This thesis aimed to provide a second validation phase of a recently developed measure: the Parental Understanding of Neurodisability Questionnaire (PUN-Q) (Moran et al., submitted). The PUN-Q is a thirteen item self-report questionnaire measuring parents' understanding of their child's neurodisability. This thesis prospectively validated the PUN-Q over three time points, prior to and following a child's attendance at a Tier-Four paediatric diagnostic assessment, for queries regarding social communication. Four main aims were investigated: 1) to establish prospective Construct Validity by comparing the PUN-Q to two other parent-report measures (perceived self-efficacy and parenting stress); 2) to examine test-retest reliability of the PUN-Q by comparing two pre-assessment time points; 3) to examine whether the PUN-Q is sensitive measuring potential pre-and-post assessment changes to parental understanding; 4) to explore the relationship between the PUN-Q and child emotional, behavioural and social communication difficulties. These objectives were addressed using data collected from 37 parents, due to time constraints the study was underpowered at Times two and three (n=26, n=11, respectively); bootstrapping confidence intervals were therefore estimated for non-parametric data. Evidence was provided for Construct Validity at Time 1, but not at Time 3. Test-retest reliability was suggested for the PUN-Q between two non-intervention time points. Results suggested that the PUN-Q is responsive to changes over time, and that the clinic's diagnostic assessment is effective in enhancing parental understanding. The PUN-Q was not shown to be related to child-related outcomes. These preliminary results suggest that the PUN-Q is an important measure that can reliably and conveniently measure parental understanding of their child's neurodisability symptoms. This study suggests a role for parental understanding within a wider model of parenting stress and coping with disability. Further validation is needed to allow dissemination to the wider neurodisability service, and to less complex symptom presentations.

The purpose of this study was to examine the satisfaction and understanding of parents of young children with disabilities in North Texas in regard to the special education services they receive through their local education authority. A mixed non-experimental research design utilizing the survey method was used to obtain the data collected from a sample of 230 parents with children with disabilities from preschool to elementary ages. Factorial analysis techniques were first used to assess the validity of the 14 quantitative items by splitting the sample into 2 equivalent groups: the development group and the validation group. Exploratory factor analysis extracted 2 factors after eliminating 4 items: satisfaction and understanding. This 2-factor structure was confirmed in the validation group. The final 10-item survey demonstrated satisfactory reliability and validity. Overall, parents were very satisfied with the special education services and reported a good understanding of those services. Two x two (number of children x years of services) ANOVAs were used to examine the differences on parental satisfaction and understanding. No statistically significant differences were found except that parents with 2 or 3 children were more satisfied than the counterparts with only 1 child in the special education program. This difference was practically meaningful. Data provided by 4 open-ended questions revealed that parent training and communication were the most popular strategies mentioned as methods to increase parental understanding of the special education process. The best sources of receiving special education information were ARD committees and teachers/diagnosticians. Excessive and wordy paperwork was the least helpful source of information regarding receiving special education. Postal-mail and the ARD meetings with diagnosticians were the best methods of acquiring special education information. Findings from this study, especially on the open-ended questions, suggested the special education program and services can be improved to better serve the parents and their children.

The Individuals with Disabilities Education Act (IDEA) mandated that each child who qualifies for special education must have an individualized education program (IEP). Disciplinary issues and procedures under IDEA have been a source of concern among parents, schools, and advocates from disability groups. At issue are fundamental concerns about the protection of rights for students with disabilities, which must be balanced with the ability of school personnel to maintain safe school environments that benefits all students. This research examined the four survey questions related to discipline from a state-wide survey conducted by Education Service Center (ESC) Region 9 through a comparison of selected disability categories as they compare to the responses received from parents of students with the disability category of emotional/behavioral disorders (E/BD). In addition, the research examined the open-ended questions from surveys to determine the types of concerns reported by parents. Data accrued from a focus group of parents receiving special education services are also reported. Parents of students identified as having an E/BD rated their understanding of the school's discipline policy lower than parents of students from other eligibility categories. Almost 67% of parents of students identified as having E/BD stated that they knew that their child might be eligible for alternative discipline procedures. Parents of students identified as E/BD reported at a much higher percentage that they were aware that services must be continued if the child was removed from the instructional setting for discipline problems. In a focus group discussion, a majority of the parent's (67%) responded that they felt like they understood the school's discipline policies. When given a chance to respond through an open-ended questionnaire, parents addressed a variety of problems, such as children being continually suspended for behaviors related to their disability or the behavior intervention plan not being implemented.

Parental participation in educational issues is relevant in assisting parents in understanding and becoming satisfied with their child's educational experience. Parental involvement is not only an ethical issue for teachers, but mandates have been established for special educators through various public laws. When involving parents in their children's education, it is relevant to consider various factors associated with students who are culturally and linguistically diverse. Parental satisfaction plays an important role in many cultures in obtaining parental involvement in decision-making meetings. If parents experience negative interactions, parental participation can be diminished. In other cultures, the satisfaction level raises parental trust in allowing school staff to make the appropriate choices for their children. Family values and beliefs among the various cultures should be a consideration when encouraging parents to participate in their child's educational process. Several barriers exist when involving different cultural groups; therefore, it is essential for educators to become aware of these barriers and learn strategies to overcome them. This study addresses parental understanding and satisfaction among ethnic group and throughout various disability groups by evaluating parental responses from a statewide survey and three focus groups.