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“En djävulsk sjukdom" – Anhörigas upplevelser av att vårda en närstående med demens : En kvalitativ intervjustudie / “A devilish disease” - Caregivers experiences of taking care of a near one with dementia : A qualitative interview study

Dementia is a global disease that is growing rapidly as the human life expectancy is considerably increasing. It does not only have an impact on the person with the diagnosis, but also the people around them. Which means that the number of caregivers that are affected is also increasing. The purpose of this study was to contribute to a deeper understanding of what it can mean to be a caregiver of a near one with dementia, by studying the experiences of caregivers in Sweden. The study has a qualitative approach and the data consists of ten interviews with caregivers from a medium-sized municipality in Sweden. The results show that caregivers found their role to be distressing and that they have to take a lot of responsibility. They also expressed experiences of grief with the loss of who their near one once was, and sadness over what their life becomes as the disease progresses. There was also emphasis on the caregivers interactions with their near one with dementia and their social network, aswell as how this affects how they deal with their situation. Lastly, the study presents the caregivers experiences of society’s support, and how caregivers wish to see changes in society's outlook on dementia and how it affects them.

Identiferoai:union.ndltd.org:UPSALLA1/oai:DiVA.org:uu-530319
Date January 2024
CreatorsBertilsson, Hanna, Forsström, Sigrid
PublisherUppsala universitet, Institutionen för socialt arbete
Source SetsDiVA Archive at Upsalla University
LanguageSwedish
Detected LanguageEnglish
TypeStudent thesis, info:eu-repo/semantics/bachelorThesis, text
Formatapplication/pdf
Rightsinfo:eu-repo/semantics/openAccess

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