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Call number: LD2668 .T4 1965 B71 / Master of Science

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Submitted by Filipe dos Santos (fsantos@pucsp.br) on 2017-04-19T12:01:26Z No. of bitstreams: 1 Érika Campos Gomes.pdf: 620457 bytes, checksum: 3e9a7035999fd61c70de3db7af57ca5d (MD5) / Made available in DSpace on 2017-04-19T12:01:26Z (GMT). No. of bitstreams: 1 Érika Campos Gomes.pdf: 620457 bytes, checksum: 3e9a7035999fd61c70de3db7af57ca5d (MD5) Previous issue date: 2017-04-06 / Food allergies have increased considerably and it affects approximately 8% of children. To this day, there are no available cures and the only way of coping with the allergies is to avoid contact with the allergen and emergency treatment of symptoms in case of accidental exposure. The constant dread of anaphylaxis incidents and the vigilance needed to avoid the exposure to the allergen puts significant pressure on the family as a whole, affecting daily activities and consequently quality of life. The objective of this qualitative research is to investigate the main effects of allergy management, its effects on fraternal relationships and intervention techniques to conflict situations arising from the allergy in sibling relations. In this research, we studied mothers found in an online allergy support group hosted on Facebook who had a son/daughter diagnosed with a food allergy age 12 and below and with siblings ages 15 and below who may or may not have a food allergy. The participants answered a questionnaire to better define the family, to gather further information on the allergies and took part in an online discussion board. We identified as the most prominent effects of food allergy changes in daily routine, internal conflicts, conflicts within the nuclear family, conflicts within the extended family and the overall experiences regarding living in with risk. We observed support, complicity and feelings of jealousy and anger in sibling relations as consequences of the food allergy. Conflict mediation strategies used by mothers to deal with conflict in sibling relations involve privation and negotiation. Understanding the complexities and individuality of the particular effects of food allergies in family life, especially in sibling relations is important in order to develop coping techniques which take into account the everlasting care regarding the allergy and the needs of all family members, especially each sibling / A alergia alimentar tem aumentado consideravelmente e afeta aproximadamente 8% das crianças. Até o momento, não existe cura e as únicas formas de enfrentamento são evitar contato com o alérgeno e o tratamento emergencial de sintomas em caso de exposição acidental. O receio constante de episódios de anafilaxia e a vigilância necessária para evitar a exposição ao alergênico coloca uma pressão significativa sobre a família, impactando nas atividades diárias e qualidade de vida. Esta pesquisa qualitativa teve como objetivo investigar os principais efeitos familiares do gerenciamento da alergia alimentar, sua interferência na relação fraterna e as formas de intervenção em situações de conflito que podem surgir entre os irmãos em função da alergia. Participaram desta pesquisa mães originárias de um grupo de apoio do Facebook focado em alergia alimentar, que tinham um filho de até 12 anos com diagnóstico de alergia alimentar e com irmãos com até 15 anos, sendo estes, alérgicos ou não. As participantes responderam a um questionário de identificação das famílias e de detalhamento das alergias e participaram de um fórum de discussão on-line. Foi possível verificar como principais efeitos familiares do gerenciamento da alergia: as especificidades da rotina diária, as consequências das restrições alimentares que envolvem conflitos internos, com a família nuclear e extensa, e a experiência de conviver com risco. O apoio e a cumplicidade, assim como sentimentos de ciúmes e raiva, foram observados no relacionamento fraterno como decorrências da alergia. As estratégias de manejo de conflitos entre os irmãos relativos à alergia envolvem a privação e a negociação. Compreender a complexidade e individualidade do efeito da alergia alimentar na vida familiar, especialmente no relacionamento fraterno, mostra-se importante para elaborar formas de enfrentamento que levem em consideração os cuidados indispensáveis à alergia e as demandas de cada membro da família, em particular, de cada filho

Thesis (M.Phil. (Social Work))--University of Stellenbosch, 1984. / 367 leaves printed on single pages,preliminary pages i - xiv and numberd pages 1-351. Includes bibliography and 3 figures. Digitized at 600 dpi grayscale to pdf format (OCR), using a Bizhub 250 Konica Minolta Scanner. / Please refer to full text.

Indiana University-Purdue University Indianapolis (IUPUI) / Technology dependent children such as those who require a feeding tube, tracheotomy or ventilator are a special group of chronically ill children who require complex care on a daily basis. When these children are hospitalized, the accompanying parent and the nurse caring for the child on the inpatient unit must communicate together about the care of the child. Care for the technology dependent child is optimized when parents and nurses both understand the plan of care for the child. To discover the process of parent-nurse communication that results in mutual understanding of the child’s plan of care, a grounded theory study to explore the perspectives of the parents of previously hospitalized technology dependent children was undertaken. The Theory of Shared Communication emerged from the data and illuminates the parent-nurse communication process. The antecedents of the process are respect for own and others expertise. The communication process consists of six communication behaviors; ask, listen, explain, advocate, verify understanding and negotiate roles. The behaviors are nested within each other and all are not necessarily required for the non-linear process to result in the relational outcome of mutual understanding of the child’s plan of care. An integrative review of the literature regarding the process of communication between parents of hospitalized chronically ill children and their nurses shed light on the components of the process, but no study was found that explicated the entire communication process. A subsequent grounded theory study added the perspectives of the nurses to the original theory. No new components of the process were uncovered, but the nurse’s narratives added significantly to our understanding of the communication process. Additionally, parents of currently hospitalized technology dependent children confirmed the propositions of the Theory of Shared Communication.