This PhD thesis explored the experiences of dependent children and children care-givers facing challenges with their parent s cancer. The aim was to understand children s information experience including their perception of cancer and information culture; information needs, information seeking behaviour, barriers and enablers. The research used a six-stage process. This was informed by an extensive literature review and discussions with cancer specialists, psychologists and researchers from United Kingdom, United States, Australia and Malaysia. This study used a three-cycle, eight-step process of Participative Action Research (PAR) with participation from ten Malay breast cancer patients and their dependent children. Three bilingual (English and Bahasa Malaysia) instruments were developed; 1) An Inquiry to Participate Form to select participants who had dependent children, 2) Three opened-ended questions to obtain children s cancer experience and information needs where drawing was used to encourage children s responses and, 3) A 15-question questionnaire to understand children s experience and information preference. Cancer affected parenting abilities and challenging experiences identified the lack of culturally relevant information and the shift in caregiving responsibilities to dependent children. Children s understanding of cancer was influenced by their experiences and observations, many of which resulted in misconceptions about cancer, its causes, treatment and preventative measures. Children participant s reaction to a health situation triggered their information behaviour. The burden of caregiving and the consequences of a lack of information were greater than anticipated; children had many dimensions of concern and experienced many challenges. This advocated for a more assessable, attractive and sensitive information system. Data synthesis contributed to the development of a Children s Reactive Information Seeking Behaviour An Integrated Model that seeks to explain the relationship between children participants reaction to a health situation and the subsequent processes they undergo to resolve their state of information need.

This study investigated access and use of information in the health-care of home-based elderly people (EPs) in Nakuru District, Kenya. The literature review revealed a gap with respect to information behaviour in health-care of EPs in a development context. The researcher used qualitative methods; with exploratory and descriptive research design because the focus of the study was on the littleknown and socially disadvantaged community of EPs in Nakuru District. Respondents were sampled by using the snowball technique. At the end of an interview session, each respondent was encouraged to nominate someone who either shared the same or had different experiences, views, socio-economic levels and gender. The researcher collected data through face-to-face interviews with EPs, informal care providers (ICPs) and formal health-care providers (FHCPs), in order to gain insight of information behaviour in health-care of EPs, by focusing on aspects of information needs; sources; use of information and factors that influence the respective groups of respondents to access and use health-care information health-care of EPs. The findings showed that the respective groups of respondents had similar as well as diversified needs for information for health-care. The groups used both formal and informal sources of information and channels of communication to access information for health-care, with FHCPs using authoritative sources more than the EPs and ICPs. Factors such as being a professional or a lay person, cost, ease of accessibility, availability of sources and channels of communication, time and trustworthiness of a source or channel of communication determined preference for use of information. The major contribution of the study is to the theory about information behaviour: some EPs and ICPs used CAM services without informing FHCPs, thereby revealing a form of concealed information use behaviour (CIUB). / Information Science / D. Litt. et Phil. (Information Science)

This study investigated access and use of information in the health-care of home-based elderly people (EPs) in Nakuru District, Kenya. The literature review revealed a gap with respect to information behaviour in health-care of EPs in a development context. The researcher used qualitative methods; with exploratory and descriptive research design because the focus of the study was on the littleknown and socially disadvantaged community of EPs in Nakuru District. Respondents were sampled by using the snowball technique. At the end of an interview session, each respondent was encouraged to nominate someone who either shared the same or had different experiences, views, socio-economic levels and gender. The researcher collected data through face-to-face interviews with EPs, informal care providers (ICPs) and formal health-care providers (FHCPs), in order to gain insight of information behaviour in health-care of EPs, by focusing on aspects of information needs; sources; use of information and factors that influence the respective groups of respondents to access and use health-care information health-care of EPs. The findings showed that the respective groups of respondents had similar as well as diversified needs for information for health-care. The groups used both formal and informal sources of information and channels of communication to access information for health-care, with FHCPs using authoritative sources more than the EPs and ICPs. Factors such as being a professional or a lay person, cost, ease of accessibility, availability of sources and channels of communication, time and trustworthiness of a source or channel of communication determined preference for use of information. The major contribution of the study is to the theory about information behaviour: some EPs and ICPs used CAM services without informing FHCPs, thereby revealing a form of concealed information use behaviour (CIUB). / Information Science / D. Litt. et Phil. (Information Science)

199 7. ABSTRAKT The goal: The goal of this work was to clarify the ways the social work is presented and how the forum for physically afflicted persons is created on the web portal "Lidemezilidmi", run by a company "Dobre misto", z.s. Additional intent was to show the specifics of mental illnesses and problems, connected with these illnesses, with which the clients (patients) contact this web portal most frequently. Methodology: based on the questionnaire, distributed by the company "Dobre misto", z.s., with the support from the Norwegian Fonds in connection with a project "Information Activity", the intent is to reform the psychiatric care. Results: all together, 130 valid replies were returned. Conclusion: the lives of people with disabilities, caused by illness, injury, or a genetic disposition, have one thing in common - with the mental health come social complications, problems at work, troubles in relationships, etc. However, the stories of individuals with mental and social problems vary widely. Mental illness, unlike physical disability, is not apparent at first glance, although it often causes problems to the affected person. Psychiatric patients are still discriminated against in the health and social care system, and are viewed by the public with suspicion and concern. The mission of the...