published_or_final_version / Social Work and Social Administration / Doctoral / Doctor of Philosophy

It is estimated that nearly 14.5 million Americans are living with cancer today. A commonly overlooked component to quality cancer care, as defined by the Institute of Medicine, is the role of psychological and social support. Better known as psychosocial support, these needs reflect a broad spectrum of obstacles or assets in an individual’s personal life that may help or hinder their healing experience. Some psychosocial examples include coping skills, transportation to medical appointments, or appropriate knowledge to mitigate the physical impacts of the cancer process. Research has shown that by addressing these potential needs, a better health outcome may be achieved for cancer patients. Through participant observation at local psychosocial service establishments and through semi-structured interviews with service providers and adults diagnosed with cancer living in the Dallas-Fort Worth region, this thesis research seeks to explore how local cancer patients are learning of psychosocial services available to them, what barriers may exist in accessing these services, and what individuals may be doing to address their psychosocial needs, both formally or informally. Results yielded recommendations for local psychosocial providers to adjust their marketing of services and kinds of services offered as well as yielded recommendations for future academic research.

Breast cancer statistics in the United States are staggering. As the number of women diagnosed grows, so does the number of women who are writing about their experiences. This thesis is a multi-textual work which includes both the stories of women with breast cancer as well as the thesis author's personal journal entries. Women's experiences are used to examine and critique current institutional and cultural responses to breast cancer. Experience literature reveals that efforts against breast cancer in the United States are emerging from two distinct ideologies which are identified as Cure and Prevention in this work. This thesis address the most prevalent issues within Cure and Prevention, and analyzes how these mindsets are shaped by definitions and expectations of femininity. The following pages elucidate how engendered values and socialization play out through the Cure and Prevention paradigms. Ultimately, the Prevention model will be shown as the one that most resolutely addresses the issue of breast cancer. Women's experiences and expertise are critical for understanding the ramifications of Cure and Prevention responses to breast cancer; women are informing and bridging misunderstandings between Cure and Prevention thinking. / Graduation date: 1997

published_or_final_version / Nursing Studies / Master / Master of Nursing in Advanced Practice

A descriptive study was conducted with the purpose of refining the Sexual Adjustment Questionnaire (SAQ) and further establishing reliability and validity. Twelve women receiving treatment for breast cancer and 22 women who were at least three months post-treatment for breast cancer voluntarily participated in the research study. Each was administered the Sexual Adjustment Questionnaire. Findings of the study revealed that the SAQ in its entirety was internally consistent. Repatterning of sexual behavior subsequent to having breast cancer did not occur in either group of women. Both the women receiving cancer treatment and those post-treatment experienced a noticeable change in their sexual behavior since having cancer.

This thesis focuses on the cultural construction of cancer experience in a modern clinical context. A French Canadian center, specializing in cancer treatment, was the main source of information for this study. Facts obtained from this setting served for the analysis. The first step in the proposed method, consisted of an ethnographic description of the clinical milieu observed. Next, five additional steps in the analysis indicated the principal elements of this cultural encounter with cancer. These steps included: (1) An analysis of the staff exchange; (2) An analysis of the patient's exchange; (3) An analysis of the documents on Terry Fox and Johnny Rougeau, heroic victims of cancer; (4) An exploration of the patients' lay knowledge on cancer; (5) A life story of a cancerous patient where by the dialectic trends between exchange, knowledge and experience are analysed. / The resultant three hypotheses deal with the emergence of a new exchange on cancer with an emphasis on hope and god morale, the homology of cancer exchanges in the clinical and social spheres, and finally concerning the nature of the layman's knowledge on cancer as making sense out of a troubling experience of liminality and alienation as well as the more open and dynamic character of the layperson's knowledge of cancer.

No description available.

This study utilized a self-reported survey design to obtain information from 47 Latinas to determine their breast cancer knowledge levels and compliance with early detection methods.

Psychosocial oncology is well established in Europe and in America. Similar initiatives are, however, rare in Africa. On the African continent, psychosocial services are scarce and often a luxury although the importance of psychosocial variables as mediators in the paediatric cancer outcomes have been widely recognised. The apartheid system in South Africa was instrumental in causing major disparities in health, education and socioeconomic status. In order to provide a more holistic service it becomes imperative to assess not only the psychosocial needs and resources of both children and parents who endure the disease but also the influence of socio-demographic variables such as race, educational level and socioeconomic status. This research was limited to collecting baseline information on how parents and children communicate about the illness, emotional responses and the psychological resources that they utilise to deal with the childhood cancer trajectory. The study group consisted of 100 children between the ages of 5 and 16 years who had been diagnosed with cancer and one or both parents of those children. Data was collected through semi-structured interviews and standardised self-report measures. The results of the study indicate that both parents and children did not suffer disabling psychopathology, but certainly evidenced symptoms of depression and anxiety indicative of adjustment difficulties. Communicating about the illness was generally limited to physiological aspects of the disease and medically related matters, while emotional issues were rarely articulated. Children, parents and their siblings relied heavily on medical staff for their information needs. The age of the child was a significant factor with reference to amount and complexity of information imparted to children: adolescents were given more information about the treatment and prognosis; while younger children were given a limited amount of information. Race, socioeconomic status and educational levels of parents not only influenced the meanings and beliefs families developed around the cancer experience, but also the manner in which they expressed their emotions and the coping strategies that they employed. / Thesis (Ph.D.)-University of KwaZulu-Natal, Durban, 2004.

M.A. (Social Work) / Cancer is a common condition and is becoming an important issue in South Africa. During their lifetime people may develop different forms of cancer such as lung -, throat -, skin -, colon -, and breast cancer. Cancer affects people of different age groups from small children up to older people. It cuts across different racial groups and different socio economic levels. The patient with cancer faces one of the greatest stress situations known to man. Cancer is frequently a chronic disease. Acute periods of illness or intensive therapy may interrupt periods of normality for months or years. Treatment may necessitate major alterations in lifestyle or normal body functions. The diagnosis of cancer is seen by many as synonymous with death. (Kellogg & Sullivan : 1978) Kellogg (1978) believes that the fear of loss of self determination, of being dependent and non - productive, can be more stressful than the prospect of death itself. The patient may also fear that the disease, the results of treatment, or the changes he presumes will result, will cause others to isolate or abandon him...