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Evaluating the impact of low health literacy and language barriers in underserved populations with Parkinson’s disease

Parkinson’s Disease (PD) is a neurodegenerative disorder affecting multiple domains in patients. Previous studies have illustrated the impact of healthcare disparities in patients with PD, illustrating worsened health outcomes between Black and White patient groups in all steps of the healthcare system such as diagnosis. Furthermore, the current literature has also illustrated the impact of low literacy levels on health-related outcomes in PD patients. While its role specifically in PD patients needs further understanding, language barriers have also affected patients and their interactions with the healthcare system, and its role in PD patients should be considered.
In this research study, we aim to address the gaps in the existing literature through a mixed-methods design, using both qualitative and quantitative methods to address patients of Black/African-American, Hispanic/Latinx ethnicities or patients who speak Haitian Creole and Spanish regarding their experiences with diagnosis and treatment of PD.. We also aim to assess providers and their attitudes towards barriers they feel their patients from these populations may face, and to ultimately use the data of this study to develop educational videos for PD patients of these backgrounds. Ultimately, the findings of this research study may be influential not only for PD patients from these backgrounds by potentially improving their healthcare experience, but also other researchers continuing to investigate these disparities in PD and medicine overall.

Identiferoai:union.ndltd.org:bu.edu/oai:open.bu.edu:2144/45590
Date07 February 2023
CreatorsLee, Aaron
ContributorsBissonnette, Stephanie, Palumbo, Carole
Source SetsBoston University
Languageen_US
Detected LanguageEnglish
TypeThesis/Dissertation

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