This is a sociological essay made by Johanna Friman. ”When it comes to sex” purpose is to understand the relation between individuals with intellectual disabilities sexuality (IID) and the  role adaption of staff members at group homes. The purpose is also to understand the meaning of attitudes in relation to role adaption and how staff members cooperation affect these roles. For the current essay I have used the dramaturgy perspective as a tool for the understanding of staff members role adoption. To understand the meaning of the sexuality amongst IID and as a completion to the dramaturgy perspective I have used the theory of sexual script as an implement. These theories has allowed me to understand role adaption in relation to sex and intimacy. The method that’s been used to gather information for the empirical material is mainly interviews. Observations has also been made mainly in purpose to get a deeper knowledge for the interpretation of the material from the interviews. The results of the study shows that staff members take on three different kinds of roles. The supportive role rises when the purpose is to support the sexuality of IID. The protective role rises when the purpose is to reduce sexual behaviour amongst IID to protect them. The last and third role is taken on by staff members when the purpose is to teach IID about acceptable sexual behavior.

Education is a key component of empowerment and has a significant impact on the economic and social development in any country. People who have intellectual disabilities are usually marginalized because they are considered limited in their abilities to contribute to the enhancement of the social and economic development in a country. The purpose of the research study was explore the perceptions of teachers and primary care-givers regarding strategies for empowering children with intellectual disabilities. The research design was qualitative in nature and a phenomenological methodology was adopted. Purposive sampling was used to recruit research participants from two primary schools for children with special needs in Katlehong on the East Rand. The sample size was twenty research participants; ten teachers and ten primary care-givers. The data gathered was analysed using Thematic Content Analysis. Results indicated that both teachers and primary care-givers are experiencing challenges empowering these children. Teachers require support, equipment and training to develop skills needed to address the educational needs. Primary care-givers need to be educated regarding how to support the educational programmes presented to their children, and encouraged to become personally involved in the educational lives of their children. The conclusion reached is that teachers’ efforts to empower children with intellectual disabilities are being obstructed due to many factors. Their voices need to be heard by the Department of Education on what strategies they perceive as being effective to empower children with intellectual disabilities. The primary care-givers need to gain a better understanding of concept ‘intellectual disability’ so that they can stimulate and support efforts made by the school to empower them.

Intellectual disability (ID) is categorised by a significant reduction in cognitive function and adaptive abilities that begin in childhood. ID is part of a heterogeneous group of neurodevelopmental conditions associated with impairment in developmental domains and a cause of particularly adverse socioeconomic impact worldwide. There have been many recent advances in identifying causative genetic mutations in previously unexplained ID cases. With these advances comes an increasing demand for understanding mechanisms underpinning these pathogenic pathways. In this PhD thesis, I have studied rare monogenic novel neurodevelopmental disorders associated with ID. The objective of the thesis was to model a subset of mutations associated with novel neurodevelopmental disorders in mice to demonstrate a causal link between mutation and phenotype and to further understand the mechanisms by which these mutations result in human neurodevelopmental disorders. In order to achieve this, I adopted a multi-phase approach. Firstly, I designed a phenotyping platform, by combining behavioural and cognitive tests with morphometric brain analysis and genome-wide transcriptional analysis. I then used this approach to study KPTN-related syndrome, a novel developmental disorder that to date has not been characterised in mice, successfully recapitulating the main phenotypes described in the patients. Moreover, I gained further insight into the underlying pathogenic mechanisms associated with the disorder, opening the possibility of a therapy that could treat some aspects of cognitive and morphological impairments identified in the patients with KPTN-related syndrome. Lastly, I determined whether such an approach could be scaled-up to study multiple novel neurodevelopmental disorders, each with a mutation associated with a haploinsufficient novel neurodevelopmental disorder. I identified specific phenotypes for each of the four mouse lines under investigation, providing a platform for comparison between several developmental disorders. These refinements contributed to a larger five-year project starting at the Sanger Institute, aimed at characterising a wider diversity of human neurodevelopmental disorders.

<p>The aim of this study was to increase the knowledge of possibilities and obstacles for disabled people to meet a partner. The ambition was to know more about wishes for and needs of professional or other support. The methods have been literature studies, survey research, and interviews. A simple questionnaire was sent to administrative staff and social welfare officers who gave the information that they experienced those persons with intellectual disability or Aspergers syndrome had asked for support to meet a partner. To get a perspective from inside six semi structured interviews were made with disabled people having experience of relationships, love affairs. Two men and two women with intellectual disability and two women with Aspergers syndrome take part in the interview study. Results of this study correspond with previous research. All the participants experienced possibilities and obstacles to meet a partner. The opportunities were rather universal. The difficulties they met were on one hand the feeling of belonging to a marginalized group in society and on the other hand problems with social interaction and interplay. The conclusion was that there is a desire as well as requirement for professional support. The support should be given by someone the person has confidence in. It could be a guardian, a social welfare officer or any other staff. People with disability have wishes about love and to meet a partner and it is very important to identify needs and wishes of their own.</p>

The aim of this study was to increase the knowledge of possibilities and obstacles for disabled people to meet a partner. The ambition was to know more about wishes for and needs of professional or other support. The methods have been literature studies, survey research, and interviews. A simple questionnaire was sent to administrative staff and social welfare officers who gave the information that they experienced those persons with intellectual disability or Aspergers syndrome had asked for support to meet a partner. To get a perspective from inside six semi structured interviews were made with disabled people having experience of relationships, love affairs. Two men and two women with intellectual disability and two women with Aspergers syndrome take part in the interview study. Results of this study correspond with previous research. All the participants experienced possibilities and obstacles to meet a partner. The opportunities were rather universal. The difficulties they met were on one hand the feeling of belonging to a marginalized group in society and on the other hand problems with social interaction and interplay. The conclusion was that there is a desire as well as requirement for professional support. The support should be given by someone the person has confidence in. It could be a guardian, a social welfare officer or any other staff. People with disability have wishes about love and to meet a partner and it is very important to identify needs and wishes of their own.

This thesis examines hospitalizations for ambulatory care sensitive conditions among persons with an intellectual disability living in Manitoba from 1999 to 2003. Hospitalizations for ambulatory care sensitive conditions are considered an indicator of access to, and the quality of, primary care. Intellectual disability can be defined as a disability originating before age 18 characterized by significant limitations both in intellectual functioning and in adaptive behaviour as expressed in conceptual, social, and practical adaptive skills. Between 1 and 3% of the population has an intellectual disability. This thesis addressed three objectives: 1) To identify ambulatory care sensitive conditions that are applicable to persons with an intellectual disability; 2) To compare hospitalization rates for ambulatory care sensitive conditions between persons with and without an intellectual disability in Manitoba; 3) To identify factors associated with hospitalizations for ambulatory care sensitive conditions among adults with an intellectual disability living in Manitoba. An online survey of primary care providers with experience working with persons with an intellectual disability found consensus on fifteen ambulatory care sensitive conditions applicable to persons with an intellectual disability. Large discrepancies in hospitalization rates for these conditions were found between persons with and without an intellectual disability. Controlling for age, year, sex, and region, persons with an intellectual disability were 6 times more likely to be hospitalized for an ambulatory care sensitive condition. Future research should investigate reasons for the large discrepancy in rates between persons with and without an intellectual disability. Among adults with an intellectual disability, living in a rural area (odds ratio 1.3; 95% CI=1.0, 1.8), living in an area with a high proportion of First Nations people (odds ratio 2.3; 95% CI=1.3, 4.1), and experiencing higher levels of comorbidity (odds ratio 25.2; 95% CI=11.9, 53.0) were all associated with a higher likelihood of being hospitalized for an ambulatory care sensitive condition. Dwelling in higher income areas had a protective effect (odds ratio 0.56; CI=0.37, 0.85). The results suggest that addressing the socioeconomic problems of poorer areas and specifically areas densely populated by First Nations people would likely have an impact on hospitalizations for ACS conditions for persons with an intellectual disability.

This thesis examines hospitalizations for ambulatory care sensitive conditions among persons with an intellectual disability living in Manitoba from 1999 to 2003. Hospitalizations for ambulatory care sensitive conditions are considered an indicator of access to, and the quality of, primary care. Intellectual disability can be defined as a disability originating before age 18 characterized by significant limitations both in intellectual functioning and in adaptive behaviour as expressed in conceptual, social, and practical adaptive skills. Between 1 and 3% of the population has an intellectual disability. This thesis addressed three objectives: 1) To identify ambulatory care sensitive conditions that are applicable to persons with an intellectual disability; 2) To compare hospitalization rates for ambulatory care sensitive conditions between persons with and without an intellectual disability in Manitoba; 3) To identify factors associated with hospitalizations for ambulatory care sensitive conditions among adults with an intellectual disability living in Manitoba. An online survey of primary care providers with experience working with persons with an intellectual disability found consensus on fifteen ambulatory care sensitive conditions applicable to persons with an intellectual disability. Large discrepancies in hospitalization rates for these conditions were found between persons with and without an intellectual disability. Controlling for age, year, sex, and region, persons with an intellectual disability were 6 times more likely to be hospitalized for an ambulatory care sensitive condition. Future research should investigate reasons for the large discrepancy in rates between persons with and without an intellectual disability. Among adults with an intellectual disability, living in a rural area (odds ratio 1.3; 95% CI=1.0, 1.8), living in an area with a high proportion of First Nations people (odds ratio 2.3; 95% CI=1.3, 4.1), and experiencing higher levels of comorbidity (odds ratio 25.2; 95% CI=11.9, 53.0) were all associated with a higher likelihood of being hospitalized for an ambulatory care sensitive condition. Dwelling in higher income areas had a protective effect (odds ratio 0.56; CI=0.37, 0.85). The results suggest that addressing the socioeconomic problems of poorer areas and specifically areas densely populated by First Nations people would likely have an impact on hospitalizations for ACS conditions for persons with an intellectual disability.

This study assessed marital quality, coparenting, and parenting stress over time for parents of children with intellectual disability by creating developmental trajectories from longitudinal data. Both mothers and fathers (N = 152 couples), with children ages 6-18 at the first wave, evaluated their relationship and parenting stress on up to 4 occasions over a 14-year period. The study provided separate models of change over time for mothers and fathers which showed that marital quality, coparenting, and parenting stress are dynamic relationship constructs that changed during the child’s development. Overall, marital quality was found to follow a curvilinear pattern, with declines when children were adolescents and increases as children entered young adulthood. Positive coparenting increased linearly over time for mothers and fathers, and negative coparenting declined linearly for mothers. With an emphasis on transition periods in the family life cycle, trajectories included indicators of the child’s development to allow for periods of discrete change in the trajectories based on the child’s entrance into adolescence and young adulthood. The child’s entrances into these developmental periods were associated with changes in levels of marital quality and coparenting for mothers only. Patterns for stress over time depended on the parent reporting, with mothers reporting decreases in parent and family problems over time and a quadratic trend for pessimism, with initial growth in reported pessimism followed by declines as the children exited adolescence. Fathers, however, did not report significant changes for parent and family problems and perceived increases in pessimism with time. The study also assessed how support in the marital and coparenting roles with time is associated with levels of parenting stress. Marital quality consistently predicted lower levels of parent and family problems for both parents, but findings for associations between marital quality and pessimism, and coparenting with both types of stress, varied depending on the parent reporting.

Siblings can serve as significant companions and caregivers for individuals with ID throughout the lifespan. Yet, the developmental course of sibling relationships for siblings of individuals with ID has not been well addressed in the current literature. Thus, the current study examined change over time in four dimensions of relationship quality (power, intimacy, conflict, and rivalry) as well as how the constellation variables of sex, birth order, and age differences affected the development of relationship quality. Sibling relationships were found to have a stable power structure, with the nondisabled sibling reporting higher levels of power in the relationship. Developmental trajectories indicated that these relationships grew in positive regard while levels of conflict decreased over time. Yet, behaviors characterizing intimate relationships did not show similar increases. Constellation variables were found to have effects on specific relationship dimensions, including conflict and intimate behaviors.

Research in the field of intellectual disability (ID) has long recognized that social skills and, in turn, social acceptance, are key areas of difficulty for children with ID. However, little work has been done to examine the factors that may contribute to the development of these difficulties. This study examined early childhood parent-child interactions, as well as early characteristics of both the parent and the child, in order to identify the factors that may be relevant to the later development of social competence and social integration. The study found that the social competence of school-aged children with ID affects the extent to which they are integrated within the social and academic domains. Furthermore, school-age social competence was affected by child and parent functioning in toddlerhood. The findings have important implications for intervention, as mentally healthy, well-supported parents may pose a protective factor for at-risk children. Future studies will need to further examine the role of parent-child interactions in child development. / Thesis (Ph.D, Psychology) -- Queen's University, 2009-09-24 13:50:22.687