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The study protocol of: 'initiating end of life care in stroke: clinical decision-making around prognosis'Burton, C.R., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P.J., Horne, Maria, Ntambwe, L.I., Mitchell, H., Williams, S., Elghenzai, S. 27 November 2014 (has links)
Yes / The initiation of end of life care in an acute stroke context should be focused on those
patients and families with greatest need. This requires clinicians to synthesise information on
prognosis, patterns (trajectories) of dying and patient and family preferences. Within acute
stroke, prognostic models are available to identify risks of dying, but variability in dying
trajectories makes it difficult for clinicians to know when to commence palliative
interventions. This study aims to investigate clinicians’ use of different types of evidence in
decisions to initiate end of life care within trajectories typical of the acute stroke population.
Methods/design
This two-phase, mixed methods study comprises investigation of dying trajectories in acute
stroke (Phase 1), and the use of clinical scenarios to investigate clinical decision-making in
the initiation of palliative care (Phase 2). It will be conducted in four acute stroke services in
North Wales and North West England. Patient and public involvement is integral to this
research, with service users involved at each stage.
Discussion
This study will be the first to examine whether patterns of dying reported in other diagnostic
groups are transferable to acute stroke care. The strengths and limitations of the study will be
considered. This research will produce comprehensive understanding of the nature of clinical
decision-making around end of life care in an acute stroke context, which in turn will inform
the development of interventions to further build staff knowledge, skills and confidence in
this challenging aspect of acute stroke care.
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Death and Dying in Assisted LivingWhite, Amanda M. 01 December 2009 (has links)
This study examined death and dying in assisted living (AL) and the various factors that influence these processes. The study is set in a 60-bed assisted living facility outside of Atlanta, Georgia. Data collection methods included participant observation and in-depth interviews with 28 residents and 6 staff. Data were analyzed using the grounded theory approach and focused on the 18 residents who were dying and/or died during the study period. Findings show that AL residents experience a variety of dying trajectories that vary in duration and shape; for the majority of residents, hospice is an important element in their death and dying experiences. In general, death is not communicated or acknowledged formally within the facility. Responses to deaths depend largely on the nature of the relationship the deceased resident had with others. Findings have implications for how to handle death and dying in AL and to improve residents‟ experiences.
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