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A BETTER WAY TO LIVE WITH A CHRONIC CONDITION : Envisioning transition kit for women living with endometriosis

This project explores the question of how to support women living with endometriosis in the transition into live with a chronic condition while maintaining the best possible quality of life. Design process was planned out and exercises in four steps - preparations and background research (outlining well-being perspective, desk research, research online via social media), design research (multiple surveys, interviews, reflections online, co-creation sessions, probing, interviews following probing with co-creation sessions, ideation sessions, analysis), explorations (creation of directions, analysis, initial concepts creation, feedback, synthesis, design proposal, feedback and evaluation sessions, design improvements) and final design proposal. Activities were aiming to repeatedly open up the scope of the project and then through the analysis of each phase narrow it down again following diamond shape. One important aspect of the process was to engage women living with endometriosis as well as their loved ones throughout the whole process and design together instead of designing for them. Of course, experts were consulted as well to make sure project is following standards of medical care, but the primary focus on the users was important since the product was shaped rather as a lifestyle change facilitator as well as data collection tool rather than a strictly medical solution. The outcome of the project is a flexible system VEA serving as a transition kit for women diagnosed with endometriosis, but also early detection screening tool and awareness platform for those who haven’t been diagnosed yet. Even though this might seem complicated I’ll try to explain why only this kind of a multifaceted approach can fully support women in their journey toward their best possible quality of life. VEA allows users to access Habit Nooks supporting them in introducing changes while guided by experts and supported by the community. Physical tracker allowing to track symptoms together with the Data Dashboard allow users to explore data patterns and make informed decisions. The system gives also an opportunity to get in touch with experts via calls or structured long-term programs. Beside the design proposal project was closed with a series of reflection touching on the bias in a medical field and how it might affect healthcare design, as well as designer’s experience of working on a project with a personal relevance.

Identiferoai:union.ndltd.org:UPSALLA1/oai:DiVA.org:umu-149537
Date January 2018
CreatorsPruchnicka, Joanna
PublisherUmeå universitet, Designhögskolan vid Umeå universitet
Source SetsDiVA Archive at Upsalla University
LanguageEnglish
Detected LanguageEnglish
TypeStudent thesis, info:eu-repo/semantics/bachelorThesis, text
Formatapplication/pdf
Rightsinfo:eu-repo/semantics/openAccess

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