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31	Participation des patients à la gouvernance des GMF-U : une innovation organisationnelle au service des patients Trépanier, Emmanuelle 12 1900 (has links) Contexte : L’engagement des patients dans les soins de santé et en gouvernance a fait l’objet de plusieurs études au cours de la dernière décennie, mais aucune ne s’est intéressée à leur engagement au niveau stratégique d’un Groupe de médecine de famille universitaire (GMF-U). En 2017, les gestionnaires du GMF-U de Verdun, situé à Montréal, au Canada, ont décidé de mettre en place une approche de co-construction avec des patients ressources au sein de leur comité de gouvernance, afin d’améliorer la qualité et la pertinence des soins et des services, de l’enseignement et de la recherche au sein de l’organisation. Objectifs : 1) Évaluer le rôle et l’influence des patients ressources sur la prise de décision au sein d’un comité de gestion dans un GMF-U ; 2) déterminer les facteurs favorables et les obstacles à l’engagement de patients ressources sur un comité de gestion dans un GMF-U ; 3) évaluer l’impact de cette innovation sur la promotion d’une culture de partenariat à travers l’organisation. Méthodes : À partir d’une étude de cas unique, à trois niveaux d’analyse, les données ont été collectées au niveau du 1) CIUSSS ; 2) comité de gouvernance du GMF-U ; 3) GMF-U. De juin 2017 à mai 2019, des données qualitatives ont été collectées via deux groupes de discussion de quatre et quatorze personnes, quatre entretiens semi-dirigés, des documents et un journal de bord. Des données quantitatives ont également été collectées à partir de questionnaires. Résultats : La mise en valeur du rôle des patients ressources, soit le partage de leur savoir expérientiel, repose sur une démarche d’engagement structurée qui inclut un processus de recrutement rigoureux, la formation et le coaching de l’ensemble des membres du comité et l’élaboration de modalités de travail qui répondent aux conditions de participation des patients. Un leadership aux multiples niveaux organisationnels est également essentiel afin de soutenir la culture de partenariat et la démarche de co-construction en gouvernance. Conclusion : Les résultats de cette étude illustrent les possibilités et les défis liés à la participation de patients au niveau de la gouvernance d’un GMF-U et permettront de guider d’autres GMF-U ou GMF intéressés en ce sens. / Background: Patient engagement in primary care has been the focus of many studies in the past decade, however little research has evaluated its added value to organisational management in an academic community-based primary care practice (ACBPCP). In 2017, managers of an ACBPCP in Montreal, Canada, decided to integrate patients into the organization’s management committee to enhance the quality and relevance of decision-making for clinical services, education and research. Objectives: 1) Assess patient advisors’ role and influence on an ACBPCP management committee’s decision-making process; 2) identify the facilitators of and obstacles to patient engagement in this context; and 3) evaluate the impact of this innovative approach in promoting a patient-partnership culture throughout the organization. Design: Using a single case study, data was collected from three levels: 1) the professionals in charge of patient partnership within the territorial health care organization’s quality division; 2) the management committee; and 3) the ACBPCP’s staff outside the committee. From June 2017 to May 2019, qualitative data was collected through two focus groups, four interviews, documents and a logbook, and quantitative data was collected through questionnaires. Results: Patient advisors’ role on the strategic committee is to share their perspective based on experiential knowledge. Successful patient governance relies on a structured engagement approach, including a rigorous recruitment process of patient advisors, training and coaching of all committee members and the development of work modalities that meet the conditions of patient participation. Multilevel leadership is also fundamental to support a partnership culture throughout the organisation, including at the governance level. Conclusion: The results of this study illustrate opportunities and challenges related to patient involvement at an ACBPCP’s organizational level. They can guide other community-based primary care practices interested in involving patients in their management activities. Engagement patient Partenariat patient Gouvernance Soins de première ligne Étude de cas Canada Patient engagement Patient partnership Governance Primary care Organizational management Case study
32	Clients' Service Expectations and Practitioners' Treatment Recommendations in Veterinary Oncology Stoewen, Debbie Lynn 18 May 2012 (has links) Service provision in veterinary oncology in Ontario was examined using a mixed methods approach. First, an interview-based qualitative study explored the service expectations of oncology clients at a tertiary referral centre. Next, a survey-based quantitative study established an understanding of oncology service in primary care practice and investigated the treatment recommendations of practitioners for dogs diagnosed with cancer. The first study, which involved 30 individual and dyadic interviews, identified “uncertainty” (attributable to the unpredictable nature of cancer and its treatment) as an overarching psychological feature of clients’ experience. Consequently, “the communication of information” (both content and process) was the foremost service expectation. For clients, it enabled confidence in the service, the ability to make informed patient care decisions, and preparedness for the potential outcomes of those decisions; it also contributed to creating a humanistic environment, which enhanced client resiliency. Findings suggest that services can support client efforts to manage uncertainty through strategic design and delivery of service, and incorporate intentional communication strategies to support clients’ psychological fortitude in managing the cancer journey. The second study, a vignette-based survey of primary care practitioners across Ontario (N=1071) which investigated veterinarian decision-making in relation to oncology care, determined that 56% of practitioners recommended referral as their first choice of intervention, while 28% recommended palliative care, 13% in-clinic treatment, and 3% euthanasia. Recommendations were associated with patient, client and veterinarian factors. Specifically, referral and treatment were recommended for younger dogs, healthier dogs, and dogs with lymphoma versus osteosarcoma; for strongly bonded clients, and financially secure clients; and by veterinarians who graduated from a North American college, had experience with treating cancer, felt confident in the referral centre, and believed treatment was worthwhile, with variation in relation to practitioner gender and the type of medicine practiced. The human-animal bond appeared to be the primary factor associated with practitioners’ advocacy for quality of medical care for patients. Through a blend of qualitative and quantitative methodologies, this thesis contributes to the evidence upon which best practices may be built so as to enhance the quality of patient and client care in veterinary oncology. / Ontario Veterinary College Pet Trust Fund 049406 and 049854 client expectations treatment recommendations veterinary oncology practitioner service expectations qualitative research quantitative research thematic analysis vignette-based vignette-based inquiry full factorial experiment vignette-based research specialty oncology service primary care practice veterinary client logistic regression analysis uncertainty client uncertainty interview cancer cancer care canine cancer lymphoma osteosarcoma veterinary communication communication communication skills information content and process veterinary cancer care Ontario survey questionnaire referral euthanasia in-clinic treatment palliative care quality of care quality of medical care illness uncertainty service provision oncology epidemiology tertiary referral centre social epidemilogy veterinary epidemiology client well-being human-animal bond practitioner attitude best practice information preferences preparatory information cancer journey communication process continuity of care clinical decision making decision making practice variation adaptation
33	Organisation, practice and experiences of mouth hygiene in stroke unit care: a mixed methods study Horne, Maria, McCracken, G., Walls, A., Tyrrell, P.J., Smith, C.J. 03 1900 (has links) No / Aims and objectives To (1) investigate the organisation, provision and practice of oral care in typical UK stroke units; (2) explore stroke survivors', carers' and healthcare professionals' experiences and perceptions about the barriers and facilitators to receiving and undertaking oral care in stroke units. Cerebrovascular disease and oral health are major global health concerns. Little is known about the provision, challenges and practice of oral care in the stroke unit setting, and there are currently no evidence-based practice guidelines. Design Cross-sectional survey of 11 stroke units across Greater Manchester and descriptive qualitative study using focus groups and semi-structured interviews. Methods A self-report questionnaire was used to survey 11 stroke units in Greater Manchester. Data were then collected through two focus groups (n = 10) with healthcare professionals and five semi-structured interviews with stroke survivors and carers. Focus group and interview data were recorded, transcribed verbatim and analysed using framework approach. Results Eleven stroke units in Greater Manchester responded to the survey. Stroke survivors and carers identified a lack of oral care practice and enablement by healthcare professionals. Healthcare professionals identified a lack of formal training to conduct oral care for stroke patients, inconsistency in the delivery of oral care and no set protocols or use of formal oral assessment tools. Conclusion Oral care post-stroke could be improved by increasing healthcare professionals' awareness, understanding and knowledge of the potential health benefits of oral care post-stroke. Further research is required to develop and evaluate the provision of oral care in stroke care to inform evidence-based education and practice. (2) explore stroke survivors' Carer Cerebrovascular accident Mouth care Oral hygiene Pneumonia Quality of life Rehabilitation Service user

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