The purpose of this dissertation was to explore the experience of long term grief following a perinatal loss. In particular, the processes of meaning reconstruction and self-changes stemming from perinatal loss were explored by listening to parents in-depth narratives of their experiences of loss and grief. A narrative methodology was used, based on a constructivist epistemology that suggests that people are storytellers by nature and we attempt to organize and make sense of our life experiences by constructing coherent narratives. Participants were 4 couples and 8 individuals whose losses occurred 1 to 35 years before the interview. Interviews followed a reflexive-dyadic interview model. Analysis of the narratives was approached in two ways: First, a voice-centered relational approach was used for initial interpretation and identification of prevalent voices in the stories. Second, five of the stories were written as evocative narratives, which served as a way of incorporating the authors personal experience of perinatal loss, as well as to evoke an empathic understanding of the experience of perinatal loss. The interpretation and discussion of the stories focused on meaning-making that was evident on both an individual level as well as across the larger group of participants. In particular, meaning-making influences and strategies were identified, including influences of the medical establishment and social networks which either served to disenfranchise parents losses or to comfort and ease parents in their grief. The impact of meaning-making on long-term grief was considered, as well as parents reports of positive and negative self-changes that emerged from their struggle with grief. The unique contribution of this project lies in its elaboration of the meaning reconstruction process in the context of perinatal loss; its demonstration of both positive and negative self-changes in a group of perinatally-bereaved parents; its exploration of grief several years to decades following a perinatal loss; its inclusion of the researchers self as both an additional source of data and as a validity check on the presentation and interpretation of participants stories; and the use of evocative narratives to evoke an empathic understanding of a historically disenfranchised form of loss.

The purpose of this dissertation was to explore the experience of long term grief following a perinatal loss. In particular, the processes of meaning reconstruction and self-changes stemming from perinatal loss were explored by listening to parents in-depth narratives of their experiences of loss and grief. A narrative methodology was used, based on a constructivist epistemology that suggests that people are storytellers by nature and we attempt to organize and make sense of our life experiences by constructing coherent narratives. Participants were 4 couples and 8 individuals whose losses occurred 1 to 35 years before the interview. Interviews followed a reflexive-dyadic interview model. Analysis of the narratives was approached in two ways: First, a voice-centered relational approach was used for initial interpretation and identification of prevalent voices in the stories. Second, five of the stories were written as evocative narratives, which served as a way of incorporating the authors personal experience of perinatal loss, as well as to evoke an empathic understanding of the experience of perinatal loss. The interpretation and discussion of the stories focused on meaning-making that was evident on both an individual level as well as across the larger group of participants. In particular, meaning-making influences and strategies were identified, including influences of the medical establishment and social networks which either served to disenfranchise parents losses or to comfort and ease parents in their grief. The impact of meaning-making on long-term grief was considered, as well as parents reports of positive and negative self-changes that emerged from their struggle with grief. The unique contribution of this project lies in its elaboration of the meaning reconstruction process in the context of perinatal loss; its demonstration of both positive and negative self-changes in a group of perinatally-bereaved parents; its exploration of grief several years to decades following a perinatal loss; its inclusion of the researchers self as both an additional source of data and as a validity check on the presentation and interpretation of participants stories; and the use of evocative narratives to evoke an empathic understanding of a historically disenfranchised form of loss.

This qualitative research project is a narrative inquiry into the loss experiences of four bereaved individuals who have lost an immediate family member; one of them is myself. In particular, the meanings assigned to the losses and how those meanings impacted the grieving process were explored by listening to in-depth narratives of the participants’ experiences of loss and grief. A narrative methodology was used, based on a constructivist epistemology that describes a human tendency to put events in narrative forms in order to give them a sense of continuity and meaning. Four narratives, along with their respective analysis, were presented in separate chapters, with my own narrative presented as the last narrative chapter. Of the four of us, two are males: one from Jewish-American and the other from German-Romanian descent, and two are females: both from Persian descent. The four participants ranged from 39 to 71 years of age at the time of the interviews, with the losses occurring 3 to 25 years before the interviews. Findings of this research reveal the unique and complex grieving processes of the participants. A variety of meanings were assigned to the losses with each meaning having its own possible impact on the course of bereavement. Each participant expressed her/his own personal assumptions about the nature of life, love, suffering, human vulnerabilities, and death stemming from their life experiences and culture. We all expressed in our own unique way that the loss of a special person, a loving bond, and a significant relationship will always remain painful, but their memories, legacies, and love will continue beyond their deaths, which can help us in finding meaningful, productive, and hopeful paths. Hopefully this research project will provide some validation and inspiration for other grieving individuals and contribute to the current understanding of bereavement and grief.

This qualitative research project is a narrative inquiry into the loss experiences of four bereaved individuals who have lost an immediate family member; one of them is myself. In particular, the meanings assigned to the losses and how those meanings impacted the grieving process were explored by listening to in-depth narratives of the participants’ experiences of loss and grief. A narrative methodology was used, based on a constructivist epistemology that describes a human tendency to put events in narrative forms in order to give them a sense of continuity and meaning. Four narratives, along with their respective analysis, were presented in separate chapters, with my own narrative presented as the last narrative chapter. Of the four of us, two are males: one from Jewish-American and the other from German-Romanian descent, and two are females: both from Persian descent. The four participants ranged from 39 to 71 years of age at the time of the interviews, with the losses occurring 3 to 25 years before the interviews. Findings of this research reveal the unique and complex grieving processes of the participants. A variety of meanings were assigned to the losses with each meaning having its own possible impact on the course of bereavement. Each participant expressed her/his own personal assumptions about the nature of life, love, suffering, human vulnerabilities, and death stemming from their life experiences and culture. We all expressed in our own unique way that the loss of a special person, a loving bond, and a significant relationship will always remain painful, but their memories, legacies, and love will continue beyond their deaths, which can help us in finding meaningful, productive, and hopeful paths. Hopefully this research project will provide some validation and inspiration for other grieving individuals and contribute to the current understanding of bereavement and grief.

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Title from second page of PDF document. Includes bibliographical references (p. 114-120).

The purpose of the present study was to develop the Descriptive Death Scale (DDS), a brief, descriptive and multidimensional measure that assesses individual perceptions of single death experiences. The DDS has the potential to expand how death experiences are understood in the literature because it can serve as a tool for grievers to quantitatively contextualize their single death experiences instead of indicating only the mode of death. From a constructivist perspective, the adjectives included in the DDS are parcels of meaning that symbolically contextualize grievers’ subjective understanding. Drawing from qualitative research, I compiled a broad list of 65 adjectives that grievers and terminally ill patients have used to describe past and impending deaths. My online recruitment process resulted in a sample of respondents (<i>N</i> = 572) who identified primarily as White/European American, cisgender female and heterosexual (83%, 85%, and 83%, respectively). Their ages ranged from 18 to 80 (<i>M = </i>43.13, <i>SD =</i> 13.40). The results of the EFA indicated a 5-factor structure; however, the CFA analysis/ESEM indicated that a 4-factor model better fit the data. The DDS subscales (i.e., Incomprehensible, Warm, Withering, Ostracized) include a total of 27-items and scores on each subscale displayed good internal consistency and convergent and discriminant validity. The results from the regression analysis indicated that the Incomprehensible, Warm and Withering death subscales contributed significantly and positively to grief distress, beyond closeness to the deceased and age of the deceased. The DDS assesses the nuanced and unique profiles of grievers’ perceptions of single deaths. It can serve as an important and novel tool for researchers and clinicians to capture grievers multidimensional and subjective understanding of their death experiences. With single word items, it is brief, easy to use, and versatile across domains.

Abstract The purpose of this phenomenological study was to explore perceptions of loss and grief experiences within religious rites and rituals vis-à-vis the context of counseling. Literature indicated the need for a better understanding of grief and loss experiences from bereaved individuals’ perspectives and the context within which loss and grief experiences occur (Dillenburger & Keenan, 2005; Stroebe, Hansson, Schut, & Stroebe, 2008). Participants for this study included 10 purposefully selected Catholic members from two Catholic Church parishes in Nigeria, Africa. All participants had experienced loss and grief, had participated in Catholic burial and funeral rites and rituals, and were 21 years or older. The main research question was: How do bereaved individuals perceive their grief experiences within the context of Catholic burial and funeral rites and rituals? Data collected to answer the research questions consisted of observations, semi-structured interviews, and documents. A cross-analysis approach was used that identified 63 themes, which were collapsed into 11 major themes. depicted in three areas; bereaved participants’ grief experiences, bereaved participants’ experiences of rites and rituals, and implications for counseling. The findings of this study indicated that loss of a relationship was a dominant preoccupation in grief and grieving process. Additional themes reflected by bereaved individuals’ grief and grieving experiences were; time and nature of death, religious rites and rituals, family and community support, family frictions, financial stressors, positive memories, belief system, finding meaning, ongoing traumatization, and counseling. Overall, the conclusion from this study was that three areas conceptualize loss and grief experiences: bereaved participants’ grief experiences, bereaved participants’ experiences of rites and rituals, and implications for counseling.