<p>Högskolestudenters upplevda livskvalitet har varit ett eftersatt forskningsområde. Syftet med denna studie var att undersöka hur studenter på grund- respektive forskarutbildningen vid Stockholms universitet upplevde sin livskvalitet och jämföra resultaten med tidigare insamlade data från en normalgrupp. För att mäta den upplevda livskvaliteten användes formuläret Quality of life inventory, QOLI. Totalt inkom 1300 enkäter från studenter på grundutbildningen och 115 enkäter från studenter på forskarutbildningen. Resultaten visar att både studenter på grund- respektive forskarutbildningen skattar sin upplevda livskvalitet som signifikant lägre än normalgruppen. Vidare framkom att kvinnor skattar sin livskvalitet som högre än män och att gifta och samboende skattar sin livskvalitet som högre än ogifta. Resultaten överrensstämmer med den forskning som tidigare genomförts för högskolestudenters subjektivt upplevda livskvalitet.</p>

Högskolestudenters upplevda livskvalitet har varit ett eftersatt forskningsområde. Syftet med denna studie var att undersöka hur studenter på grund- respektive forskarutbildningen vid Stockholms universitet upplevde sin livskvalitet och jämföra resultaten med tidigare insamlade data från en normalgrupp. För att mäta den upplevda livskvaliteten användes formuläret Quality of life inventory, QOLI. Totalt inkom 1300 enkäter från studenter på grundutbildningen och 115 enkäter från studenter på forskarutbildningen. Resultaten visar att både studenter på grund- respektive forskarutbildningen skattar sin upplevda livskvalitet som signifikant lägre än normalgruppen. Vidare framkom att kvinnor skattar sin livskvalitet som högre än män och att gifta och samboende skattar sin livskvalitet som högre än ogifta. Resultaten överrensstämmer med den forskning som tidigare genomförts för högskolestudenters subjektivt upplevda livskvalitet.

Indiana University-Purdue University Indianapolis (IUPUI) / Introduction: Increasing obesity in children leads to an increase in the risk of Type 2 diabetes (T2D). Therefore, it is important to promote healthier lifestyles in youths and encourage their caregivers(s) to provide a healthy lifestyle environment. The PowerHouse program focuses on improving food choices, increasing physical activity, and adopting behavior changes for the reduction of obesity and the prevention of T2D. Method: The aim of this study was to assess the effects of implementing the PowerHouse program on both clinical and quality of life outcomes in high-risk, low-income youth and their caregivers. Primary outcomes were BMI standard deviation and BMI percentile in youths. Secondary outcomes included physical activity of youths and quality of life for both youths and their caregivers. Attendance rates were also calculated. Linear effect mixed models were used to test for time effects for all outcomes. Results: Clinical outcomes did not improve over time, except for youth HbA1c (p-value = 0.0447). Some improvements in youth quality-of-life outcomes were noted: specifically, the Sports Index score of the Fels Physical Activity Questionnaire for Children (adjusted p-value = 0.0213) and the Physical Summary (p-value = 0.0407), Psychosocial Summary (p-value = 0.0167), and Total score (p-value = 0.0094) for the youth-reported Pediatric Quality of Life Inventory. Quality of life did not change over time for caregivers. For attendance, there was an improvement after the intervention was modified to improve access to fresh produce (p-value = 0.0002). Conclusion: HbA1c and quality of life improved over time for youth; however, there was not an improvement in caregiver outcomes over time. The data suggest that more time may be needed to see the full effects of the intervention, and/or that a booster intervention may be needed.

By examining barriers to care, health professionals can better understand what disparities exist between groups and who may be at greater risk for poor primary care. Researchers have highlighted the need for additional research that focuses on the extent of unmet needs for U.S. children with sickle cell disease (SCD). The purpose of this quantitative study was to compare the differences between parents who are in a SCD support group and those who are not. The theoretical framework of this study is based on the chronic care model and social support theory. A total of 128 parents of children with SCD completed the study survey. The sampling occurred by e-mail, phone, and face-to-face conversations. Selection criteria for potential participants in both groups were based on their children being diagnosed with SCD. Seventy-four participants (57.8%) were members of a SCD support group, and 54 participants (42.4%) were not members of a SCD support group. In this study, the independent variables were parents attending or not a SCD support group. The t test and MANCOVA was used to assessed the association between perceptions of barriers to care and support group status. However, statistical analysis showed no significant results. The null hypothesis was not rejected. Therefore, the positive social change implication is to further explore potential factors that may shape perceptions of barriers to care for those with SCD so that perceived barriers to care can be overcome.

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The scope of this dissertation focuses on issues related to the quality of life of children suffering with spinal muscular atrophy (SMA) and their carers and the associated social impact on families affected by this progressive and incurable disease. It describes ethical aspects of help to families with SMA and serious decisions in relation to the need to connect to artificial ventilation. Spinal Muscular Atrophy - SMA is a motoneuron disease i.e. disease of neurons, which are responsible for conscious movements of muscles e.g. running, head movement and swallowing. The prevalence is approximately 1 newborn for 6000 live births and approximately 1 person of 40 people is the carrier of the disease. SMA affects all the bone muscles i.e. proximal muscles are often affected the most. Everyone affected is in some point in life, depending on stage and type, reliant on mechanical or electrical wheelchair, in many cases also on artificial ventilation and permanent 24hr care. Families affected by this illness accept the fact of this progressive and incurable illness differently, this dissertation reflects upon such different perceptions on quality of life of the affected children, the carers. It forms a contribution in building a foundation for organising multi-discipline teams of experts with sole purpose of therapeutical interventions, to support the child and his/hers family. The World Health Organization (WHO) defines palliative care as "improving quality of life of patients facing life-threatening illnesses, and their families, through the prevention and relief of suffering by early identification and treatment of pain and other problems, whether physical, psychological, social or spiritual." Palliative care prepares families for these situations and should be provided along with whatever treatment options families choose. This dissertation is a comprehensive information base to support children affected by SMA and their families in early care in Czech Republic and in the process of inclusive educational integration into mainstream society.