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Previous issue date: 2013-06-26 / The aim of the present study was to understand the feelings and the difficulties faced
by the family caregiver in the care of the person affected by Alzheimer`s Disease
(AD). It is a descriptive, exploratory study with a qualitative approach, using the oral
life history proposed by Bom Meihy as the method. Data collection was conducted in
the Basic Health Unit of Candelaria, located in Natal -RN, with five collaborators that
carry out the role of family caregivers for people affected by Alzheimer`s disease (AD)
and are members of the Group "Caring for those who Care". Caregi vers who resided
with the affected family member for at least one year were selected for the study, and
as a collection tool, it was opted to use semi-structured interviews via a script of open
questions, recorded by permission of the collaborators, then t ranscribed and
subsequently returned to respondents for checking the contents described. To
analyze the results, the collaborators narrative technique was used in conjuction
with the specific literature on the subject.The discussions were organized around five
themes inherent to the guiding questions, and defined as follows: the incorporation of
the role of the family caregiver; life before and after assuming the role of caregiver,
the caregiver`s feelings and attitudes after assuming the care, difficulti es in caring,
participation of the group as a foundation for caregivers. The stories showed many
difficulties in the daily routine of the caregivers, and also that their participation in the
group "Caring for those who Care" helps them in maintaining the q uality of their lives.
The results open possibilities for the construction of new forms of approach and care
for the people who fulfill the role of family caregiver contributing to strengthening of
subsidies that help them better face the daily difficulti es.This study helped shed light
on the fact that being a family caregiver of a person affected by AD is a suffered,
exhausting and stressful condition involving much self-denial in one?s life. The
situation experienced by these collaborators is considered a public health issue, and
thus highlights the urgency for governmental political -social actions, besides the
programs of care and health promotion for this target group. / O presente estudo teve por objetivo compreender os sentimentos e as dificuldades enfrentadas pelo cuidador familiar no cuidado ? pessoa acometida pela Doen?a de Alzheimer. Trata-se de estudo descritivo, explorat?rio, com abordagem qualitativa, utilizando como m?todo a hist?ria oral de vida, proposto por Bom Meihy. A coleta dos dados foi realizada na Unidade B?sica de Sa?de de Candel?ria, situada em Natal-RN, com cinco colaboradores que desempenham papel de cuidadores familiares de pessoas acometidas pela Doen?a de Alzheimer (DA) e s?o integrantes do Grupo Cuidando de quem Cuida . Foram selecionados para o estudo, cuidadores que residiam com familiar acometido h? pelo menos um ano e, como instrumento de coleta, optou-se por entrevistas semiestruturadas atrav?s de roteiro de quest?es abertas em que as mesmas foram gravadas com permiss?o dos colaboradores, transcritas na ?ntegra e posteriormente devolvidas aos entrevistados para confer?ncia dos conte?dos descritos. Para a an?lise dos resultados, utilizou-se a t?cnica da narrativa dos colaboradores em interlocu??o com a literatura espec?fica sobre a tem?tica. As falas foram organizadas em torno de cinco temas inerentes ?s quest?es norteadoras e, assim definidos: a incorpora??o do papel de cuidador familiar; a vida antes e ap?s assumir o papel de cuidador; sentimentos e posicionamentos do cuidador ap?s assumir o cuidado; dificuldades no cuidado; participa??o do grupo como alicerce para os cuidadores. As hist?rias mostraram muitas dificuldades na rotina di?ria de vida desses cuidadores e a manuten??o da qualidade de suas vidas, atrav?s das participa??es no Grupo Cuidando de quem Cuida . Os resultados possibilitam a constru??o de novas formas de abordagem e cuidado ?s pessoas que desempenham o papel de cuidador familiar, ao contribuir para o fortalecimento de subs?dios que auxiliem no enfrentamento real das dificuldades di?rias. Tal estudo permitiu compreender que ser cuidador familiar de uma pessoa acometida pela DA ? uma condi??o sofrida, desgastante e estressante envolvendo muitas ren?ncias em suas vidas. Considera-se a situa??o vivenciada pelos colaboradores uma quest?o de sa?de p?blica e, assim, evidencia-se a prem?ncia de medidas governamentais de car?ter pol?tico-social, al?m de programas de aten??o e promo??o da sa?de ao referido p?blico alvo
| Identifer | oai:union.ndltd.org:IBICT/oai:repositorio.ufrn.br:123456789/14795 |
| Date | 26 June 2013 |
| Creators | Aguiar, Virginia Simonato |
| Contributors | CPF:23039310453, http://lattes.cnpq.br/9130470143761299, Oliveira, Josineide Silveira de, CPF:28230264449, http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4796363D5, Germano, Raimunda Medeiros, CPF:00446114472, http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4721938D8, Menezes, Rejane Maria Paiva de, CPF:17599750444, http://lattes.cnpq.br/5190926575194616, Menezes, Rejane Millions Viana |
| Publisher | Universidade Federal do Rio Grande do Norte, Programa de P?s-Gradua??o em Enfermagem, UFRN, BR, Assist?ncia ? Sa?de |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Format | application/pdf |
| Source | reponame:Repositório Institucional da UFRN, instname:Universidade Federal do Rio Grande do Norte, instacron:UFRN |
| Rights | info:eu-repo/semantics/openAccess |
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