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A grounded theory study of dream fulfilment in children and young people with life-threatening and long-term conditions and their familiesGalinsky, Jayne January 2015 (has links)
Background: This thesis examines the impact of dream or wish fulfilment on seriously ill children and their families. Dream or wish fulfilment is operationalised as the actualisation of a seriously ill child’s wish by a charity that provides desired experiences. Anecdotal reports suggest that the experience of having a dream or a wish fulfilled can provide seriously ill children and their families with a sense of hope and time away from illness. However, little empirical research has been conducted in this area. This thesis reports the impact of dream fulfilment on the psychosocial well-being of ill children and their families. The research questions are: what is the experience of having a dream fulfilled for the child? What is the impact of dream fulfilment on the family? Methods: A constructivist grounded theory methodology was adopted, using theoretical sampling to recruit families from across the UK. Twenty-one families were interviewed, including 15 dream recipients, 8 siblings, and 24 parents. Analysis followed the grounded theory methodology of simultaneous data collection and development of theory, resulting in analytic interpretations of participants’ worlds. Results and Conclusions: This thesis reports for the first time a theory and accompanying theoretical model, that explain the impact of dream fulfilment on families’ lives. The generated theory suggests that dream fulfilment was conceptualised as an alternative milestone in seriously ill children and their families’ lives. Additionally, the dream experience shifted perceptions of illness by providing instances and experiences where illness did not underscore family life. Findings additionally suggest that the dream fulfilment process provided families with ill children, who often felt excluded and stigmatised from services, with a period of much needed support. Findings also highlight the unintended negative consequences of dream fulfilment. Implications for Dreams Come True, and other dream and wish fulfilment organisations are discussed.
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Adapting Filial Therapy for Families who have a Child with a Life-Threatening IllnessSteen, Rheta LeAnne 08 1900 (has links)
Utilizing a collective case study design, I examined and described the filial therapy (FT) process and adaptations discovered to be necessary and unnecessary in working with families who have a child with a life-threatening illness in the hospital setting. Data from a total of 7 parents was utilized, including those who terminated early, in order to gain a greater understanding of adapting FT for families who have a child with a life-threatening illness and their participation patterns. The parents attended 10 one- to two-hour FT sessions. The data was analyzed to examine for themes, patterns and relationships intrinsically with each case participant, as well as across cases. Analysis indicated that parents with a child with a life-threatening illness had great difficulty committing to attend FT; and a high rate of attrition occurred for those who did commit. A theme regarding flexibility was found to be of eminent importance in a variety of manifestations including therapeutic methods, session format, location and time of sessions, and intense vs traditional FT. Therapeutic adaptations in flexibility found to be important including openness to cathartic and personal parenting sessions, tolerance of forgetfulness, and lowering typical therapeutic concerns of dependency in the relationship. An inability for parents in this situation to benefit from intense FT methods was also noted. Changes noted in the child of focus included increased confidence, increased cooperation in the medical setting, increased communication with the parent and with medical staff regarding medical issues, and increased communication with the parent regarding personal feelings and issues. Changes noted in the parents included increased confidence in parenting skills, increased awareness of the child's perceptions of the environment, increased tolerance in allowing the child to struggle in and out of the medical setting, with both emotional and physical pain in order to gain coping skills, increased ability to allow the child to empower self, and increased abilities in limit setting.
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Sibbe van kinders met kanker se belewenis in die gesinsdinamika na behandelingBoon, Wietske 30 November 2008 (has links)
Text in Afrikaans / The problem that motivated the study was that siblings of children with cancer
may experience the relationships within the family differently after cancer
treatment. The purpose was to investigate and describe how family dynamics are
experienced by the siblings of a cancer patient after his/her treatment for cancer.
The research methodology includes qualitative research of an explorative and
descriptive nature. Data were collected through unstructured interviews with
siblings of children who had received treatment for cancer. From this data eight
categories were identified accordingly. Although the data do not indicate that
siblings experienced family dynamics after treatment as problematic, as
expected, the information contributes by making parents of cancer patients more
aware of the siblings' emotions and needs. / Social Work / M.Diac (Spelterapie)
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Sibbe van kinders met kanker se belewenis in die gesinsdinamika na behandelingBoon, Wietske 30 November 2008 (has links)
Text in Afrikaans / The problem that motivated the study was that siblings of children with cancer
may experience the relationships within the family differently after cancer
treatment. The purpose was to investigate and describe how family dynamics are
experienced by the siblings of a cancer patient after his/her treatment for cancer.
The research methodology includes qualitative research of an explorative and
descriptive nature. Data were collected through unstructured interviews with
siblings of children who had received treatment for cancer. From this data eight
categories were identified accordingly. Although the data do not indicate that
siblings experienced family dynamics after treatment as problematic, as
expected, the information contributes by making parents of cancer patients more
aware of the siblings' emotions and needs. / Social Work / M.Diac (Spelterapie)
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