Formål: Formålet med undersøgelsen har været at få indsigt i og viden om, hvordan nytilskadekomne rygmarvsskadede patienter oplever og opfatter at deltage i tværfaglige patientkonferencer, hvor deres rehabiliteringsforløb tilrettelægges. Metode: Undersøgelsesmetoden er kvalitativ med en fænomenografisk forskningstilnærmelse. Dataindsamlingen er foretaget ved hjælp af kvalitative semistrukturerede interview. Der er gennemført 15 interview blandt otte indlagte patienter, tre kvinder og fem mænd i alderen fra 28 til 75 år Resultat: Analysen viste at patienterne fandt, at det var meningsfuldt at deltage i patientkonferencer om eget rehabiliteringsforløb og for de fleste en nødvendig og selvfølgelig del af rehabiliteringen. Der blev identificeret fire beskrivende hovedkategorier: Patientkonferencer oplevedes støttende i en rehabiliteringsproces; Forskellige følelser var i spil; Pårørendes deltagelse havde betydning; Mødekultur og deltageres betydning Konklusion: Denne undersøgelse viste, at nytilskadekomne rygmarvsskadede og sorgfyldte patienter oplevede, at de var i stand til og gerne ville deltage aktivt i beslutninger i forhold til eget rehabiliteringsforløb. Tværfaglige patientkonferencer blev opfattet som et forum, hvor patienter og pårørende kunne få overblik og kontrol i en situation, hvor patienternes livssituation var kaotisk i relation til komplekse og omfattende fysiske funktionstab. Undersøgelsen har afdækket områder, som har vist sig at have haft betydning for, om patienterne oplevede disse konferencer som meningsfulde og tilfredsstillende / Aim: This study aimed to increase understanding of how patients newly injured with spinal cord lesion experience rehabilitation planning conferences with their clinicians and therapists. Method: I used a qualitative methodology within a phenomenographic research approach. Data was collected during 15 qualitative and semi-structured interviews with eight hospitalized patients (three women and five men) ranging in age between 28 to 75 years. Results: The data suggests that patients view participation in rehabilitation conferences as essential. Indeed, some patients deemed participation a necessary and natural part of their rehabilitation. Four main categories were identified: patient conferences support rehabilitation; emotional vulnerability; family participation matters; and atmosphere and location of conferences are critically important. Conclusion: The results show that patients newly injured by spinal cord lesion can and want to participate in decisions about their own rehabilitation, even when they are grieving and in a state of shock. Interdisciplinary patient conferences that include relatives provide an ideal environment and help patients gain oversight and control in an often chaotic life situation resulting from complex and substantial physical disabilities. The data also revealed areas for improvement that will help ensure meaningful and satisfactory patient conferences / <p>ISBN 978-91-86739-14-0</p>
| Identifer | oai:union.ndltd.org:UPSALLA1/oai:DiVA.org:norden-3136 |
| Date | January 2011 |
| Creators | Vest Hansen, Hanne |
| Publisher | Nordic School of Public Health NHV |
| Source Sets | DiVA Archive at Upsalla University |
| Language | Danish |
| Detected Language | Danish |
| Type | Student thesis, info:eu-repo/semantics/bachelorThesis, text |
| Format | application/pdf |
| Rights | info:eu-repo/semantics/openAccess |
| Relation | Master of Public Health, MPH, 1104-5701 ; MPH 2011:5 |
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