published_or_final_version / Social Work and Social Administration / Doctoral / Doctor of Philosophy

Self-help groups have emerged as a system of care for groups of people sharing a common problem or condition. Most of the interest in research came from professionals in mental health and social services. Educators have traditionally viewed self-help groups as outside their domain. The focus of this study is the phenomenon of personal change within self-help groups. This is viewed as “learning with peers.” The subject of the study was HOPE Cancer Health Centre, a non-profit community based self-help organization in Vancouver, B.C. Appropriate to the study of phenomena in their natural surroundings, data collection methods were qualitative in nature. Fourteen in-depth interviews were carried out with members and leaders of the self-help group. Two introductory workshops were attended for participant observation and several pertinent documents were reviewed. A full description of HOPE Cancer Health Centre as a self-help group and as a context for adult learning was developed. To clarify the description of HOPE, a framework of characteristics of self-help groups was developed. It was used to organize data collection and analysis. Compilation and analysis of the findings created a description of HOPE that adds to the understanding of self-help groups as organizations in a larger system of care provision. It also adds to the understanding of HOPE as an organization with the purpose to assist cancer patients who are interested in actively participating in their cancer treatment and recovery. In order to enhance understanding of adult learning in the context of a selfhelp group, three perspectives from the literature on adult learning were selected for their potential to organize and explain the resulting data. Four important themes emerged from the data on the learning experiences of the members of HOPE. First, the ideology of HOPE, “self as participant in healing,” is the framework of learning and within that frame there are four forms of learning, the forms of transformative learning being the most significant. Second, for the learners of HOPE, the basis of knowledge is their personal experience; therefore, processes of experiential learning are important as well as those of perspective transformation. Third, the affective dimension of the experiential learning process was found to be integral in the process of learning. The fourth theme is “learning with peers,” the innate characteristic of self-help groups. All members interviewed placed high value on their experiences of learning with peers and of learning at HOPE. Meaningful interpretation of the data resulted from application of concepts and theoretical propositions from three perspectives on adult learning: experiential learning, transformative learning and situated learning.

Previous research suggested that sleep onset insomnia was significantly reduced with the use of relaxation techniques; however, the majority of these studies used college student populations with mild to moderate insomnia. The objective of the present study was to assess the effectiveness of using muscle relaxation training in a clinical population known to have sleeping difficulties—cancer patients. Results of this study suggest that muscle relaxation training is an effective technique to reduce sleep onset insomnia in cancer patients, and perhaps also in any clinical group. The technique seems especially promising since it was shown to be effective with severe insomniacs suffering severe medical problems. Results of the study were discussed in terms of possible explanations for the efficacy of the treatment, potential uses of the technique with other clinical populations, and ease of teaching nonpsychologist health professionals to treat with muscle relaxation training.

Self-help groups have emerged as a system of care for groups of people sharing a common problem or condition. Most of the interest in research came from professionals in mental health and social services. Educators have traditionally viewed self-help groups as outside their domain. The focus of this study is the phenomenon of personal change within self-help groups. This is viewed as “learning with peers.” The subject of the study was HOPE Cancer Health Centre, a non-profit community based self-help organization in Vancouver, B.C. Appropriate to the study of phenomena in their natural surroundings, data collection methods were qualitative in nature. Fourteen in-depth interviews were carried out with members and leaders of the self-help group. Two introductory workshops were attended for participant observation and several pertinent documents were reviewed. A full description of HOPE Cancer Health Centre as a self-help group and as a context for adult learning was developed. To clarify the description of HOPE, a framework of characteristics of self-help groups was developed. It was used to organize data collection and analysis. Compilation and analysis of the findings created a description of HOPE that adds to the understanding of self-help groups as organizations in a larger system of care provision. It also adds to the understanding of HOPE as an organization with the purpose to assist cancer patients who are interested in actively participating in their cancer treatment and recovery. In order to enhance understanding of adult learning in the context of a selfhelp group, three perspectives from the literature on adult learning were selected for their potential to organize and explain the resulting data. Four important themes emerged from the data on the learning experiences of the members of HOPE. First, the ideology of HOPE, “self as participant in healing,” is the framework of learning and within that frame there are four forms of learning, the forms of transformative learning being the most significant. Second, for the learners of HOPE, the basis of knowledge is their personal experience; therefore, processes of experiential learning are important as well as those of perspective transformation. Third, the affective dimension of the experiential learning process was found to be integral in the process of learning. The fourth theme is “learning with peers,” the innate characteristic of self-help groups. All members interviewed placed high value on their experiences of learning with peers and of learning at HOPE. Meaningful interpretation of the data resulted from application of concepts and theoretical propositions from three perspectives on adult learning: experiential learning, transformative learning and situated learning. / Education, Faculty of / Educational Studies (EDST), Department of / Graduate

Thesis (PhD)--Stellenbosch University, 2014. / ENGLISH ABSTRACT: Post-operative laryngectomy patients face various physical, psychological and social challenges. The comprehensive effects of a total laryngectomy can have an adverse impact on the patient and his or her family. Because improved medical treatment can increase the life expectancy of cancer sufferers, psychosocial guidance is required over an extended period. Unfortunately, limited information on the coping strategies of such patients is available. The social work profession could benefit from greater insight into the strengths and coping mechanisms of post-operative cancer patients in order to guide them through their survivorship journey with insight and compassion. The researcher therefore aimed to explore and describe the experience of a patient and his/her close family while coping with the long-term challenges of a laryngectomy. The objectives were: (1) to discuss the nature of cancer survivorship, (2) to describe the medical aspects of and physical re-adjustments to a laryngectomy, (3) to discuss principles and strategies for coping and surviving a laryngectomy, (4) to describe the comprehensive psychosocial effects during the permanent survival phase and re-entry into society; (5) to explore the survivorship journey of laryngectomy patients and their families, and (6) to analyse and interpret data obtained from the study. Each of the survivorship phases as contextualised by Miller et al. (2008:369-374)* is discussed in the literature review. Both the ecological and the strengths perspective were utilised as the theoretical framework for this study. Principles of the strengths perspective focus on the inherent strengths that help patients cope with this traumatic life event, while the ecological perspective focuses on the utilisation of community resources in order to survive the laryngectomy experience. A combination of exploratory and descriptive designs was applied throughout the study to gain insight into the survival experience of post-operative laryngectomy patients and their families. The research question was: “What are patients’ and families’ experiences of surviving a laryngectomy with the assistance of internal and external resources within the family system and environment?” This question was addressed by combining the quantitative and qualitative research approaches. Forty-five post laryngectomy patients and fifteen family members, representing one-third of these patients, were included in the study through purposive sampling. The study period was from June 2012 to July 2013. The inclusion criteria required: (1) Patients from the service area of the selected hospital who received a total laryngectomy as surgical treatment for an advanced stage of cancer of the larynx or hypopharynx; (2) patients who were operated on not less than three months previously; (3) patients who had already completed their initial treatment and who were attending the follow-up clinic; and (4) patients who had successfully acquired trachea-oesophageal speech. Data obtained from the interviews were organised into themes. Four themes were identified: (1) the need for pre-operative information; (2) experience of physical adjustment; (3) coping and strengths used; and (4) experience of psychosocial effects of surgery and re-entry into society. These themes were divided into sub-themes and categories. The main outcome of the study was that both patients and families mobilise a combination of inner strengths and external resources to adapt to the inevitable physical changes resulting from a laryngectomy. It is therefore recommended that social workers dealing with survivorship cases utilise a combination of the ecological and strengths perspectives to create an environment in which patients can explore their own inner strengths, or to help them link to community resources whilst coping with their survivorship journey. Future research should focus on the long-term psychosocial survival of laryngectomy patients and their families, as it is likely that survivorship will increase in future; the implementation of survivorship programmes for health care professionals to equip them with skills to guide cancer survivors to full utilisation of their own strengths and available community resources; the role of pre- and primary school children/grandchildren in the rehabilitation of laryngectomy patients deserves further investigation. / AFRIKAANSE OPSOMMING: Laringektomie-pasiënte word ná hul operasie met verskeie liggaamlike, psigiese en sosiale uitdagings gekonfronteer. Die omvattende gevolge van ‘n totale laringektomie kan die pasiënt en sy of haar gesin nadelig affekteer. Aangesien verbeterde mediese behandeling die lewensverwagting van kankerpasiënte kan verleng, word psigososiale ondersteuning oor ‘n langer tydperk benodig. Ongelukkig bestaan daar baie min inligting oor hoe pasiënte kanker hanteer. Die maatskaplike werk beroep kan dus voordeel trek uit beter insig in die hanteringsmeganismes van post-operatiewe kankerpasiënte om hulle met insig en empatie deur hul oorlewingsreis te kan begelei. Die navorser het ten doel gehad om die ondervindings van die kankerpasiënt en sy/haar naby familie tydens hul langtermynhantering van ‘n laringektomie te ondersoek en te beskrywe. Verdere oogmerke van die studie was: (1) om die aard van kankeroorlewing te bespreek; (2) om die mediese aspekte van en liggaamlike aanpassing ná ‘n laringektomie te beskrywe; (3) om die beginsels en strategieë vir ‘n oorwinning oor ‘n laringektomie te bespreek; (4) om die omvattende psigososiale gevolge van die finale oorlewingsfase en hertoetrede tot die gemeenskap te beskrywe; (5) om die oorlewingsreis van die laringektomiepasiënt en sy/haar gesin te ondersoek; en (6) om die resultate van die studie te ontleed en te interpreteer. Elk van die oorlewingsfases soos deur Miller et al. (2008:369-374)* beskrywe, is in die literatuuroorsig bespreek. Die ekologiese en die sterkte-perspektiewe is tesame as teoretiese raamwerk vir die studie gebruik. Die beginsels van die sterkte-perspektief is op die inherente krag van pasiënte gemik, om te bepaal hoe hulle hierdie traumatiese lewensgebeurtenis hanteer, terwyl die ekologiese perspektief op hul aanwending van gemeenskapsbronne om die laringektomie te oorleef, fokus. ‘n Kombinasie van ondersoekende en beskrywende navorsings ontwerpe is deurgaans gebruik om insig in die oorlewingstryd van laringektomiepasiënte en hul gesinne te verkry. Die navorsingsvraag was: “Wat is pasiënte en hul gesinne se ervarings van oorlewing na ‘n laringektomie met die hulp van interne en eksterne hulpbronne in die gesinstruktuur en omgewing?” Kwantitatiewe en kwalitatiewe navorsingsmetodes is gekombineer om hierdie vraag te ondersoek. Vyf-en-veertig laringektomiepasiënte en vyftien gesinslede, wat verteenwoordigend van twee-derdes van die pasiënte was, is met behulp van ‘n doelbewuste steekproef by die studie betrek. Die studie is tussen Junie 2012 en Julie 2013 onderneem. Die insluitingskriteria was: Pasiënte uit die diensgebied van die spesifieke hospitaal wat 'n totale laringektomie as chirurgiese behandeling vir 'n gevorderde stadium van kanker van die larinks of hipofarinks ontvang het; (2) pasiënte wat hul operasie nie meer as drie maande vantevore ondergaan het nie, (3) pasiënte wat reeds hul aanvanklike behandeling voltooi het en wat die opvolgkliniek bywoon, (4) pasiënte wat tragea-esofageale spraak suksesvol bemeester het. Die data, wat deur middel van onderhoude ingesamel is, is in temas gegroepeer. Vier temas is geïdentifiseer: (1) die behoefte aan inligting voor die operasie; (2) ervaring van liggaamlike aanpassing; (3) die hantering van omstandighede en innerlike krag; en (4) ervaring van die psigososiale uitwerking van die operasie en hertoetrede tot die gemeenskap. Hierdie temas is verder in subtemas en kategorieë verdeel. Die belangrikste uitkoms van hierdie studie is dat beide pasiënte en gesinne ‘n kombinasie van hul innerlike krag en eksterne bronne aangewend het om ná die laringektomie by die onafwendbare liggaamlike veranderinge aan te pas. Daar word dus aanbeveel dat maatskaplike werkers wat kankeroorlewendes hanteer, van ‘n kombinasie van die ekologiese en die sterkte-perspektief gebruik maak om ‘n omgewing te skep waarin die pasiënt sy of haar eie innerlike krag kan ontgin, of om pasiënte te help om kontak met gemeenskapsbronne te maak terwyl hulle die oorlewingsreis baasraak. Toekomstige navorsing behoort te fokus op langtermyn psigososiale oorlewing van laringektomie pasiënte en familie met inagneming van die tendens dat kanker pasiënte se oorlewing toeneem; die implementering van opleidingsprogramme vir gesondheidswerkers te fokus om hulle met die nodige kennis toe te rus om kankeroorlewendes te begelei om hul volle krag en alle beskikbare gemeenskapsbronne te gebruik. Daarby verdien die rol van voorskoolse- en laerskoolkinders in die rehabilitasie van laringektomiepasiënte verdere ondersoek.

Thesis (M Social Work(Social Work))--University of Stellenbosch,2009. / A laryngectomy is mostly indicated as treatment for an advanced stage of cancer of the larynx, during which the patient’s voice box is removed. This operation can hold major psycho-social implications for the patient and family. To cope with the challenges in daily life, patients need social support. A lack of available literature and research regarding the role of the social worker in facilitating support groups for these patients and families was identified and motivated this research study. The goal of the study was to gain a better understanding of the laryngectomy patient’s need for support groups in a hospital setting when attending the follow-up clinic at the hospital. A combination of both the exploratory and descriptive research designs together with a combination of mainly a qualitative and to a certain extent the quantitative research approaches, was used. From this, knowledge, insight and an understanding of the need for support groups in a hospital setting from a social work perspective were obtained. Permission to conduct the proposed study was granted by the Committee for Human Research at the University of Stellenbosch. The literature study first focused on medical aspects of a laryngectomy and social work intervention services within a hospital setting as part of the multi-disciplinary approach. Second, psycho-social effects of a laryngectomy from an ecological perspective were discussed, referring to the physical, social and psychological effects of surgery upon the patient and family. Third, support and aftercare were discussed with specific reference to the role of the social worker in offering social support to the patient and family. For the empirical study, twenty laryngectomy patients from the service area of Tygerberg Hospital were involved from January 2008 to May 2008. Criteria for inclusion in the study referred to patients who had their operation not less than three months previously, attended the support group during follow-up visits at the hospital and who had successfully acquired tragea-oesophageal speech. Based on the literature review, a semi-structured questionnaire and face-to-face interview were used as research instruments to overcome the limitation of illiteracy. The results of the investigation mainly confirmed the findings of the literature study namely that laryngectomy patients can benefit from support groups in order to address their need for social support in dealing with daily life challenges. Patients indicated that they mainly needed information regarding post-operative adaptation as this was where problems were mostly experienced. The majority of patients suggested the use of support groups in this regard. Focus was placed on an exploration and description of patients’ needs for such support groups. Benefits of support groups were found to be totally compatible with the role of the social worker. The results therefore gave an indication of social work intervention services and referred to: provision of information, problem-solving, offer of social and emotional support, and promotion of rehabilitation opportunities, thereby improving the patient’s quality of life. Recommendations were aimed at social work intervention services relating to support and aftercare offered to laryngectomy patients and relatives. Future research to develop social work programmes for health care professionals in order to effectively support these patients and their families was proposed. From practical experience of support groups a study regarding the role of pre- and primary schoolchildren or grandchildren in the rehabilitation of laryngectomy patients was also suggested.

published_or_final_version / abstract / Social Work and Administration / Doctoral / Doctor of Philosophy

研究背景: 隨著乳腺癌患者存活率的不斷上升及其存活時間的不斷延長，癌病倖存已成為一個重要的慢性疾病管理問題。之前在該領域的研究主要集中於生活質量的測量。然而，癌病倖存研究應該超出這一範疇而更好地去瞭解乳腺癌倖存者的真實體驗。癌病倖存是一個新興而複雜的概念，它包含了動態的、多維的以及社會文化的觀點。但是，衛生專業人員受限於現有的知識未能為中國大陸乳腺癌患者的長期倖存做好準備。 / 研究目的: 本研究目的是從中國大陸女性的視角詳盡闡述乳腺癌倖存者的親身體驗。具體研究目標包括：1）乳腺癌倖存者的生活質量；2）與乳腺癌倖存者生活質量相關的因素；3）乳腺癌患者的倖存體驗；4）社會人口學及臨床學特徵對於乳腺癌倖存體驗的影響；5）建立一種與文化相關的概念模型用以解釋中國婦女乳腺癌患者的倖存體驗。 / 研究方法: 本研究採用混合研究方法，分兩個階段進行。先是定量法（第一階段），其次是定性法（第二階段）。第一階段是對乳腺癌倖存者其生活質量及相關因素進行橫斷性調查。測量工具包括生活質量-癌症倖存者量表及社會支持問卷簡表。該階段的調查結果將指導第二階段的目的性抽樣並建立半結構式訪談計劃。第二階段是對選定倖存者進行深入訪談以探究她們的癌症倖存體驗。採用內容分析法對訪談數據的潛在及顯性內容進行分析。然後對不同定義組中的定性數據進行比較，探索社會人口學及臨床學特徵對乳腺癌倖存體驗的影響。最後對定量和定性數據進行對比和比較，以確定並探討癌病倖存體驗的組成元素和模型開發。 / 研究結果：在完成第一階段的100位倖存者中，平均年齡為53.75 歲 (SD=7.27)，治療完成後存活時間的中位數為44 個月 (四分位範圍=23-61)。總體生活質量平均值為6.55，範圍3.68 - 8.89。在身體分量表中顯示生活質量最高值，而在靈性分量表找到其最小值。多元回歸分析表明，存活期的長短、對社會支持的滿意度以及家庭年收入與生活質量均顯著相關。 / 29位倖存者完成了第二階段的研究。結果顯示用於描述倖存經驗的七個範疇，包括：體驗令人痛苦的症狀；與不確定性進行抗爭；在女性特質及性行為上的改變；忍受社會壓力；被關照和支持；反思和個人成長；生存並向前發展。定性數據的比較顯示，對於存活時間低於5年，或者家庭年收入較低，亦或感知的生活質量較低的女性，她們傾向於報告負面的倖存經驗。通過提取定量和定性階段上主要的研究結果建立一個概念模型，用以解釋中國女性是如何理解乳腺癌倖存經驗的。它表明，乳腺癌倖存經驗在本質上是多維的。治療完成後，乳腺癌患者在生活變化上會有消極與積極的雙重性，會對生活質量評估產生影響。此外，乳腺癌倖存經驗也不是一成不變的。它是一個動態的應對過程，具有幾種策略以應對癌症導致的生活變化。 / 研究結果：本研究對中國文化背景下乳腺癌倖存經驗提供了證據。本研究全面而深入的瞭解乳腺癌患者倖存經驗，並為進一步發展測量工具以及具備文化敏感性的心理干預提供了基礎，以解決中國女性的倖存經驗的問題。 / Background: With the increasing survival rate and length of survival in breast cancer, cancer survivorship has become an important chronic illness management issue. Previous studies in this area mainly focus on appraisal of quality of life (QOL). However, cancer survivorship studies should go beyond QOL to better understand breast cancer survivor’s experience of living with the disease. Cancer survivorship appears as an emerging but complex concept incorporating dynamic, multidimensional, and socio-cultural perspectives. Little information exists addressing breast cancer survivorship experience in mainland China that impedes health professionals’ ability to deliver quality of cancer care. / Aim: To develop an understanding of breast cancer survivorship experience from the perspective of mainland Chinese women. Specific objectives included exploring 1) women’s perceived QOL; 2) factors associated with women’s QOL; 3) women’s perception of breast cancer survivorship experience; 4) the influence of socio-demographic and clinical characteristics on the women’s perception of their survivorship experience after breast cancer; and 5) to develop a culturally relevant conceptual model to explain Chinese women’s breast cancer survivorship experience. / Methods: A mixed methods study with two phases was conducted, quantitative approach (Phase One) followed by qualitative approach (Phase Two). Phase One was a cross-sectional survey on Chinese breast cancer survivors to investigate their QOL and its associating factors. Instruments included Quality of Life -- Cancer Survivor Scale and six-item Social Support Questionnaire. Findings in this phase contributed to inform the purposive sampling and develop a semi-structured interview schedule for Phase Two. In-depth interviews on selected survivors were conducted to explore their perceptions of cancer survivorship experience. Content analysis was used to analyze both latent and manifest meaning of interview data. Comparisons of qualitative data across defined groups were made to explore the influence of socio-demographic and clinical characteristics on breast cancer survivorship experience. Quantitative and qualitative data were compared and contrasted to identify and explore elements in cancer survivorship experience and model development. / Results: Among 100 survivors who completed Phase One, the mean age was 53.75 years (SD=7.27), and the median length of survivorship since completion of treatment was 44 months (IQR=23-61). The mean overall QOL was 6.55, with a range of 3.68 -8.89. The highest QOL was found in the physical subscale, and the lowest in the spiritual subscale. Multivariate regression analysis identified that length of survivorship, satisfaction with social support, annual household income were significantly associated with QOL. / Twenty-nine survivors completed Phase Two. Seven categories emerged describing the survivorship experience included experiencing distressful symptoms; struggling with uncertainty; alterations in femininity and sexuality; living with social stress; being cared for and supported; reflections and personal growth; and surviving and moving forward. Comparisons of qualitative data revealed that women with less than five years of survivorship, or low annual household income, or low perceived QOL tended to report negative survivorship experience. A conceptual model was developed by drawing the key findings of quantitative and qualitative phases to explain how Chinese women perceive the breast cancer survivorship experience. It reveals that breast cancer survivorship experience is multidimensional in nature, with a duality for the negative and positive aspects of life changes after completion of treatment, contributing to influence appraisal of QOL. Furthermore, breast cancer survivorship experience is not static but a dynamic coping process with several strategies for dealing with life changes that result from cancer. / Conclusions: The study provides evidence of several components of breast cancer survivorship within Chinese cultural context. This offers a comprehensive and insightful understanding of the experience after surviving breast cancer, and a basis for further inquiry for developing an instrument and culturally sensitive psychosocial intervention to address Chinese women’s survivorship experience. / Detailed summary in vernacular field only. / Detailed summary in vernacular field only. / Detailed summary in vernacular field only. / Detailed summary in vernacular field only. / Detailed summary in vernacular field only. / Detailed summary in vernacular field only. / Cheng, Huilin. / Thesis (Ph.D.)--Chinese University of Hong Kong, 2012. / Includes bibliographical references (leaves 252-283). / Electronic reproduction. Hong Kong : Chinese University of Hong Kong, [2012] System requirements: Adobe Acrobat Reader. Available via World Wide Web. / Abstract also in Chinese; appendixes inchludes Chinese. / Chapter CHAPTER ONE --- INTRODUCTION --- p.1 / Background of the study --- p.2 / Breast cancer incidence --- p.2 / Breast cancer diagnosis and treatments --- p.3 / Breast cancer survival --- p.5 / Cancer survivorship --- p.7 / Overview of cancer survivorship --- p.7 / Breast cancer survivorship research --- p.10 / Rationale for the study --- p.12 / Purpose of the study --- p.13 / Organization of the thesis --- p.13 / Chapter CHAPTER TWO --- LITERATURE REVIEW --- p.15 / Literature search --- p.15 / Search strategy --- p.15 / Selection criteria --- p.16 / Definition of cancer survivor --- p.17 / Concept of cancer survivorship --- p.18 / Concept of quality of life (QOL) --- p.22 / Definitions --- p.22 / Measurements --- p.25 / Generic instrument --- p.26 / Cancer-specific instrument --- p.26 / Cancer survivor-specific instrument --- p.27 / Distinctions between cancer survivorship and QOL --- p.29 / Quantitative studies on breast cancer survivorship --- p.30 / Overall QOL and QOL across different domains of breast cancer survivors --- p.30 / Overall QOL --- p.30 / Physical effect --- p.31 / Psychological effect --- p.34 / Social effect --- p.36 / Spiritual effect --- p.37 / Factors affecting the QOL of breast cancer survivors --- p.40 / Socio-demographic factors --- p.41 / Clinical factors --- p.42 / Social support --- p.47 / Ethnicity --- p.49 / Methodological critique of quantitative studies --- p.52 / Qualitative studies on breast cancer survivorship --- p.54 / Multidimensional nature of breast cancer survivorship --- p.54 / Dynamic nature of breast cancer survivorship --- p.57 / Influence of ethnicity on breast cancer survivorship --- p.60 / Methodological critique of qualitative studies --- p.62 / Mixed methods study on breast cancer survivorship --- p.63 / Summary --- p.65 / Chapter CHAPTER THREE --- METHODOLOGY --- p.67 / Study aim and objectives --- p.67 / Definitions of terms --- p.68 / An overview of mixed methods research --- p.69 / Philosophical foundation of mixed methods research --- p.71 / Research design: Sequential explanatory mixed methods --- p.72 / Overview of the selected design --- p.72 / Justification for the selected design --- p.74 / Integration of data from Phases One and Two --- p.76 / Study setting --- p.78 / Description of the Phase One study method --- p.79 / Sampling --- p.80 / Sample size --- p.80 / Sampling criteria --- p.80 / Instruments --- p.81 / Socio-demographic and clinical characteristics --- p.81 / Perceived social support --- p.81 / QOL --- p.82 / Sexual QOL --- p.85 / Willingness to participate in Phase Two --- p.86 / Data collection procedures --- p.86 / Quantitative data analysis --- p.87 / Descriptive analysis --- p.87 / Regression analysis --- p.88 / Description of the Phase Two study method --- p.88 / Sample and sampling --- p.89 / Sampling and selection criteria --- p.89 / Sample size --- p.90 / Data collection method --- p.91 / Semi-structured face-to-face interview --- p.91 / Interview schedule --- p.92 / Data collection procedure --- p.93 / Qualitative data analysis --- p.94 / Content analysis --- p.94 / Comparative analysis in qualitative research --- p.97 / Ensuring rigor of qualitative inquiry --- p.99 / Justification for using validity and reliability --- p.99 / Strategies for achieving validity --- p.100 / Strategies for achieving reliability --- p.101 / Ethical considerations --- p.101 / Pilot study --- p.102 / Pilot study of Phase One --- p.102 / Pilot study of Phase Two --- p.104 / Chapter CHAPTER FOUR --- FINDINGS FOR PHASE ONE --- p.106 / Characteristics of participants --- p.106 / Socio-demographic characteristics --- p.106 / Clinical characteristics --- p.108 / Perceived social support --- p.110 / QOL --- p.111 / Physical domain --- p.112 / Psychological domain --- p.113 / Social domain --- p.114 / Spiritual domain --- p.115 / Sexual domain --- p.116 / Factors associated with QOL --- p.117 / Differences in overall QOL and QOL domains by socio-demographic and clinical characteristics, as well as perceived social support --- p.118 / Factors associated with overall QOL and different QOL domains --- p.126 / Participants’ willingness to participate in Phase Two of the study --- p.129 / Contribution of Phase One findings to the development of Phase Two --- p.132 / Selection criteria for purposive sampling --- p.132 / Development of interview schedule --- p.134 / Summary --- p.135 / Chapter CHAPTER FIVE --- FINDINGS FOR PHASE TWO --- p.137 / Characteristics of participants --- p.137 / Categories identified from content analysis --- p.140 / Experiencing distressful symptoms --- p.142 / Memory and concentration problems --- p.142 / Lymphedema --- p.142 / Fatigue --- p.143 / Struggling with uncertainty --- p.144 / Fear of recurrence --- p.144 / Fatalism --- p.145 / Unpredictability of illness --- p.146 / Alterations in femininity and sexuality --- p.147 / Poor body image --- p.147 / Changes in sexual activity --- p.149 / Living with social stress --- p.150 / Being stigmatized --- p.150 / Financial burden --- p.151 / Being cared for and supported --- p.152 / Family members and close friends --- p.153 / Cancer self-help group --- p.154 / Workplace --- p.155 / Health professionals --- p.155 / Reflections and personal growth --- p.156 / Re-prioritizing life perspectives --- p.156 / Change in personal character --- p.157 / Gaining inner strength --- p.158 / Surviving and moving forward --- p.159 / Performing self-care --- p.159 / Attitude towards having cancer --- p.160 / Hope for the future --- p.162 / Sense of normalcy --- p.163 / Comparison of categories and subcategories by selected characteristics --- p.164 / Comparison of categories between participants with high- and low-perceived QOL --- p.164 / Comparison of categories between participants with high- and low-annual household income --- p.167 / Comparison of categories between participants with short- and long- term survivorship --- p.169 / Summary --- p.170 / Chapter CHAPTER SIX --- DISCUSSION --- p.171 / Purpose of integration --- p.171 / Convergent findings --- p.172 / Complementary findings --- p.173 / Socio-demographic background of the participants --- p.174 / Clinical characteristics of the participants --- p.176 / Women's perception of QOL --- p.178 / Women's perceived levels of overall QOL and specific domains --- p.178 / Overall QOL --- p.178 / QOL in the physical domain --- p.179 / QOL in the psychological domain --- p.180 / QOL in the social domain --- p.181 / QOL in the spiritual domain --- p.182 / QOL in the sexual domain --- p.183 / Factors associated with women’s perceived levels of QOL --- p.184 / Socio-demographic factors influencing women’s perceived QOL --- p.184 / Clinical characteristics influencing women’s perceived QOL --- p.185 / Women's perception of social support and QOL --- p.186 / Social network and support --- p.186 / Social network and QOL --- p.188 / Satisfaction with social support and QOL --- p.189 / Women's perception of the breast cancer survivorship experience --- p.190 / Symptom distress --- p.191 / Uncertainty --- p.192 / Body image --- p.194 / Sexuality --- p.196 / Cancer-related stigma --- p.197 / Financial burden --- p.198 / Meaning in life --- p.200 / Self-identity --- p.202 / Fatalism --- p.203 / Attitude towards having cancer --- p.205 / Self-care/self-management --- p.206 / Hope --- p.207 / Summary --- p.208 / Chapter CHAPTER SEVEN --- A CONCEPTUAL MODEL TO EXPLAIN CHINESE WOMEN’S BREAST CANCER SURVIVORSHP EXPEREINCE --- p.210 / Overview of the proposed conceptual model --- p.210 / Content of the conceptual model --- p.211 / Function of the conceptual model --- p.212 / Perceived negative life change --- p.218 / Symptom distress --- p.218 / Uncertainty --- p.219 / Concern about body image --- p.220 / Cancer-related stigma --- p.222 / Financial burden --- p.223 / Perceived positive life change --- p.224 / Meaning in life --- p.224 / Positive self-identity --- p.225 / Social support --- p.226 / Co-existence of perceived negative and positive life changes --- p.228 / Perceived quality of life --- p.228 / Coping --- p.229 / Fatalistic voluntarism --- p.230 / Maintaining hope --- p.231 / Positive attitude --- p.232 / Performing self-care/self-management --- p.233 / Comparison between previous theory and the present model --- p.234 / Summary --- p.238 / Chapter CHAPTER EIGHT --- CONCLUSION --- p.239 / Limitations --- p.239 / Implications for nursing practice --- p.243 / Recommendations for future research --- p.248 / Conclusion --- p.251 / REFERENCE --- p.252 / APPENDIX --- p.284

The purpose of this hermeneutic phenomenology study was to explore and describe the meaning employees attribute to the lived experiences of returning to work after cancer treatment. Semi-structured interviews were held with eight participants and a thematic data analysis method was used. The results indicate that cancer survivors experience various challenges that make it difficult to function as they did before the diagnosis when they return to work. A critical hermeneutical reflection against the literature followed the structural analysis and resulted in a contextual framework that incorporated the individual and organisational perspective on the various influences involved in supporting cancer survivors to maintain their wellbeing when they return to work. Four phases, repression, comprehension, activation and reintegration, were identified when they tried to cope/adjust on their return to work. The corresponding forms of organisational support they expected through these phases were labelled motivation, information, navigation and stabilisation. / Industrial and Organisational Psychology / M. Com.

published_or_final_version / Social Work / Master / Master of Social Work