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Previous issue date: 2013-02-19 / Several epidemics marked the lives of individuals and communities in all historical periods, and a prime example is leprosy, infectious disease marked by stigma, prejudice and social exclusion. In the past, the compulsory isolation of patients with leprosy caused serious social and psychological problems, resulting in the separation and the partial or total disruption of the family relationship. Children deprived of this living, removed often inhumanely, were kept and bred in preventoriums / educational establishments. This study aimed to: rescue the oral history of life of the children of leprosy patients that were built in preventorium Osvaldo Cruz, Natal, Rio Grande do Norte; develop a contextual analysis about these children; know the life trajectory of children of leprosy patients institutionalized in preventoriums / educational establishments; produce a documentary on the history of life of children of parents separated by leprosy; forming MORHAN of Rio Grande do Norte state; and implement the I Meeting of MORHAN of Rio Grande do Norte state. This is an exploratory and descriptive study, with a qualitative approach, approved by the ERC No. 024/024/2012 Liga Norteriograndense Contra o C?ncer. We used the contributions of the method and technique of oral history of life as methodological reference. We interviewed 10 individuals egress from preventorium Osvaldo Cruz in Natal/RN, sons of former patients proven to be residents in the city, of both sexes, older than 18, with cognitive, intellectual and emotional conditions preserved. The analysis of the histories obtained from collaborators was performed in the light of Thematic Content Analysis. The results and discussions are presented through two articles which meet the proposed objectives. The first, called Contextual Analysis on the children of leprosy patients in preventoriums aimed to record the phenomenon of children of leprosy patients in preventorium through four contextual levels, which identified the need to broaden the debate on public policy in the field of leprosy as a way to enable more effective measures to propagate in the search for harm reduction and direct consequences resulting from stigma and marginalization around patients and their healthy children, egress from preventoriums. The second, Leprosy and the denial of history: the story of separated children , aimed to know the life trajectory of children of leprosy patients who were institutionalized in preventoriums / educational establishments. In this article, we discuss the
research question through the establishment of three main themes: 1. Losses and damages: disintegration and reintegration into the family and denied childhood; 2. Unforgettable: remarkable things you do not forget; and 3. Expectancy in living new situations: in search of other paths and destinations. These thematic axis highlighted the negative implications for the lives of the subjects, arising from the separation of their parents, leprosy patients at the time of compulsory isolation; however, has also been shown that this separation was not decisive in their life histories, once they have succeeded in providing a new sense of these experiences and lead their lives with dignity and fortitude. It was concluded that these children demonstrated resilience as form of defense and fighting stigma and prejudice, being able to reinvent themselves and build new paths and destinations / V?rias epidemias marcaram a vida das pessoas e coletividades, em todos os per?odos hist?ricos, sendo um dos principais exemplos a hansen?ase, doen?a infecto-contagiosa, marcada pelo estigma, preconceito e exclus?o social. No passado, o isolamento compuls?rio dos pacientes portadores de hansen?ase causou s?rios problemas sociais e psicol?gicos, resultando no afastamento e na ruptura total ou parcial do v?nculo familiar. Os filhos privados desse conv?vio, retirados muitas vezes de forma desumana, foram confinados e criados em prevent?rios/educand?rios. Este estudo teve como objetivo: resgatar a hist?ria oral de vida dos filhos de portadores de hansen?ase que foram internos no prevent?rio/educand?rio Osvaldo Cruz, Natal, Rio Grande do Norte; elaborar uma an?lise contextual sobre os filhos de portadores nos prevent?rios; conhecer a trajet?ria de vida de filhos de doentes de hansen?ase institucionalizados em prevent?rios/educand?rios; elaborar um document?rio sobre a hist?ria de vida dos filhos separados da Hansen?ase; formar o MORHAN-Potiguar; e implementar o I Encontro Estadual do MORHAN-Potiguar. Trata-se de uma pesquisa explorat?ria e descritiva, com uma abordagem qualitativa, aprovado pelo CEP n? 024/024/2012 - Liga Norteriograndense de C?ncer. Utilizou-se das contribui??es do m?todo e t?cnica da hist?ria oral de vida como referencial metodol?gico. Entrevistou-se 10 egressos do prevent?rio/educand?rio Osvaldo Cruz em Natal/RN, filhos de ex-doentes comprovadamente, residentes na capital potiguar, de ambos os sexos; maiores de idade; com condi??es cognitivas, intelectuais e emocionais preservadas. A an?lise das hist?rias obtidas dos colaboradores foi realizada ? luz da An?lise de Conte?do Tem?tica. Os resultados e discuss?es s?o apresentados atrav?s de dois artigos, os quais atendem aos objetivos propostos. O primeiro denominado: An?lise contextual sobre os filhos de portadores de hansen?ase nos prevent?rios objetivou registrar o fen?meno dos filhos de portadores de hansen?ase no prevent?rio, atrav?s de quatro n?veis contextuais, os quais identificaram a necessidade de amplia??o do debate em torno das pol?ticas p?blicas no campo da hansen?ase, como forma de possibilitar que medidas mais efetivas sejam propagadas, na busca pela redu??o dos danos e consequ?ncias diretas resultantes do estigma e marginaliza??o em torno dos doentes e seus
filhos sadios, egressos de prevent?rios. O segundo, Hansen?ase e a nega??o da hist?ria: trajet?ria de filhos separados, objetivou conhecer a trajet?ria de vida de filhos de doentes de hansen?ase que foram institucionalizados em prevent?rios/educand?rios. Neste artigo, discute-se a quest?o de pesquisa atrav?s do estabelecimento de tr?s eixos tem?ticos: 1. Perdas e danos: desintegra??o e reintegra??o familiar e a inf?ncia negada; 2. Inesquec?vel: coisas marcantes que n?o se esquece; 3. Expectativa em viver o novo: em busca de outros caminhos e destinos. Esses eixos tem?ticos destacaram as implica??es negativas para a vida dos colaboradores, decorrentes da separa??o dos seus pais doentes de hansen?ase na ?poca do isolamento compuls?rio, no entanto, tamb?m foi evidenciado que essa separa??o n?o foi determinante em suas hist?rias de vida, haja vista, terem conseguido proporcionar um novo sentido a essas viv?ncias e conduzirem suas vidas com dignidade e fortaleza. Concluiu-se que os filhos separados demonstraram resili?ncia como forma de defesa e enfrentamento do estigma e preconceito; sendo capazes de se reinventarem e constru?rem novos caminhos e destinos
| Identifer | oai:union.ndltd.org:IBICT/oai:repositorio.ufrn.br:123456789/14786 |
| Date | 19 February 2013 |
| Creators | Cabral, Ana Michele de Farias |
| Contributors | CPF:05261856272, http://lattes.cnpq.br/3568948187738623, Farias, Francisca Luc?lia Ribeiro de, CPF:04304900382, http://lattes.cnpq.br/3124165737602160, Miranda, Francisco Arnoldo Nunes de, CPF:04960360330, http://lattes.cnpq.br/9242337504601387, S?, Lenilde Duarte de, CPF:48661767415, http://lattes.cnpq.br/6801469017582405, Menezes, Rejane Millions Viana, CPF:23039310453, http://lattes.cnpq.br/9130470143761299, Simpson, Cl?lia Albino |
| Publisher | Universidade Federal do Rio Grande do Norte, Programa de P?s-Gradua??o em Enfermagem, UFRN, BR, Assist?ncia ? Sa?de |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Format | application/pdf |
| Source | reponame:Repositório Institucional da UFRN, instname:Universidade Federal do Rio Grande do Norte, instacron:UFRN |
| Rights | info:eu-repo/semantics/openAccess |
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