This qualitative multi case research asks how the needs of caregivers of primary malignant brain tumour (PMBT) patients are met through structured neuro-oncology programs in Canadian centres. Utilizing telephone interviews with eleven social workers and one psychologist the study analyses their perspectives on the scope and nature of services to brain tumour patients and their caregivers. PMBT is a rare and palliative disease often with neurocognitive and neurobehavioral effects posing special challenges for caregivers. Health care system reliance on family caregivers has resulted in significant implications for their emotional and physical risk. Findings show exclusive patient focused health care in ambulatory programs with fragmented care resulting in marginalization and invisibility of caregivers. This approach is inconsistent with current literature promoting collaborative family centered care, recommended for continuity of care throughout the illness trajectory. Recommendations focus on systemic caregiver service improvements.

This qualitative multi case research asks how the needs of caregivers of primary malignant brain tumour (PMBT) patients are met through structured neuro-oncology programs in Canadian centres. Utilizing telephone interviews with eleven social workers and one psychologist the study analyses their perspectives on the scope and nature of services to brain tumour patients and their caregivers. PMBT is a rare and palliative disease often with neurocognitive and neurobehavioral effects posing special challenges for caregivers. Health care system reliance on family caregivers has resulted in significant implications for their emotional and physical risk. Findings show exclusive patient focused health care in ambulatory programs with fragmented care resulting in marginalization and invisibility of caregivers. This approach is inconsistent with current literature promoting collaborative family centered care, recommended for continuity of care throughout the illness trajectory. Recommendations focus on systemic caregiver service improvements.

El proyecto que se está desarrollando en un Centro Oncológico de categoría I-3 según el MINSA, que cumpla con la arquitectura sensorial para darle mayor confort a los usuarios durante tu tratamiento. El proyecto encuentra en el distrito de Los Olivos, Lima. Lo que motiva a esta investigación es la falta infraestructura especializada para el tratamiento del cáncer. El propósito de proyecto es realizar un centro ambulatorio que cubra esta necesidad ya que actualmente es un problema de salud pública. El centro de salud propuesto tiene como objetivo ser un apoyo en los tratamientos que da el INEN. El INEN, la atención a los pacientes de aproximadamente de 17 min, por lo que hay déficit de atención, puesto que la atención adecuada para los pacientes con cáncer en un instituto debe de ser de 20 a 30 minutos. El centro se ubicará en el distrito de Los Olivos, ya que tiene como objetivo descentralizar los servicios oncológicos. Actualmente se están tiene estrategias para mejorar estos servicios, sin embargo, en estas no cuentan con la mención de un centro especializado que descentralice el INEN. El centro oncológico estará diseñado tomando en cuenta referencias a nivel internacional, un estudio de los procedimientos dados en el INEN y la normativa peruana brindada por el MINSA. / This thesis project develops and Oncology Center of category I-3, according to MINSA which complies with the sensorial architecture in order to give comfort to the patients and users. This project will be located in Los Olivos district, Lima. What motivates me about this research is the lack of specialized infrastructure for cancer treatment. The purpose of this project is to design an outpatient center that meets this current public health problem. The health center has the intent to support the treatments that INEN provide. In this institution (INEN), the attention last at least 17 minutes, this means there is a deficit, because the optimal time should be around 20 to 30 minutes. This new center would be located in Los Olivos district towards to decentralize the oncology services. This Oncology Center will be design taking notice of the international references, the study of procedures done by INEN and the Peruvian regulations set by MINSA. / Trabajo de investigación