Background: Type 1 diabetes in young children is a heavy parental burden. As part of
pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to
study the association between hypoglycemia fear, parental well-being and child behavior.
Methods: All parents were invited to fill in baseline questionnaires: hypoglycemia fear
survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties
Questionnaire (SDQ).
Results: 24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes
duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found
a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia
worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two
parents. Median daytime sleepiness score was high in five parents (>10). For six children a
high total behavioral difficulty score (>16) was reported. Pro social behavior score was
lower than normal in six children (<6). Parental well-being was negatively associated with
HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and
HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age and
diabetes duration (r = 0.58, p <.01, r = 0.6, p <.01). HFS, parental well-being nor daytime
sleepiness are associated with the HbA1c.
Conclusion: Regular screening of parental well-being, hypoglycemia fear and child
behavior should be part of routine care to target early intervention.
| Identifer | oai:union.ndltd.org:DRESDEN/oai:qucosa:de:qucosa:84281 |
| Date | 24 March 2023 |
| Creators | de Beaufort, Carine, Cate, Ineke M. Pit-ten, Schierloh, Ulrike, Cohen, Nathan, Boughton, Charlotte K., Tauschmann, Martin, Allen, Janet M., Nagl, Katrin, Fritsch, Maria, Yong, James, Metcalfe, Emily, Schaeffer, Dominique, Fichelle, Muriel, Thiele, Alena G., Abt, Daniela, Faninger, Kerstin, Mader, Julia K., Slegtenhorst, Sonja, Ashcroft, Nicole, Wilinska, Malgorzata E., Sibayan, Judy, Kollman, Craig, Hofer, Sabine E., Fröhlich-Reiterer, Elke, Kapellen, Thomas M., Acerini, Carlo L., Campbell, Fiona, Rami-Merhar, Birgit, Hovorka, Roman |
| Publisher | Frontiers Research Foundation |
| Source Sets | Hochschulschriftenserver (HSSS) der SLUB Dresden |
| Language | English |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, doc-type:article, info:eu-repo/semantics/article, doc-type:Text |
| Rights | info:eu-repo/semantics/openAccess |
| Relation | 1664-2392, 721028 |
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