Introduction: Numerous studies have examined caregiver burden and stress, yet few represent the perspective from the sibling caregiver of a person with a neurodevelopmental disorder within the context of occupational therapy practice. Therefore, this scoping review provides a review of current evidence. Aim: The aim of the study is to review current literature to find sibling caregiver perspectives on their roles as caregivers to an individual with a neurodevelopmental disorder and whether their perspectives can influence improvements to the occupational therapy practice. Method: A scoping review methodology was chosen to map out the available literature and summarise the findings. The author conducted this review using guidance from the Joanna Briggs Institute. Results: The review resulted in 11 articles and reviewed the perspectives of 1181 sibling participants. The findings resulted in five main themes: (1) Need for education and training opportunities in relation to caregiving; (2) Policy and guideline changes in relation to sibling caregiver involvement; (3) Sibling caregiver inclusion into the care pathway; (4) Need for improvements in service coordination; and (5) Sibling caregivers' lack of knowledge in guardianship matters. Conclusions: Both positive experiences and negative challenges were reported from sibling experiences when accessing healthcare services. Ideas and strategies were discussed by sibling caregivers in how to improve services. Significance: This review identified practical strategies which can be used in occupational therapy practice to support and improve services in relation to working with sibling caregivers.
| Identifer | oai:union.ndltd.org:UPSALLA1/oai:DiVA.org:hj-62471 |
| Date | January 2023 |
| Creators | Tudor, Kayleigh |
| Publisher | Jönköping University |
| Source Sets | DiVA Archive at Upsalla University |
| Language | English |
| Detected Language | English |
| Type | Student thesis, info:eu-repo/semantics/bachelorThesis, text |
| Format | application/pdf |
| Rights | info:eu-repo/semantics/openAccess |
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