Thesis (MSocialWork)--Stellenbosch University, 2002. / ENGLISH ABSTRACT: In this study an explorative and a descriptive design has been implemented with the aim of obtaining knowledge, insight, and understanding of the psycho-social implications of a cleft lip and/or cleft palate for the individual child as well as the family. The motivation for this study was a result of the lack of knowledge on the psycho-social adjustments of an individual/child with a cleft lip and/or cleft palate and his/her family. The researcher became conscious of this lack during a full preliminary inquiry and this lack has been confirmed by the Department of Social Work as well as the Department of Maxillo-Facial-and Oral Surgery at Tygerberg Hospital. The aim of this study is therefore to create guidelines concerning social welfare interference in families after the birth of a baby with a cleft lip and/or cleft palate, in order to improve psycho-social functioning. The literature study included occurrence and incidence, embryological development, etiology of cleft lip and/or cleft palate as well as the psycho-social implications for the individual/child and the family. The medical aspects, namely the etiological and embryological development of cleft lip and/or cleft palate only serves as a background for the medical social worker that forms part of the interdisciplinary team of a cleft palate/lip clinic. This research focuses primarily on the psycho-social implications of a cleft lip and/or cleft palate on the individual/child as well on the family. The literature study also included the theoretical perspectives which determine the social worker's task and the system and strength perspective has been focused on. These perspectives have been implemented according to the development-aimed approach. The researcher decided to involve ten pre-school children with congenital deformity, between the ages of one month to six years as well as their mothers, who are from the service area of the Tygerberg Hospital in the research. The study was determined by a combination of qualitative as well as quantitative research methods, namely structured interviews as well as structured questionnaires. The results of this research confirmed the results of the literature study to a great extent, namely that individuals/children with a congenital deformity, as well as their families, are a highrisk group for psycho-social problems. These psycho-social problems indicate relationship problems in the family, cognitive problems for the individual/child as well as social adjustment problems for the individual/child and the family. Therefore the results gave an indication of what the content of intervention programmes for this target group should be. The recommendations focused on three areas, namely general recommendations concerning prenatal clinics where the cleft lip and/or cleft palate should be identified, general recommendations concerning guidelines for the social worker before intervention in the target group starts and recommendations with the aim of creating guidelines for social welfare intervention, in order to limit the psycho-social implications on the individual/child. The recommendations include further research in order to address society's ignorance concerning cleft lip and/or cleft palate. This research should focus on the development of social welfare programmes which, by primary prevention, aim at improved informing the society of this deformity. / AFRIKAANSE OPSOMMING: 'n Verkennende sowel as 'n beskrywende ontwerp is in hierdie studie geïmplementeer ten einde kennis, insig en begrip oor die psigo-sosiale implikasies van 'n gesplete lip en/of verhemelte vir individu/kind sowel as die gesin te verkry. Die motivering vir hierdie studie het na vore gekom weens die leemte rakende kennis oor die psigo-sosiale aanpassings van 'n individu/kind met 'n gesplete lip en/of verhemelte en sy/haar gesin. Die navorser het van hierdie leemte bewus geword tydens 'n volledige voorondersoek en hierdie leemte is deur die Departement Maatskaplike Werk sowel as die Departement Kaak- en Mondchirurgie te Tygerberg Hospitaal bevestig. Die doel van hierdie studie is dus om riglyne daar te stel ten opsigte van maatskaplike intervensie met gesinne ná die geboorte van 'n baba met 'n gesplete lip en/of verhemelte, ten einde psigo-sosiale funksionering te verbeter. Die literatuurstudie het die voorkoms en insidensie, embriologiese ontwikkeling, etiologie van gesplete lip en/of verhemelte sowel as die psigo-sosiale implikasies vir die individu/kind en die gesin ingesluit. Die mediese aspekte, naamlik die etiologiese en embriologiese ontwikkeling van gesplete lip en/of verhemelte dien slegs as agtergrond vir die geneeskundige maatskaplike werker wat deel vorm van die interdissiplinêre span van 'n gesplete verhemelte/lip kliniek. Hierdie navorsing fokus primêr op die psigo-sosiale implikasies van gesplete lip en/of verhemelte op die individu/kind sowel as op die gesin. Die literatuurstudie het ook die teoretiese perspektiewe wat die maatskaplike werker se taak rig, ingesluit en daar is op die sisteem- en sterkteperspektief gefokus. Hierdie perspektiewe is aan die hand van die ontwikkelingsgerigte benadering geïmplementeer. Daar is besluit om tien voorskoolse kinders met kongenitale deformiteit, dus tussen die ouderdomme van een maand tot ses jaar sowel as hul moeders, wat vanuit die Tygerberg Hospitaal se diensarea afkomstig is, by die ondersoek te betrek. Die ondersoek is deur 'n kombinasie van kwalitatiewe sowel as kwantitatiewe navorsingsmetodes, naamlik gestruktureerde onderhoude sowel as gestruktureerde vraelyste, gerig. Die resultate van hierdie ondersoek het tot 'n groot mate die bevindinge van die literatuurstudie bevestig naamlik dat individue/kinders met 'n kongenitale deformiteit, sowel as hul gesinne, 'n hoë risikogroep vir psigo-sosiale probleme is. Hierdie psigo-sosiale probleme dui byvoorbeeld op verhoudings-probleme in die gesin, kognitiewe probleme vir die individu/kind sowel as sosiale aanpassingsprobleme vir die individu/kind en die gesin aan. Die resultate het dus 'n aanduiding gegee van wat die inhoud van intervensieprogramme vir hierdie teikengroep behoort te wees. Die aanbevelings het op drie areas gefokus naamlik algemene aanbevelings ten opsigte van voorgeboorteklinieke waar gesplete lip en/of verhemelte geïdentifiseer moet word, algemene aanbevelings ten opsigte van riglyne vir die maatskaplike werker voordat intervensie met die teikengroep begin en algemene aanbevelings ten einde riglyne daar te stel vir maatskaplike intervensie, sodat die psigo-sosiale implikasies op die individu/kind beperk word. Die aanbevelings sluit in verdere navorsing ten einde die onkunde van die samelewing ten opsigte van gesplete lip en/of verhemelte aan te spreek. Hierdie navorsing moet fokus op die ontwikkeling van maatskaplikewerk-programme wat deur primêre voorkoming die samelewing beter aangaande die deformiteit inlig.

Thesis (MEdPsych)--Stellenbosch University, 2012. / ENGLISH ABSTRACT: Autism or Autism Spectrum Disorder (ASD) is a condition that presently affects approximately 1 out of every 110 children globally and indications are that the prevalence thereof is steadily on the rise. ASD is a complex neurological condition that impairs social interaction, communication and behaviour. Research on the wide-ranging effects of ASD and its unique characteristics in each child with ASD is widely available. Several studies allude to the fact that ASD has an impact on the family unit, but very few researchers have investigated the experience in the Western Cape Province, South Africa, from a sibling's perspective. The current situation leaves researchers, parents and siblings with very little data on the subject and inadequate support is available to address the specific needs of siblings. The aim of this study was to investigate siblings' views on living with a brother/sister with ASD. The central research question relates to the experiences of siblings of children with ASD. Sub-questions were focused on exploring their perceptions of ASD; relationships with brothers/sisters with ASD, peers and parents; sibling responsibilities and worries; and the extent of the pressure they experience as a result of the related added responsibilities. This is a qualitative study within an interpretive/constructivist research paradigm. The study was guided by an ecosystemic perspective as the theoretical framework. The methods of data collection comprised semi-structured interviews with siblings of children with ASD and open-ended questionnaires for parents. The qualitative research methods embraced the uniqueness of each sibling's experience and allowed participants the freedom to express this. Eight participants were purposefully selected for this study. The participants were between the ages of seven and seventeen years and each one had a brother who had been diagnosed with ASD. All the siblings lived with the brother with ASD and their parents in the Western Cape Province of South Africa. Siblings were from different genders, as well as diverse socio-economic and cultural groups. All the parents of the siblings were biological parents and in all cases were married with no visible signs of marital stress. Several principles were adhered to in this study, to ensure that the research was ethical. Several important themes emerged from the study. These include the siblings' need for information pertaining to ASD; worries and feelings of guilt experienced by siblings as a direct result of ASD; responsibilities that siblings feel obliged to take on; the nature of relationships with a brother with ASD, parents and peers; the need for support structures; and an indication of the type of support that siblings require. / AFRIKAANSE OPSOMMING: Outisme of Outistiese Spektrum Versteuring is 'n toestand wat tans na raming 1 uit 110 kinders wêreldwyd affekteer en dit wil voorkom asof die getalle stelselmatig toeneem. Outisme is 'n komplekse neurologiese versteuring wat 'n impak op sosiale interaksie, kommunikasie en gedrag het. Navorsing in die kompleksiteite van Outisme in kinders is redelik vrylik beskikbaar en navorsers dui aan dat die kondisie ook 'n impak op die gesin het. Tans is daar baie min navorsing wat op die ervarings of belewenis van sibbe van kinders met Outisme in die Wes-Kaap, Suid Afrika, fokus. Die gevolg hiervan is 'n daadwerklike tekort aan data tot die beskikking van navorsers, ouers en sibbe ten einde gepaste ondersteuning aan sibbe te bied. Die doel van hierdie studie was om die sibbe van kinders met Outisme se oogpunt en ervarings te ondersoek. Die sentrale navorsingsvraag het beoog om te ontdek wat sibbe se belewenis van hul lewe saam met 'n broer/suster met Outisme behels. Ondergeskikte vrae hou verband met die sib se persepsie van Outisme; verhoudings met 'n broer/suster met Outisme, eweknieë en ouers; die sib se verantwoordelikhede en meegaande kommer en druk; ondersteuning wat tans beskikbaar is; en die ondersteuning waaraan sibbe 'n behoefte toon. Die studie is kwalitatief van aard binne 'n interpretiwistiese/konstruktiwistiese navorsingsparadigma. Die onderliggende teoretiese raamwerk van hierdie studie is die ekosistemiese perspektief. Data is ingesamel deur middel van semi-gestruktureerde onderhoude met sibbe, asook oop-einde vraelyste aan ouers. Kwalitatiewe navorsingsmetodes het die uniekheid van elke sib se ervaring in ag geneem en sibbe toegelaat om hulle ervarings vrylik uit te druk. Agt deelnemers is doelgerig gekies vir die studie. Die deelnemers was tussen die ouderdomme van sewe en sewentien jaar oud en elk het 'n broer wat met Outisme gediagnoseer is. Die sibbe bly tans saam met hul ouers en 'n broer met Outisme in die Wes-Kaap, Suid Afrika. Die sibbe het vanuit verskillende geslagte, asook verskeie sosio-ekonomiese en kulturele agtergronde gekom. Die ouers van die sibbe was almal biologiese ouers, steeds getroud met geen merkbare spanning in die huwelik nie. Verskeie etiese beginsels is in die studie gehandhaaf ten einde etiese korrektheid te verseker. Verskeie belangrike temas het na vore gekom. Dit sluit die volgende in: 'n Behoefte by die sibbe aan inligting rakende Outisme; sibbe se ervaring van bekommernisse en skuldgevoelens as 'n direkte gevolg van Outisme; verantwoordelikhede wat deur sibbe aanvaar word; die aard van verhoudinge met die broer met Outisme, ouers en gelykes; die behoefte aan ondersteuning; en 'n aanduiding van die tipe ondersteuning wat deur sibbe verlang word.

The purpose of the current study was to examine the relationship between parent and child factors for mothers of children diagnosed with cystic fibrosis to predict mother's psychological distress. Mothers were surveyed to identify measurement models in areas of Child and Parental characteristics and a Full Causal Model of Maternal distress. Factors related to Child Characteristics include general parental stressors and cystic fibrosis specific parental stressors. Factors related to Parental Characteristics include the mother's sense of parental competence and self-esteem. Additional factors related to the Full Causal Model include social support, major and minor life events, and demographics. Results were analyzed using LISREL IV structural equation modeling. Measurement model analysis found a good fit for the Child Characteristics model (Chi Square = 6.85, df = 4, JD = .144, Goodness of Fit Indices = .972) and Parental Characteristics model (Chi Square = 5.89, df = 3, p = .117, Goodness of Fit Indices = .971), but not for the full causal model of maternal distress (Chi Square = 114.98, df = 66, E = .000, Goodness of Fit Indices = .853)

This research report investigates the experience of identity construction of a young Deaf man born into a hearing family in the township of Bluegumbosch, QwaQwa in the Free State Province of South Africa. Through the science of ethnography and an intensive study of a single family unit, focus is given to personal narratives in understanding the impact a Deaf young man has on his hearing family members operating within wider socio-political frameworks. This research report aims to bridge the gap in the paucity of family-oriented research in a Black township community, and with providing South African mainstream society with an understanding of Deaf children and the manner in which they contemporarily construct their identity, alongside the use and acknowledgement that SASL is a natural and complete language.

Progress, Regress examines the narrator's journey through the world of mental illness. Psychologist Lisa James has a new client, six-year-old Megan Cooper, who has been diagnosed with child-onset schizophrenia. Megan's young age and the severity of her illness rattle Lisa, and make her question not only her role as a psychologist and a mother, but also her own mental state. / by Michelle Maher. / Thesis (M.F.A.)--Florida Atlantic University, 2013. / Includes bibliography. / Mode of access: World Wide Web. / System requirements: Adobe Reader.

Based on the above findings and the preliminary theoretical framework, resource mobilizing and responsibility boundary is input to construct the support model of foster family. The characteristic of social support in substitute family is concluded. Recommendation about foster care policy and services is also provided. / Based on the review of literatures of foster care and social support, a preliminary theoretical framework is constructed. The important findings include: (l) The support relationship between foster families and foster adolescents is influenced by foster care service center and the natural family information of foster adolescents. Different foster families have different affection boundary and responsibility boundary. The boundary of support is constructed differently. Four types of support relationship is found: Totally Inclusive Supporting, Totally Exclusive Supporting, Semi Exclusive Supporting, and Passive Supporting. (2) In the support relationship between foster families and foster adolescents, foster families mobilize all kinds of family resources and outer resources to provide support to foster adolescents in living care, education, eliminating discrimination, development plan. (3) The support type of foster family is changing continuously. If the affection boundary and the responsibility boundary do not match with each other, the support relationship is not stable, or conflict with each other, and even collapse. / Since the 1990s, in the context of socialization of social welfare in China, the modern family foster care began to develop in China. This study is conducted in Shanghai, China. Qualitative research method is adopted. 16 foster adolescents and their foster families participate in this study. The aims of the study include exploring the support relationship between foster families and foster adolescents, researching the process of foster family's support to foster adolescents, finding the development of the support types, filling in the gaps of foster care study in China, expanding the study of social support in substitute family, advocating the foster care policy and services in China. / 王玥. / Advisers: Ngan-pun Ngai; Sek-yum Ngai. / Source: Dissertation Abstracts International, Volume: 73-06, Section: A, page: . / Thesis (Ph.D.)--Chinese University of Hong Kong, 2011. / Includes bibliographical references (p. 376-391). / Electronic reproduction. Hong Kong : Chinese University of Hong Kong, [2012] System requirements: Adobe Acrobat Reader. Available via World Wide Web. / Electronic reproduction. [Ann Arbor, MI] : ProQuest Information and Learning, [201-] System requirements: Adobe Acrobat Reader. Available via World Wide Web. / Abstracts in Chinese and English. / Wang Yue.

Submitted by Filipe dos Santos (fsantos@pucsp.br) on 2017-04-19T12:01:26Z No. of bitstreams: 1 Érika Campos Gomes.pdf: 620457 bytes, checksum: 3e9a7035999fd61c70de3db7af57ca5d (MD5) / Made available in DSpace on 2017-04-19T12:01:26Z (GMT). No. of bitstreams: 1 Érika Campos Gomes.pdf: 620457 bytes, checksum: 3e9a7035999fd61c70de3db7af57ca5d (MD5) Previous issue date: 2017-04-06 / Food allergies have increased considerably and it affects approximately 8% of children. To this day, there are no available cures and the only way of coping with the allergies is to avoid contact with the allergen and emergency treatment of symptoms in case of accidental exposure. The constant dread of anaphylaxis incidents and the vigilance needed to avoid the exposure to the allergen puts significant pressure on the family as a whole, affecting daily activities and consequently quality of life. The objective of this qualitative research is to investigate the main effects of allergy management, its effects on fraternal relationships and intervention techniques to conflict situations arising from the allergy in sibling relations. In this research, we studied mothers found in an online allergy support group hosted on Facebook who had a son/daughter diagnosed with a food allergy age 12 and below and with siblings ages 15 and below who may or may not have a food allergy. The participants answered a questionnaire to better define the family, to gather further information on the allergies and took part in an online discussion board. We identified as the most prominent effects of food allergy changes in daily routine, internal conflicts, conflicts within the nuclear family, conflicts within the extended family and the overall experiences regarding living in with risk. We observed support, complicity and feelings of jealousy and anger in sibling relations as consequences of the food allergy. Conflict mediation strategies used by mothers to deal with conflict in sibling relations involve privation and negotiation. Understanding the complexities and individuality of the particular effects of food allergies in family life, especially in sibling relations is important in order to develop coping techniques which take into account the everlasting care regarding the allergy and the needs of all family members, especially each sibling / A alergia alimentar tem aumentado consideravelmente e afeta aproximadamente 8% das crianças. Até o momento, não existe cura e as únicas formas de enfrentamento são evitar contato com o alérgeno e o tratamento emergencial de sintomas em caso de exposição acidental. O receio constante de episódios de anafilaxia e a vigilância necessária para evitar a exposição ao alergênico coloca uma pressão significativa sobre a família, impactando nas atividades diárias e qualidade de vida. Esta pesquisa qualitativa teve como objetivo investigar os principais efeitos familiares do gerenciamento da alergia alimentar, sua interferência na relação fraterna e as formas de intervenção em situações de conflito que podem surgir entre os irmãos em função da alergia. Participaram desta pesquisa mães originárias de um grupo de apoio do Facebook focado em alergia alimentar, que tinham um filho de até 12 anos com diagnóstico de alergia alimentar e com irmãos com até 15 anos, sendo estes, alérgicos ou não. As participantes responderam a um questionário de identificação das famílias e de detalhamento das alergias e participaram de um fórum de discussão on-line. Foi possível verificar como principais efeitos familiares do gerenciamento da alergia: as especificidades da rotina diária, as consequências das restrições alimentares que envolvem conflitos internos, com a família nuclear e extensa, e a experiência de conviver com risco. O apoio e a cumplicidade, assim como sentimentos de ciúmes e raiva, foram observados no relacionamento fraterno como decorrências da alergia. As estratégias de manejo de conflitos entre os irmãos relativos à alergia envolvem a privação e a negociação. Compreender a complexidade e individualidade do efeito da alergia alimentar na vida familiar, especialmente no relacionamento fraterno, mostra-se importante para elaborar formas de enfrentamento que levem em consideração os cuidados indispensáveis à alergia e as demandas de cada membro da família, em particular, de cada filho

Lee Lut-man, Raymond. / Thesis submitted in: November 2003. / Thesis (M.Phil.)--Chinese University of Hong Kong, 2004. / Includes bibliographical references (leaves 330-363). / Abstract and questionnaires in English and Chinese. / Table of Contents --- p.i / Acknowledgements --- p.ii / Abstract (in English) --- p.iii / Abstract (in Chinese) --- p.vi / Chapter Chapter 1 --- Introduction --- p.1 / Chapter Chapter 2 --- Understanding of Autism --- p.6 / Chapter Chapter 3 --- Literature Review --- p.30 / Chapter Chapter 4 --- "Research Questions, Hypotheses and Conceptual Model" --- p.79 / Chapter Chapter 5 --- Methodology --- p.95 / Chapter Chapter 6 --- Results --- p.114 / Chapter Chapter 7 --- Discussion and Implications --- p.189 / Chapter Chapter 8 --- Contributions of the Study --- p.244 / Chapter Chapter 9 --- Future Research Directions --- p.247 / Chapter Chapter 10 --- Limitations of the Study --- p.249 / Chapter Chapter 11 --- Summary and Conclusions --- p.252 / Chapter Appendix A: --- Major Findings and Recommendations of the Report on Overseas Study Visit on Autism --- p.264 / Chapter B: --- Questionnaires for the Study Sample (in Chinese) --- p.266 / Chapter C: --- Questionnaires for the Study Sample (in English) --- p.285 / Chapter D: --- Questionnaires for the Comparison Sample (in Chinese) --- p.302 / Chapter E: --- Questionnaires for the Comparison Sample (in English) --- p.316 / Chapter F: --- Invitation Letter to Parents of Adolescents with Autistic Siblings (in Chinese) --- p.329 / References --- p.330

Chan, Yuet Ning Janice. / Thesis (M.Phil.)--Chinese University of Hong Kong, 2011. / Includes bibliographical references (leaves 126-136). / Abstracts in English and Chinese; some appendixes also in Chinese. / Abstract --- p.i / Acknowledgements --- p.iv / Contents --- p.vi / "List of Figures, Tables, and Appendices" --- p.vii / INTRODUCTION --- p.1 / Chapter CHAPTER ONE --- The Nature of Autism --- p.5 / Chapter CHAPTER TWO --- Literature Review on Psychological Adjustment of Siblings of Autistic Probands and Associating Factors --- p.16 / Chapter CHAPTER THREE --- Purpose of the Study and Hypotheses --- p.59 / Chapter CHAPTER FOUR --- Methodology --- p.66 / Chapter CHAPTER FIVE --- Results --- p.75 / Chapter CHAPTER SIX --- Discussion --- p.100 / CONCLUSION --- p.124 / References --- p.126 / Appendices --- p.137

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