. The evaluation was achieved by interpretative research with open-ended interviews and observations. The results of the study showed that despite some shortcomings, the generic CPR was an effective tool for the clinicians, not only as a documenting aid, but also enabling them to quickly research the patients' prior diagnosis and treatment history, plan for future care, support decision-making and to communicate with other professionals so as to coordinate treatment and planning.</p>

Title from PDF of title page (University of Missouri--Columbia, viewed on Feb 16, 2010). The entire thesis text is included in the research.pdf file; the official abstract appears in the short.pdf file; a non-technical public abstract appears in the public.pdf file. Dissertation advisor: Dr. Charles N. Davis. Vita. Includes bibliographical references.

No description available.