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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
1

A experi?ncia de m?es e pais no relacionamento com o filho diagnosticado com autismo: um estudo fenomenol?gico / The Experience of Parents in the Relationship with the Child Diagnosed with Autism: A phenomenological study

Fadda, Gisella Mouta 02 December 2015 (has links)
Made available in DSpace on 2016-04-04T18:28:23Z (GMT). No. of bitstreams: 1 Gisella Mouta Fadda.pdf: 1531724 bytes, checksum: 5f1c6a7df7c643532e51f12db5044df4 (MD5) Previous issue date: 2015-12-02 / Pontif?cia Universidade Cat?lica de Campinas / Autism is a syndrome with very heterogeneous characteristics that constitute a complex spectrum. In this context, a qualitative research of exploratory nature with the aim of understanding the phenomenological experience of parents in their relationship with a child diagnosed with autism has been developed. The study involved 11 parents (3 men and 8 women) of children diagnosed with Autistic Spectrum Disorder living in a small town in the state of Minas Gerais. The researcher invited them to a dialogical meeting individually or as a couple, according to their own choices. After each meeting, a narrative containing elements of daily life in the way they were understood by the researcher was drawn up. As this step was concluded, a narrative synthesis was built considering the main significant elements of the experience of all participants in order to make a phenomenological interpretation possible. The analysis of this material revealed: a) diagnosis as a triggering element of a new comprehension of the child; b) the exclusive relationship of mothers with the child as a reason for isolation imposed by the mother herself; c) mothers neglecting to themselves to take good care of the child; d) the relationship with the child becoming more rewarding for the parents as they experience playing activities; e) school perceived as the only reliable link with the community in the care of a child. Although mothers have shared feelings of loneliness, helplessness and physical and mental exhaustion, their experiences point to the existence of an affective relationship with child beyond the limitations that the pathology imposes. This link can be enhanced by psychological listening that includes the parents as subjects, not as caregivers. / O autismo ? uma s?ndrome com caracter?sticas bastante heterog?neas que constituem um espectro complexo. Nesse contexto, foi desenvolvida uma pesquisa qualitativa de natureza explorat?ria com o objetivo de compreender fenomenologicamente a experi?ncia de m?es e pais no relacionamento com o filho diagnosticado com autismo. Os participantes foram 11 progenitores (3 homens e 8 mulheres) de crian?as com diagn?stico de Transtorno do Espectro Autista que residem num pequeno munic?pio do interior do estado de Minas Gerais. A pesquisadora os convidou para estarem com ela num encontro dial?gico individualmente ou como casal a partir da escolha deles pr?prios. Ap?s cada encontro, foi redigida uma narrativa contendo elementos do vivido na forma como foram compreendidos pela pesquisadora. Conclu?da essa etapa, uma narrativa-s?ntese foi constru?da contemplando os principais elementos significativos da experi?ncia de todos os participantes a fim de possibilitar uma interpreta??o fenomenol?gica. A an?lise desse material revelou: a) o diagn?stico como elemento desencadeador de uma nova compreens?o sobre o filho; b) a rela??o de exclusividade das m?es com o filho como motivo para um isolamento imposto pela pr?pria m?e; c) as m?es descuidando-se de si mesmas para cuidarem bem do filho; d) o relacionamento com o filho tornando-se mais gratificante com brincadeiras compartilhadas; e) a escola percebida como o ?nico elo confi?vel com a comunidade no cuidado ao filho. Apesar de as m?es terem compartilhado sentimentos de solid?o, desamparo e esgotamento f?sico e ps?quico, suas viv?ncias apontam para a exist?ncia de um relacionamento afetivo com o filho para al?m das limita??es que a patologia imp?e. Esse elo pode ser potencializado por uma escuta psicol?gica que contemple os pais como sujeitos, e n?o como cuidadores.

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