Faculty of Humanities; School of Human and Community development; MA Research Report / Social participation is one of the most debilitating effects of aphasia. Yet, to date no clear definitions or models of social participation have been developed that can be applied within aphasiology. In addition, generic stroke scales are still the outcome measures of choice within research. There is a need for patient-centred measures that accurately document and assess the experiences and perceptions of those with aphasia. Therefore, the current research aimed to investigate the social participation of adults with aphasia by extending patient-centred measures and encompassing the views of the families, particularly the spouses, of those with aphasia. Four crosssectional parallel single case studies were conducted that involved a protocol combining the quantitative measure of the ASHA FACS with the qualitative tools of semi-structured interviews and observations. In addition, social network analyses were completed for each participant. Overall, open coding of the individual participants’ results produced common themes among the people with aphasia and common themes among their spouses. Each participant reported significantly altered social participation, which permeated throughout the family unit and was felt considerably by the spouses of those with aphasia. The results are discussed in relation to current social models and approaches to intervention, while professional role expansion and the needs of the South African context are also considered. Furthermore, the concept of resilience and its implications for future research are discussed.

Orientador: Edwiges Maria Morato / Dissertação (mestrado) - Universidade Estadual de Campinas, Instituto de Estudos da Linguagem / Made available in DSpace on 2018-08-17T22:46:21Z (GMT). No. of bitstreams: 1 Rajer_Franco_M.pdf: 2767921 bytes, checksum: cffae1a3ef01e9af9dbc211d984c1533 (MD5) Previous issue date: 2011 / Resumo: No campo da Afasiologia, ciência que estuda os déficits de linguagem decorrentes de lesão cerebral, encontramos uma série de "sintomas" linguísticos associados aos quadros de afasia, dentre os quais figura a anomia. A anomia é definida como dificuldade ou incapacidade de encontrar palavras durante a enunciação (MORATO, 2002, p.10). Este déficit tem sido objeto de estudo da Afasiologia, ciência esta que encontra subsídios teóricos no campo linguístico, isto é, a classificação e compreensão dos fenômenos afásicos são diretamente influenciadas pelas teorizações linguísticas, tal como vemos, por exemplo, em Jakobson [1954] (1981), no célebre artigo intitulado Dois aspectos da Linguagem e dois tipos de Afasia. Na literatura existente, o termo anomia integra as várias formas de classificação dos fenômenos afásicos e psíquicos. Contudo, lembramos que mesmo os indivíduos cujas faculdades linguísticas estariam preservadas podem, eventualmente, manifestar certa dificuldade de encontrar palavras; ou seja, este déficit pode integrar outras condições patológico-cerebrais. Por outro lado, o mesmo termo foi utilizado por Durkheim [1897] (1996) para descrever um estado social caótico, desordenado, no qual se afrouxa a coerção moral sobre os indivíduos, levando-os ao desregramento e à delinquência. No entanto, quando o sociólogo francês faz uso do termo em questão, ele tem em vista o radical grego "nomos" (lei moral, costume), no qual a "anomia" significa "ausência de leis Temos, assim, um único termo com dupla identidade semiológica: a primeira tem a forma de uma "patologia social" descrita por Durkheim nas obras Da Divisão do Trabalho Social (1893) e O Suicídio (1897); a segunda aponta um déficit linguístico e é objeto da Afasiologia. Neste trabalho pretendemos investigar a realidade semiológica polissêmica da anomia e suas implicações gerais para o entendimento de relações entre os processos de normatização social e os processos de nomeação/referenciação / Abstract: Considering the Aphasiology field, science study about the language capacity diminished by cerebral damage, it's possible to find a series of linguistic 'symptoms' associated with aphasia, within it the anomia. Anomia is defined as a difficult or incapacity in select words during the enunciation (MORATO, 2002, p.10). This deficit has been the object of Aphasiology studies, science that seeks theoretical support in the linguistic field, therefore a classification and comprehension of the aphasic phenomenon, which are directly influenced by the linguistic theorizing, as we can see, for example, in Jakobson [1954] (1981). In the existent literature, the term anomia appears diffuse with a series of classifications forms about the aphasic and psychic phenomenon. Recalling that the same person, which the linguistic capacity would have been preserved can, eventually, demonstrate a difficult in find and select words, so, this deficit, can integrate other psychological-cerebral conditions. On the other hand, the same term was used by Durkheim [1987] (1996) to describe a chaotic social state, uncoordinated, which a loosened moral coercion upon the people, leading them to the absence of rules and to delinquency. However, when the French sociology uses the term, he have in mind, the greek radical "nomos" (moral law, costume), where 'anomia' has the meaning of 'without laws' or 'absence of laws'. Therefore, the only term with double semiological identity: the first has the form of a "social pathologic" describe by Durkheim in works as The Division of Labour in Society (1983) and Suicide (1897); the second point to a linguistic deficit and is the object of Aphasiology. This work intend to investigate the existent relation between the social normative process and the naming process / Mestrado / Linguistica / Mestre em Linguística

The master´s thesis is focused on aphasia as a speech disorder. Aphasia is an element of research in many fields of study. The aim of this thesis is to interpret academic background and conclusions. Aphasiology, linguistics, speech therapy, neurology, neurolinguistics, psycholinguistics, cognitive psychology and cognitive neuropsychology are interested in aphasia. At the beginning of this thesis we can read about aphasia, its causes, classifications and diagnostics. Other chapters summarize conclusions of mentioned disciplines.

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