abstract: A long tradition of adoption of innovations research in the information systems context suggests that innovative information systems are typically adopted by the largest companies, with the most slack resources and the most management support within competitive markets. Additionally, five behavioral characteristics (relative advantage, compatibility, observability, trialability, and complexity) are typically associated with demand-side adoption. Recent market trends suggest, though, that additional influences and contingencies may also be having a significant impact on adoption of innovative information systems--on both the supply and demand-sides. The primary objective of this dissertation is to extend our theoretical knowledge into a context where consumer influence is a key consideration. Specifically, this dissertation focuses on the Personal Health Record (PHR) and patient portal market due to its unique position as a mediator between supply (ambulatory care clinic) and demand-side (patient and health consumer) interests. Four studies are presented in this dissertation and include: 1) an econometric examination of the contingencies associated with supply-side (ambulatory care clinic) adoption of patient portals, 2) a behavioral assessment of patient PHR adoption intentions, 3) an integrated latent variable and discrete choice evaluation of consumer business model preferences for digital services (PHRs), and 4) an experimental evaluation of how digital service (patient portal) feature preferences are impacted by assimilation and contrast effects. The primary contribution of this dissertation is that adoption (and adoption intentions) of consumer information systems are significantly impacted by: 1) supply-side adoption contingencies (even when controlling for dominant-paradigm adoption of innovation characteristics), and 2) demand-side consumer preferences for business models and features in the context of assimilation-contrast (even when controlling for individual differences). Overall, this dissertation contributes a new understanding of how contingent factors, consumer perceived value, and assimilation/contrast of features are impacting adoption of consumer information systems / Dissertation/Thesis / Ph.D. Information Management 2012

This study is the first report of Saudi patients in the literature on electronic personal health records (ePHRs). It investigates patients’ attitudes and expectations regarding ePHRs in Saudi Arabia. It also gives insights about addressing the gap between the interest and the utilization of ePHRs by presenting information about patients’ preferences for ePHR features and activities. The findings show higher interest rates in ePHR use compared to other studies with similar sample frame in developed countries. They also indicate high levels of perceived usefulness of ePHRs on patients’ health and healthcare. More research is needed to explore the ePHR privacy concerns of patients and the key factors in improving the use of ePHRs among specific populations such as the elderly and those patients with chronic disease. / Thesis / Master of Science (MSc) / This study is the first report of Saudi patients in the literature on electronic personal health records (ePHRs). It investigates patients’ attitudes and expectations regarding ePHRs in Saudi Arabia. It also gives insights about addressing the gap between the interest and the utilization of ePHRs by presenting information about patients’ preferences for ePHR features and activities. More research is needed to explore the ePHR privacy concerns of patients and the key factors in improving the use of ePHRs among specific populations.

Patient portals facilitate patients' access to their electronic health care records, and may also include features such as patient-clinician messaging, prescription renewal, and educational resources. There is evidence that portals support patient empowerment, therapeutic communication, adherence to treatment, and satisfaction with care. Nonetheless, patient portals are underutilized in mental health settings, with policies in some health care organizations restricting all access to mental health records through patient portals. A qualitative evidence synthesis was conducted to explore the perspectives of clinicians and patients on portal use in the mental health care context represented in the current literature. A systematic search of relevant databases, followed by citation and article screening, yielded 24 qualitative and mixed-methods studies for inclusion, and a thematic synthesis was performed. The synthesis yielded five themes: impacts to the efficiency of mental health care delivery; effects on therapeutic relationships between clinicians and patients; changes to the patient-clinician power balance; the suitability of patient portals for patients with mental illness; and the complexities of information management in mental health care. Ultimately, both clinicians and patients acknowledged numerous potential benefits of patient portals, but there were also concerns about their use specific to the mental health context. These concerns were voiced primarily by clinicians, and originated in part from concern for patient safety, but also from stigmatizing attitudes and the perceived threats of portals to clinicians' workloads and control over the record. This systematic review of qualitative studies highlights opportunities for organizations to support their clinicians through the implementation of recovery-oriented initiatives like patient portals, and to support patients with mental illness by ending discriminatory policies limiting access to their records.

There is an international increase of patients’ access to medical information through digital patient portals. This has provided access to test results from different laboratories, including clinical pathology. Patients have reported several benefits with access to test results but there are concerns from clinicians over their ability to interpret and understand pathology reports independently. Research that has explored the perspectives of laboratory personnel in clinical pathology in this accessis lacking, who can provide further insights and potential risks and effects for the patients. The aim of this study is to examine the perspectives of pathologists and biomedical scientists in clinical pathology in relation to patients’ digital access to pathology reports through patient portals. Using a qualitative design twelve interviews were conducted with six pathologists and six biomedical scientists. The results was coded and analyzed using the qualitive computer analysis program Dedoose and a thematic analysis. The results showed a generally more negative attitude from pathologists and biomedical scientists towards patients’ access to pathology reports through patient portals. They believed patients needed further resources and support to interpret the pathology reports. Future research and implementation of this digital access should consider including laboratory personnel in clinical pathology as they can provide valuable insights for the resources needed for the interpretation of pathology reports.