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Resilience in families with a child living with Autism Spectrum Disorder

In recent years the number of studies on resilience emerging within the field of positive psychology has increased. However, such studies are limited within the South African context and so the proposed study aims to explore and describe the factors that facilitate adjustment and adaptation in South African families living with Autism Spectrum Disorder. McCubbin, McCubbin and Thompson (2001) developed the Resiliency Model of Family Stress, Adjustment and Adaptation which were used to conceptualise the family’s adaptation. Mothers (n = 19) from 19 families participated in the study. The families consisted of at least three members, of which two are parents and one a child younger than 18 years of age that has been diagnosed with Autistic Spectrum Disorder. A combination of non-probability purposive sampling and snowball sampling was used to select participants. The study had an exploratory and descriptive aim and employed triangulation of method, including both qualitative and quantitative data collection procedures. A biographical questionnaire and the following seven structured paper-and-pencil questionnaires were used: the Family Attachment and Changeability Index 8 (FACI8), the Family Crisis-oriented Personal Evaluation Scales (F-COPES), the Family Hardiness Index (FHI), the Family Problem-solving Communication (FPSC), the Family Time and Routine Index (FTRI), the Relative and Friend Support (RFS), and the Social Support Index (SSI). Descriptive statistics were used to describe the biographical information. Qualitative data were analysed by means of content analysis. Quantitative data were manipulated by means of correlation and regression analysis. The results from the quantitative analysis indicate three significant positive correlations with the FACI8. These variables were the family hardiness (measured by FHI), family problem-solving communication (measured by the FPSC), and family time and routines (measured by the FTRI). The findings from the qualitative analysis point out that social support, the spousal relationship and family time, togetherness and routines are the most important strength factors that contribute to the family’s adjustment and adaptation. Even though this study had a small sample size and several other limitations, the findings of this study could still assist in guiding specialised institutions toward providing more comprehensive information and support to families living with a child diagnosed with Autism Spectrum Disorder. This study also contributes to the studies on family resilience within a South African context.

Identiferoai:union.ndltd.org:netd.ac.za/oai:union.ndltd.org:nmmu/vital:9905
Date January 2008
CreatorsHanekom, Leché
PublisherNelson Mandela Metropolitan University, Faculty of Health Sciences
Source SetsSouth African National ETD Portal
LanguageEnglish
Detected LanguageEnglish
TypeThesis, Masters, MA
Formatviii, 142 leaves, pdf
RightsNelson Mandela Metropolitan University

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