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初探情感性精神病患身為疾病照顧者之家庭生活適應歷程 / An exploratory study on the process of family-life adjustment among caregivers who have affective disorder.龔千逢 Unknown Date (has links)
本論文試圖針對目前或曾經有過照顧罹病家人之情感性精神病患進行深度訪談,以了解其家庭生活適應整體歷程中,所遇之壓力負荷議題、照顧議題及生活適應影響議題為何。研究設計採取敘事研究法,針對四位情感性精神病患的照顧故事進行資料蒐集與分析。
本研究共有三大部份的發現,在壓力負荷層面中,照顧者主要經驗「情緒困頓」、「責任壓力」、「束縛感受」、「被隔離或排斥的感受」、「對未來的恐懼」、「刻板印象、歧視或烙印」、「家庭功能和關係之變化」等七項主觀或客觀議題;在照顧層面中,照顧者主要面臨了「疾病復發引發負面情緒,影響照顧的能量」、「資源和支持系統之運用」、「生理健康」、「心理健康」、「情感需求支持」等五項議題;在生活適應影響層面中,照顧者面臨「角色轉變」、「相關支持」、「照顧信念」、「照顧需求」等四個面向的議題。
在了解情感性精神病患身為疾病照顧者之家庭生活適應歷程中,影響其家庭生活適應之相關因素和議題之後,研究者根據研究結果的整理,提出具體建議與結論,提供助人實務工作和政策方案設計在協助情感性精神病患執行照顧角色之參考。 / This research aims to caregivers who have affective disorder had or having the experience of taking care of his or her sick families. With in-depth interview, author try to understand what issues will face during their process of family-life adjustment, like stress and burden issues, care issues, and live adjustment issues. Research design takes narrative research to collect and analyze from four caregivers who have affective disorder.
This research has three parts of finding. First, in "Stress and burden issues", caregivers face seven subjective and objective issues, such as "emotional suffering", "responsibility stress", "feeling of restrain", "feeling of being separated or rejected", "fear of the future", "stereotype, prejudice, and stigma", and "changes of family function and relationship". Second, in "Care issues", caregivers face five issues, such as "symptoms cause negative feelings", "using the resources and supportive system", "mental health", "physical health", and "support of emotional needs". Third, in "Life adjustment issues", caregivers face four issues, such as "role change", "supports", "care belief", "care needs".
After discovering those issues and relative factors that influence the process of family-life of caregivers who have affective disorder. Base on above findings, author gives suggestions on policy making and practice work for caregivers who have affective disorder.
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