Background: Patient-reported outcomes (PRO) assess disease burden and indicate unmet
needs. Home-based electronic PRO measures (ePROMs) can support tumor aftercare (TAC). Creating
an ePROM is the next step after implementing the software “OncoFunction” to assess PROs during
TAC of head- and neck-cancer patients (HNC). Therefore, internet use and perception on ePROMs
of ENT and TAC patients were evaluated. Methods: From May–July 2020, ENT patients at a high-
volume outpatient department aged >18 without need for emergency treatment were invited to
complete a questionnaire concerning internet use and access, hardware, and opinion on the chances,
requirements, and designs of ePROMs. Results: 415 questionnaires were evaluated; 46.3% of the
respondents visited the common consultation hour (CCH) and 44.3% TAC; 71.9% were internet users,
being younger than non-internet users; and 36.4% of TAC patients were non-internet users and 16.3%
of them were without a web-enabled device. Significant differences existed in age and assessment
of future perspectives between internet-/non-internet users and TAC/CCH patients, respectively.
Regarding the design of ePROMs, patients preferred quarterly and short surveys. Data safety and
feedback were important. Conclusions: ePROMs are not suitable for everyone because of missing
internet access and experience. A tailored approach to implement ePROMs in TAC is needed
| Identifer | oai:union.ndltd.org:DRESDEN/oai:qucosa:de:qucosa:90299 |
| Date | 04 March 2024 |
| Creators | Wald, Theresa, Zebralla, Veit, Boege, Maren, Kunz, Viktor, Neumuth, Thomas, Dietz, Andreas, Wichmann, Gunnar, Wiegand, Susanne |
| Publisher | MDPI |
| Source Sets | Hochschulschriftenserver (HSSS) der SLUB Dresden |
| Language | English |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, doc-type:article, info:eu-repo/semantics/article, doc-type:Text |
| Rights | info:eu-repo/semantics/openAccess |
| Relation | 11773 |
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