This qualitative research study focuses explicitly on understanding the experiences and perceptions of urban Aboriginal women living with HIV/AIDS. Stigmatizing attitudes and language have serious impacts upon the lives of HIV-positive Aboriginal women. The ways our society presently addresses the women needs to change. With the insights and assistance of four Aboriginal women living with HIV, this project adds to the presently sparse qualitative literature in this research area. Current research indicates that there are many factors associated with urban Aboriginal women being at higher risk for infection and lower physical and mental health, such as race, socio-economic conditions, isolation, oppression and violence, family history, substance abuse, discrimination, and often the responsibilities of childrearing. However, current research analysis and presentation is insufficient, and more in-depth questions arise. Material was collected using semi-structured, open-ended questioning conversations with the participants. Two guiding research questions were asked: 1) What is it like for you, living with HIV right now? and 2) What would you want other people to learn from your experiences? The women’s stories provide an avenue for participants to voice some of their triumphs and challenges about being an Aboriginal woman living with HIV/AIDS. For the community at large, this is also an opportunity to hear first hand, important information such as this. In this work, I have tried to adhere to the tenets of Indigenous methodologies by allowing the life-stories to resonate as holistic representations. Rather than deconstructing the women’s stories through naturalistic analysis (which continues to categorize and to objectify participants), the stories are viewed through a Health Narrative Topography whereby thematic genres such as Restitution, Chaos, and Quest are illuminated, while also being critically aware of some of the limitations to this framework. Three overarching themes are revealed through the women’s stories: 1) the empowerment and resiliency demonstrated by the participants; 2) the need for cultural competency in a society that continues to stigmatize Aboriginal and HIV-positive women; and, 3) the need for a more holistic approach within society when it comes to education, learning, and healing.

This qualitative research study focuses explicitly on understanding the experiences and perceptions of urban Aboriginal women living with HIV/AIDS. Stigmatizing attitudes and language have serious impacts upon the lives of HIV-positive Aboriginal women. The ways our society presently addresses the women needs to change. With the insights and assistance of four Aboriginal women living with HIV, this project adds to the presently sparse qualitative literature in this research area. Current research indicates that there are many factors associated with urban Aboriginal women being at higher risk for infection and lower physical and mental health, such as race, socio-economic conditions, isolation, oppression and violence, family history, substance abuse, discrimination, and often the responsibilities of childrearing. However, current research analysis and presentation is insufficient, and more in-depth questions arise. Material was collected using semi-structured, open-ended questioning conversations with the participants. Two guiding research questions were asked: 1) What is it like for you, living with HIV right now? and 2) What would you want other people to learn from your experiences? The women’s stories provide an avenue for participants to voice some of their triumphs and challenges about being an Aboriginal woman living with HIV/AIDS. For the community at large, this is also an opportunity to hear first hand, important information such as this. In this work, I have tried to adhere to the tenets of Indigenous methodologies by allowing the life-stories to resonate as holistic representations. Rather than deconstructing the women’s stories through naturalistic analysis (which continues to categorize and to objectify participants), the stories are viewed through a Health Narrative Topography whereby thematic genres such as Restitution, Chaos, and Quest are illuminated, while also being critically aware of some of the limitations to this framework. Three overarching themes are revealed through the women’s stories: 1) the empowerment and resiliency demonstrated by the participants; 2) the need for cultural competency in a society that continues to stigmatize Aboriginal and HIV-positive women; and, 3) the need for a more holistic approach within society when it comes to education, learning, and healing.

Thesis (Ph. D.)--Indiana University, 2005. / Includes bibliographical references (leaves 253-280). Also available online (PDF file) by a subscription to the set or by purchasing the individual file.

Thesis (Ph. D.)--Indiana University, 2005. / Includes bibliographical references (leaves 253-280)

This qualitative research study focuses explicitly on understanding the experiences and perceptions of urban Aboriginal women living with HIV/AIDS. Stigmatizing attitudes and language have serious impacts upon the lives of HIV-positive Aboriginal women. The ways our society presently addresses the women needs to change. With the insights and assistance of four Aboriginal women living with HIV, this project adds to the presently sparse qualitative literature in this research area. Current research indicates that there are many factors associated with urban Aboriginal women being at higher risk for infection and lower physical and mental health, such as race, socio-economic conditions, isolation, oppression and violence, family history, substance abuse, discrimination, and often the responsibilities of childrearing. However, current research analysis and presentation is insufficient, and more in-depth questions arise. Material was collected using semi-structured, open-ended questioning conversations with the participants. Two guiding research questions were asked: 1) What is it like for you, living with HIV right now? and 2) What would you want other people to learn from your experiences? The women’s stories provide an avenue for participants to voice some of their triumphs and challenges about being an Aboriginal woman living with HIV/AIDS. For the community at large, this is also an opportunity to hear first hand, important information such as this. In this work, I have tried to adhere to the tenets of Indigenous methodologies by allowing the life-stories to resonate as holistic representations. Rather than deconstructing the women’s stories through naturalistic analysis (which continues to categorize and to objectify participants), the stories are viewed through a Health Narrative Topography whereby thematic genres such as Restitution, Chaos, and Quest are illuminated, while also being critically aware of some of the limitations to this framework. Three overarching themes are revealed through the women’s stories: 1) the empowerment and resiliency demonstrated by the participants; 2) the need for cultural competency in a society that continues to stigmatize Aboriginal and HIV-positive women; and, 3) the need for a more holistic approach within society when it comes to education, learning, and healing. / Graduate Studies, College of (Okanagan) / Graduate

O estudo buscou identificar e interpretar as concepções sobre AIDS, reveladas através das representações sociais de mulheres grávidas soropositivas e seus companheiros. Os eixos teóricos foram a Teoria das Representações Sociais e Gênero. Optou-se pela abordagem qualitativa, por ser capaz de revelar valores, símbolos e representações, permitindo a captação e a valorização das subjetividades. Foram entrevistadas(os) oito gestantes e dois companheiros. A articulação gravidez e soropositividade para o HIV emergiu em três dimensões: o processo de inclusão-exclusão social na saúde reprodutiva, a vulnerabilidade feminina ao HIV/AIDS e o próprio processo de vivenciar a gravidez [representada socialmente como vida] e a soropositividade para o HIV [representada socialmente como morte]. Os resultados revelaram a subalternidade de gênero como determinante da vulnerabilidade à infecção pelo HIV; a vivência da gravidez reforçando a concepção idealizada de maternidade, muito mais valorizada que a soropositividade, chegando a superá-la através da resignificação da doença, das suas conseqüências e do conhecimento da AIDS como uma das formas para o seu enfrentamento. A soropositividade contribuiu para aderência ao tratamento e adoção de medidas preventivas em relação ao agravamento das suas condições de saúde-doença e dos seus filhos em gestação. / The aim of this study was to identify and interpret the conceptions concerning AIDS revealed by the social representations of HIV-positive pregnant woman and their partners. The conceptual basis was oriented by the Theory of Social Representations and Gender. The choice of a qualitative approach was made to reveal values, symbols and representations, to valorize and deal with subjectivities. Eight pregnant women and two of their partners were interviewed. The joint occurrence of pregnancy with HIV positivity was studied along three dimensions: the process of social inclusion/exclusion in reproductive health, the feminine vulnerability to HIV/AIDS, and the process of experiencing pregnancy (represented socially as life) concomitantly with HIV positivity (represented socially as death). The results revealed the subordinate role of the female gender as a determinate of vulnerability to infection by HIV; the experience of pregnancy reinforcing the idealized conception of maternity, outweighing their HIV positivity to the point of surmounting it by attaching a new meaning to the disease and its consequences, and through knowledge of AIDS as one form of facing up to it. HIV positivity contributed to adherence with the treatment and the adoption of preventative measures in regard to their states of sickness/health and that of their unborn children.

O estudo buscou identificar e interpretar as concepções sobre AIDS, reveladas através das representações sociais de mulheres grávidas soropositivas e seus companheiros. Os eixos teóricos foram a Teoria das Representações Sociais e Gênero. Optou-se pela abordagem qualitativa, por ser capaz de revelar valores, símbolos e representações, permitindo a captação e a valorização das subjetividades. Foram entrevistadas(os) oito gestantes e dois companheiros. A articulação gravidez e soropositividade para o HIV emergiu em três dimensões: o processo de inclusão-exclusão social na saúde reprodutiva, a vulnerabilidade feminina ao HIV/AIDS e o próprio processo de vivenciar a gravidez [representada socialmente como vida] e a soropositividade para o HIV [representada socialmente como morte]. Os resultados revelaram a subalternidade de gênero como determinante da vulnerabilidade à infecção pelo HIV; a vivência da gravidez reforçando a concepção idealizada de maternidade, muito mais valorizada que a soropositividade, chegando a superá-la através da resignificação da doença, das suas conseqüências e do conhecimento da AIDS como uma das formas para o seu enfrentamento. A soropositividade contribuiu para aderência ao tratamento e adoção de medidas preventivas em relação ao agravamento das suas condições de saúde-doença e dos seus filhos em gestação. / The aim of this study was to identify and interpret the conceptions concerning AIDS revealed by the social representations of HIV-positive pregnant woman and their partners. The conceptual basis was oriented by the Theory of Social Representations and Gender. The choice of a qualitative approach was made to reveal values, symbols and representations, to valorize and deal with subjectivities. Eight pregnant women and two of their partners were interviewed. The joint occurrence of pregnancy with HIV positivity was studied along three dimensions: the process of social inclusion/exclusion in reproductive health, the feminine vulnerability to HIV/AIDS, and the process of experiencing pregnancy (represented socially as life) concomitantly with HIV positivity (represented socially as death). The results revealed the subordinate role of the female gender as a determinate of vulnerability to infection by HIV; the experience of pregnancy reinforcing the idealized conception of maternity, outweighing their HIV positivity to the point of surmounting it by attaching a new meaning to the disease and its consequences, and through knowledge of AIDS as one form of facing up to it. HIV positivity contributed to adherence with the treatment and the adoption of preventative measures in regard to their states of sickness/health and that of their unborn children.

Honors Project--Smith College, Northampton, Mass., 2009. / Includes bibliographical references (p. 79-87).

No description available.

This study focuses on the impact of HIV/AIDS on women in Namibia. Namibia, with a population of only 1.7 million people, is ranked as the seventh highest country in the world in terms of HIV/AIDS infections. The percentage of women living with HIV/AIDS in Namibia accounts for 54% of the total of 68 196 people in the country living with the virus. Women are also diagnosed with the disease at a younger age (30) in comparison to their male counterparts (35 years). Desoite their needs, women living with HIV/AIDS bear a triple burden of caring for those living with HIV/AIDS, caring for themselves and coping with the responses to their infection. There are few focused intervention strategies to support and care for women living with HIV/AIDS in Namibia.