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EXPLORING THE COMPLEXITY OF THE PRIMARY HEALTH CARE TRANSITION OF YOUTH AND YOUNG ADULTS WITH CEREBRAL PALSY LIVING IN SAULT STE. MARIE, ONTARIO: A MIXED METHODS STUDY

The vast majority of children with cerebral palsy (CP) are surviving into adulthood due to
improved surgical and health care practice. Thus, the expiration of paediatric services means that
a new population of adults with CP has emerged that must transition into an ill-equipped adultoriented
system. Informed by the perspective of complexity theory, this case study used both
quantitative and qualitative data to examine the primary healthcare transition of youth with CP
living in Sault Ste. Marie, Ontario. Analysis of Ontario Health Insurance Program claims showed
service use changes due to both the expiration of paediatric services and the changing health
needs of individuals with CP as they age. Physicians commented on challenges due to the
complexity of the CP disease process and the benefits of shared care and teamwork in discussing
transition. Future research and clinical practice designed to address transition barriers need to be
informed by complexity theory.

Identiferoai:union.ndltd.org:LACETR/oai:collectionscanada.gc.ca:OSUL.10219/2131
Date27 January 2014
CreatorsSeguin, Chelsea L.
PublisherLaurentian University of Sudbury
Source SetsLibrary and Archives Canada ETDs Repository / Centre d'archives des thèses électroniques de Bibliothèque et Archives Canada
LanguageEnglish
Detected LanguageEnglish
TypeThesis

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