ABSTRACT Study Aim and Objectives: The aim of the study was to explore what it means to have HIV/AIDS in Gaborone, Botswana. The study describes the demographic and socioeconomic circumstances of the participants. It also elicits and explores the experiences of people living with HIV/AIDS in Gaborone, Botswana. Methods Interviewees were purposely selected from a hospice, an NGO and a church that ministers to PLWHA. In depth interviews were conducted and recorded by audiotape. The interviews were conducted in Setswana and the interviewees responded to a statement, which essentially was, “Tell me about your life since you knew you had HIV/AIDS”. The audio recordings were transcribed into English. Care was taken to carry the Setswana way of speaking directly into English. A thematic analysis of the transcripts was made. A modified cut and paste method was used to gather the information into its various themes. Results There were 15 interviewees. Their average age was 35.3 years and on average, they had 1.6 children each. They were unemployed. The interviewees described a wide range of experiences, which were not necessarily experienced by all. Their narratives described the physical symptoms they suffered. They described stigma and discrimination that they went through. They gave accounts of psychological and emotional turmoil. Psychiatric problems were cited. They were very concerned that they could no longer support their children. They also worried about what would happen to their children when they died. As their disease progressed, they lost their jobs and were reduced to poverty. They could no longer support themselves and their dependents. They depended on relatives, friends, NGOs and government for relief. Relief from friends and relatives was often not available. They suffered hunger, as they could not satisfy their increased appetites after they started ARV drug therapy. Their relationships were disrupted when they got ill. Spouses and friends left and some relatives and friends stigmatised them. Interviewees were taken care of by relatives, friends, health professionals, NGOs, and social workers. In all these categories, there were good and bad care givers except the hospice and church, which were reported as good caregivers. Caregiver fatigue was described. Some interviewees found comfort in God. They believed that He knows what they are going through and will take care of them. The interviewees also found comfort and healing from the companionship of other PLWHA. The interviewees wanted to find jobs and work so that they could support themselves and their dependents. They wished government would train them and find them jobs. Conclusion The study confirmed the psycho-emotional problems and concern for children felt by PLWHA, that the literature revealed. It showed the physical problems they also suffer. The study revealed that interviewees lost jobs and became destitute. They could not satisfy their increased appetites after they started ARV drug therapy. Interviewees’ relationships were disrupted when they got ill. Spouses and friends left and some relatives did not treat them well. There were good and bad care givers in different categories. The African custom of botho/ubuntu seems to be succumbing to the onslaught of HIV/AIDS. The study showed that interviewees found comfort and support from family, friends, NGO’s and the church. They found God and other PLWHA especially valuable support systems. It was encouraging to notice that some interviewees felt that with time, stigmatisation of PLWHA is gradually subsiding.

Abstract Throughout history, many diseases have carried considerable stigma, including leprosy tuberculosis, cancer, mental illness and many STDs. Now HIV/AIDS is the topmost in the list of diseases that leads to devastating patient stigmatization. Despite international efforts to tackle HIV/AIDS, stigma and discrimination remain among the most poorly understood aspects of the epidemic. In the face of numerous intervention strategies, HIV/AIDS continues to spread and to pose a threat to the socio-economic transformation of South Africa. The broad objective of this study was to investigate how the stigmatisation of HIV-Positive women is made manifest and look at how successful the National Association of people living with HIV/AIDS (NAPWA) in South Africa has been in achieving their objectives and goals of changing the perceptions people have about HIV/AIDS and creating awareness about the debilitating effect stigmatisation has in the society, especially when it viciously targets HIV-positive women. A case study approach was used to examine the experiences of HIV/AIDS infected/affected women and NAPWA administrators. Methods used in the collection of data were self-administered questionnaires, participant observation and archival evidence in the form of documents. Through these methods, the study investigated ways in which the stigmatisation of HIV-positive women was made manifest, the role of NAPWA in fighting HIV/AIDS stigmatisation, how successful NAPWA has been in the fight against the stigmatisation of people infected and affected by HIV/AIDS in South Africa, challenges faced by NAPWA in the fight against HIV stigmatisation and discrimination, weaknesses of NAPWA and what impact all these have in the spread of HIV/AIDS. The research results show that HIV-positive women suffer stigmatisation and that; organisations of people living with HIV/AIDS (e.g. NAPWA-SA) play a major role in eradicating the stigma attached to HIV/AIDS. It also suggests that APWAs in effect help to reduce the spread of the disease and prolong the life span of those infected by it. All this not withstanding, the study also discovered that APWAs like NAPWA-SA need the support of government and stakeholders in South Africa to fully implement their strategies and programmes geared towards reducing stigma and the spread of HIV/AIDS.

Thesis (MPH)--University of Limpopo, 2011. / Background: Support groups are an informal resource that attempts to provide healing components to a variety of problems and challenges. An informal support outside of family, friends, or professionals often provides greater understanding, more similarity (from individuals experiencing similar life events), an opportunity for empathy and altruism, and a sense of identity for participants. Learning new ways to handle challenges, cope with changes, and maintain new behaviors are all important aspects of the support group experience. Purpose: The aim of the study was to determine what HIV positive people perceive as barriers to participate in HIV support groups. Methods: This was a quantitative study design using structured questionnaires on 248 participants who gave written consents to participate in the study. Results: Majority were female 63% participants, single (52.63%), unemployed (60%), between ages 31-40 and 52.02% attained secondary education. Participants who were currently on HIV treatment (prophylaxis and ARV) has attended HIV support groups before while participants who were not on any treatment have never attended HIV support groups. Participants who never attended HIV support group also never attended other support groups. The main reasons that participants gave for not attending in HIV support groups was that they are concerned about their privacy and HIV status being known by others. Barriers preventing attendance of HIV support group were support groups are hard to find, work schedules and lack of transport money.

Thesis advisor: Rosanna DeMarco / The purpose of this study was to explore the Zimbabwean women's experiences of being diagnosed and living with HIV/AIDS on a daily basis. This phenomenological study used the van Manen (1984, 1997) method of phenomenological inquiry and approach to phenomenological analysis to uncover the women's experiences and meaning of being diagnosed and living with HIV/AIDS. Seventeen HIV positive women participating in a development of antiretroviral therapies (DART) clinical trial in Harare, Zimbabwe, were recruited through snowball sampling and by word of mouth were interviewed. The study revealed that women experienced the dread of living with suspicion prior to a confirmed HIV diagnosis, pain and suffering when diagnosed, renewal and rebirth from the effects of antiretroviral medications and DART clinical trial while simultaneously experiencing the burden of living with HIV/AIDS. With time the women came to terms with their HIV positive statuses, and used their experiences to help others. The themes living with suspicion of HIV/AIDS and sensing the engulfing anguish of HIV/AIDS were found to be the core essence of being diagnosed with HIV/AIDS. The themes knowing the restorative power of antiretroviral medications, the heavy burden of HIV, and finding meaning in being HIV positive were found to be the core essence of living with HIV/AIDS on a daily basis. The findings inform health care providers on the trauma and suffering of being diagnosed and living with HIV/AIDS, and the benefits of antiretroviral medications. These study findings have significant implications for Zimbabwean nurses and other health care personnel committed to improving the lives of women, their families and their communities. / Thesis (PhD) — Boston College, 2010. / Submitted to: Boston College. Connell School of Nursing. / Discipline: Nursing.

The lifetime prevalence of clinical depression in patients living with human immunodeficiency virus/acquired immune deficiency syndrome (HIV/AIDS) is approximately 22% compared to 3% to 10% in the primary care population. The nursing practice problem at the project site concerned nurses' lack of knowledge and understanding of procedures to help ensure that all patients living with HIV/AIDS were properly screened for depression and referred for further evaluation and treatment. The purpose of this project was to implement a staff education module to address the use of the PHQ-9 screening tool to identify depression in people diagnosed with HIV/AIDS. The theoretical framework for this educational module was the theory of planned behavior. The practice-focused question explored the extent to which the implementation of an evidence-based practice education model in a primary care clinic treating patients living with HIV/AIDs would increase staff knowledge on the use of the PHQ-9 tool to screen for depression. A staff education project incorporating a pretest and posttest design was conducted to determine whether a significant change existed in the test scores of the participants between the pretest and the posttest. After completion, the posttest measures showed an improvement of 35%. The implications of this project for social change might include improvement in the knowledge, attitudes, and practices of the nurses in the treatment of depression in adults living with HIV/AIDS.

Thesis (M.A. (Clinical psychology) --University of Limpopo, 2009. / The study aimed at assessing and understanding the unmet needs and well-being among people living with HIV/AIDS. People living with HIVAIDS experience many challenges. Challenges may be characterized by medical, social and psychological challenges. Method: A cross sectional design was used. A total of (N = 200) young and adult age ranged from 20-71 years ( = 43.70, SD = 12.420) women (62%) and 75 men (37, 5%) living with HIV/AIDS who attend HIV/AIDS clinic/unit in Polokwane/Mankweng hospital complex was selected with purposive sample. Results: Four hypotheses were tested with one-way ANOVA. The findings indicated that social support (p < .001) and age (p < .04) plays a significant role in the psychological well-being of people living with HIV/AIDS. Medical challenges and gender revealed no significant results. Conclusion: It is concluded that PLWHA attend some form of support groups which will aid in alleviating the psychological distress associated with HIV/AIDS.

No description available.

Magister Artium (Child and Family Studies) - MA(CFS) / HIV patients face an array of social and psychological problems, such as depression, which can affect their quality of life. Moreover, HIV infection is also linked to psychological distress such as anxiety. In addition, avoidant emotion-focused strategies such as acceptance, wishful thinking and self-blame are associated with higher levels of psychological distress in persons with HIV. Current health services in the city of Cairo, Egypt, are not adapted to provide advice and psychological support to people living with HIV to aid in the development of problem-solving skills to cope with the stress of living with HIV. The purpose of this study was to examine the relationship between quality of life, psychological distress and the coping strategies of persons living with HIV/AIDS in Cairo, Egypt. A quantitative methodology with a cross-sectional correlational design was adopted in this study. Data collection entailed questionnaires that consisted of four sections: Demographics, Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q), Depression, Anxiety, Stress Scales (DASS) and the Cope Inventory. The sample consisted of 202 HIV/AIDS participants who access the National AIDS Program (NAP). The data were analysed using the Statistical Program for Social Science V23 (SPSS). The results are provided using descriptive and inferential statistics. The findings of the study show that in terms of the prevalence of psychological distress, the moderate scales were stress and depression, while the severe scale was anxiety. The most prevalent of coping styles was emotion-focused coping, specifically in terms of acceptance and religion. In terms of the prevalence of quality of life, the highest scores were for family and social relationships, while the lowest scores were for sexual drive and leisure time activities. The findings also show that psychological distress and certain coping styles such as substance use negatively predicted quality of life of patients with HIV/AIDS. Positive predictors included coping styles such as venting, positive reframing, humour, acceptance and religion.

Masters of Public Health - see Magister Public Health / With a prevalence of 14.3% among the 15-49 years age group, HIV/AIDS still constitutes a significant challenge in Zambia. In order to respond to the impact of HIV/AIDS within the workplace, government ministries have developed HIV-focused workplace policies and programmes that provide HIV/AIDS services. However, despite their availability, the number of employees accessing the services, especially those targetting HIV positive workers remains low. The fear (either perceived or real) of disclosing an HIV positive status is one likely reason for the low uptake of services. HIV-positive status disclosure is an important public health goal as it can create opportunities for an individual to access information and social and medical support, and this will affect career and workload related decisions. This exploratory, qualitative study aims to identify and describe the HIV-disclosure experiences of 12 openly HIV-positive Zambian public sector workers living in Lusaka and working in four Zambian Ministries. Both male and female public sector workers were interviewed. The participants’ experiences of disclosing their HIV positive status in the workplace were explored in depth in this study. With the aim of providing those responsible for overseeing and managing the Zambian public sector HIV workplace initiatives with some practical recommendations regarding the disclosure support needed by HIV-positive public sector workers. The study found that whilst participants had an initial fear of disclosing their HIVpositive status in the workplace, their HIV disclosure actually proved to be very beneficial. Not only did it allow their health-related needs (such as accessing medication and visiting a doctor) to be met, but their disclosure also encouraged others to also disclose their status. The recommendations are are aimed at creating a supportive working environment for people living with HIV within the Zambian public service, and offering suggestions to their managers on how best to support the process of disclosure amongst their staff.

PhD (Sociology) / Department of Sociology / The purpose of the study was to investigate the influence of traditional healing practices on anti-retroviral treatment adherence in Vhembe District. This qualitative study used an explorative design to envisage the aim. A cross-sectional snowball sample was used to draw a sample of 9 participants from the 4 municipalities of Vhembe District. The data collection methods were; in-depth interviews, focus group discussions and key informants’ interviews. The 3 data collection techniques ensured triangulation for more complete and well-validated outcomes of the study. The researcher used the Van Manen method to analyse data. Contrary to popular belief that THPs promote non-adherence among people living with HIV/AIDS (PLWHA), the study found out that the majority of Traditional Healing Practitioners (THPs) encourage and positively influence PLWHA to adhere to anti-retroviral treatment. Apart from a minority of participants who claimed to cure HIV/AIDS, the majority acknowledged and admitted that traditional healing practices do not cure HIV/AIDS but it only heals opportunistic infections. As a result, the majority of THPs influences PLWHA to adhere to anti-retroviral therapy (ART). However, the positive influence of THPs is challenged by individual and social-cultural factors that are beyond THPs’ control which influence treatment adherence such as; traditional and cultural beliefs, side effects of ARVs, nurses’ attitude, inconveniences, lack of transport, personal choices, lack of trust in ARVs and fear of loss of the Disability Grant. It is on this backdrop that study findings prompted devising of a model and a 5 phase support program for intervention. / NRF