<p>The study aimed to evaluate the information and training the stoma therapist at Uppsala University Hospital has given to patients who have recently undergone stoma surgery. The study was a descriptive cross-sectional study using qualitative and quantitative design. A total of 22 patients who completely or partially took care of their stomas and recently had undergone stoma surgery participated by answering a questionnaire. At discharge most of them experienced they were relatively well-informed but they wanted more information. Before the revisit they weren’t especially safe or comfortable. The participants felt they were better informed and more safe and comfortable three weeks to six months after surgery. Whether the patients had undergone a planned or acute surgery did not influence how wellinformed, safe and comfortable in stoma management they were. No differences were found regarding how safe and comfortable in stoma management the patients were related to how long time ago they underwent the operation. Patients wanted additional information about diet, intestinal function and stoma care and more practice in changing stoma materials. Recently operated stoma patients need information and training until they feel sufficiently well-informed, safe and comfortable in order to better manage their stoma at home after discharge.</p> / <p>Studien syftade till att utvärdera den information och utbildning som stomiterapeuten vid Akademiska sjukhuset har gett till patienter som nyligen genomgått en stomioperation. Studien var en deskriptiv tvärsnittsstudie med såväl kvalitativ som kvantitativ design. Sammanlagt 22 patienter som helt eller delvis skötte sin stomi och nyligen genomgått en stomioperation deltog i studien genom att svara på ett frågeformulär. Vid utskrivning upplevde de flesta av deltagarna att de var relativt välinformerade men de önskade mer information. Innan återbesöket var de varken särskilt säkra eller trygga med stomiskötseln. Patienterna upplevde att de var mer välinformerade, trygga och säkra tre veckor till sex månader efter operation. Huruvida de hade genomgått en planerad eller akut operation påverkade inte hur välinformerade, trygga och säkra på stomiskötseln de var. Det kunde inte heller påvisas någon skillnad mellan hur trygga och säkra på stomiskötseln patienterna var relaterat till hur länge sedan de genomgick operationen. Patienterna önskade ytterligare träning på att byta stomimaterial samt mer information kring kost, tarmens funktion samt stomiskötsel innan utskrivning. Nyopererade stomipatienter skulle behöva information och utbildning tills de känner sig tillräckligt välinformerade, trygga och säkra för att bättre kunna sköta sin stomi i hemmet efter utskrivning.</p>

The study aimed to evaluate the information and training the stoma therapist at Uppsala University Hospital has given to patients who have recently undergone stoma surgery. The study was a descriptive cross-sectional study using qualitative and quantitative design. A total of 22 patients who completely or partially took care of their stomas and recently had undergone stoma surgery participated by answering a questionnaire. At discharge most of them experienced they were relatively well-informed but they wanted more information. Before the revisit they weren’t especially safe or comfortable. The participants felt they were better informed and more safe and comfortable three weeks to six months after surgery. Whether the patients had undergone a planned or acute surgery did not influence how wellinformed, safe and comfortable in stoma management they were. No differences were found regarding how safe and comfortable in stoma management the patients were related to how long time ago they underwent the operation. Patients wanted additional information about diet, intestinal function and stoma care and more practice in changing stoma materials. Recently operated stoma patients need information and training until they feel sufficiently well-informed, safe and comfortable in order to better manage their stoma at home after discharge. / Studien syftade till att utvärdera den information och utbildning som stomiterapeuten vid Akademiska sjukhuset har gett till patienter som nyligen genomgått en stomioperation. Studien var en deskriptiv tvärsnittsstudie med såväl kvalitativ som kvantitativ design. Sammanlagt 22 patienter som helt eller delvis skötte sin stomi och nyligen genomgått en stomioperation deltog i studien genom att svara på ett frågeformulär. Vid utskrivning upplevde de flesta av deltagarna att de var relativt välinformerade men de önskade mer information. Innan återbesöket var de varken särskilt säkra eller trygga med stomiskötseln. Patienterna upplevde att de var mer välinformerade, trygga och säkra tre veckor till sex månader efter operation. Huruvida de hade genomgått en planerad eller akut operation påverkade inte hur välinformerade, trygga och säkra på stomiskötseln de var. Det kunde inte heller påvisas någon skillnad mellan hur trygga och säkra på stomiskötseln patienterna var relaterat till hur länge sedan de genomgick operationen. Patienterna önskade ytterligare träning på att byta stomimaterial samt mer information kring kost, tarmens funktion samt stomiskötsel innan utskrivning. Nyopererade stomipatienter skulle behöva information och utbildning tills de känner sig tillräckligt välinformerade, trygga och säkra för att bättre kunna sköta sin stomi i hemmet efter utskrivning.

This diploma thesis investigates the issue of urostomy aids from the perspective of the patients with a urostomy and stoma nurse specialists. A urostomy is a surgical procedure which diverts the normal flow of urine from the kidneys and ureters into a specially created stoma. It is one of the techniques of solving urine derivation after the surgical removal of the bladder. The most common indications for this surgery is indisputably a malignant tumour of the urinary bladder. Creating a urostomy is the fundamental turning point and change in the patient´s life. The patient has to learn how to live with a urostomy not only from a physical point of view, but also from the perspective of its great psychological response significance. The right choice and correct use of urostomy aids is crucial for the patients with a urostomy and significantly affects quality of their life. Given these circumstances, the patient with a urostomy should be provided with wide range of urostomy aids. The thesis is divided into the theoretical and empirical part. The theoretical part is described in seven chapters. The empirical part of the thesis includes qualitative research. Data were collected from semi-structured interviews with the patients with a urostomy and stoma nurse specialists. For each group of respondents, several categories and subcategories were formed. These were further described in detail. The collected data were presented in diagrams. Three objectives were defined in the thesis. The first objective examined the level of patient´s knowledge of urostomy aids. The second objective investigated the patient´s possibilities concerning the use of urostomy aids. Based on the initial results of the research, the third objective focused on development of an educational plan specializing in urostomy aids and its verification in practice. This plan will be dedicated to the urostomy nurse specialists when working with the patients. Following these objectives, four research questions were formed. Research question no. 1: What is the level of patient´s knowledge of urostomy aids? Research question no. 2: What are the possibilities of the use of urostomy aids by the patients with a urostomy? Research question no. 3: What is the level of nurse´s knowledge of urostomy aids? Research question no. 4: How the urostomy nurse specialists educate the patients with a urostomy? The results of the qualitative survey demonstrate that the level of patient´s knowledge of urostomy aids is insufficient, despite the contrary opinion provided by the stoma care nurses. Lack of their knowledge is however not related to their contact with the stoma nurse specialist. The results did not confirm that the patients with a urostomy frequenting stoma nurse specialists for regular checks would be better informed than those who do not follow the regular checks. Furthermore, the survey reveals that possibilities of the use of urostomy aids by the patients are very limited. Stoma nurse specialists do not introduce urostomy aids supplied by all companies on our market to the patients and thus they do not provide an option for individual choice of these aids. This situation occurs despite the fact that stoma nurse specialists demonstrated a very good knowledge of urostomy aids. The results of this investigation also confirm that the education carried out by stoma nurse specialists is acceptable and understandable for the patients with a urostomy. The proof is demonstrated by their satisfaction with this education. The outcome of this thesis focuses on the educational plan designated for stoma nurse specialists caring for the patients with a urostomy. The given educational plan was developed based on the results of the research and is particularly focused on the presentation of all available urostomy aids within the postoperative education.