Made available in DSpace on 2017-06-01T18:08:40Z (GMT). No. of bitstreams: 1 Leda Viana.pdf: 944185 bytes, checksum: 98dc4ffe5bebbc00fe16f8d52ed04244 (MD5) Previous issue date: 2004-01-12 / To have a child with cancer and hospitalized is a painful situation to all family. In most cases, is the mother who stays whit the child in the hospital, being her involvement recognized as fundamental for medical treatment and his recovery. That s why, it s necessary an understanding about her real necessities faced with universe of infant cancer. Therefore this study focus on sense of the livings of mothers-being close of children in cancer treatment. This research is quality, with phenomenologic grounding, in which, we used like devices the free observations and mothers-being close talks. In among specialties about the livings of mothers-being close , we highlight some expressions that are shared and told by her: faced with diagnosis cancer, they express feelings of unbelievable, despair and disgust; during the going with her child, the mothers tell to feel fear, helpless; they seek desperately a cause for the sickness of their children; they express grateful to the hospital; they show necessity for obtain information about cancer. We understand the mothers-being close , during the going into the hospital, need, especially, emotion support, effective and systemic careful, so that, can contribute effectively in the treatment and recovery of their children / A realidade de ter um filho com câncer e hospitalizado, é uma situação penosa para toda família. Na maioria dos casos, é a mãe que acompanha o internamento, sendo sua participação reconhecida como fundamental no tratamento e recuperação do filho. Para tanto, é necessário uma compreensão de suas reais necessidades frente ao universo do câncer infantil. Este estudo vem focalizar, portanto, o sentido das vivências de mães-acompanhantes de filhos no tratamento do câncer. Trata-se de uma pesquisa qualitativa de base fenomenológica, na qual buscamos trabalhar com observações livres e narrativas de mães que estão vivenciando o acompanhamento ao tratamento de filhos com câncer. Dentre as singularidades dessas vivências, destacamos algumas expressões que são compartilhadas e narradas pelas mães: diante do diagnóstico de câncer, expressam sentimentos de incredulidade, revolta, desespero; na hospitalização, relatam sentir temor, desamparo; buscam incessantemente uma causa para o adoecimento dos filhos; explicitam gratidão pelo hospital; demonstram necessidade de obter informações sobre o câncer. Entendemos que as mães- acompanhantes, durante a internação, necessitam, sobretudo, de suporte emocional, atenção efetiva e sistêmica, para que, assim, possam contribuir ativamente no tratamento e restabelecimento dos filhos

This study examined the relationship between executive and psychosocial functioning in 45 children and adolescents age 6 to 17 years who had been treated for a brain tumor. Executive functioning deficits can profoundly impact an adult's ability to function successfully in life. The purpose of the study was to evaluate the potential impact of executive functioning deficits on the day-to-day functioning in a pediatric population. The domains of executive functioning assessed included cognitive flexibility, conceptual thinking, sustained attention, and response inhibition. Psychosocial functioning was assessed using both parent and child report. Several significant relationships were found for adolescents ages 15 and older, with effect sizes ranging from medium to large. In particular, cognitive flexibility and conceptual thinking were significantly related to parent report of depression and adaptive functioning. Fewer significant relationships with smaller effect sizes were found for younger children. The results may reflect the developmental emergence of executive functioning abilities and late effects of executive functioning deficits upon psychosocial functioning. The correlational design of this study precludes definitive statements regarding the temporal nature of the relationship. Additional research, including longitudinal research and replicatory studies, will be needed to further investigate the developmental consequences of executive functioning impairment.

Family-centered care (FCC) is important within the practice of pediatric oncology nurses. Such nurses face challenges and barriers when attempting to provide FCC. The purpose of this study was to understand the experiences of pediatric oncology nurses in relation to FCC; identify how pediatric oncology nurses implemented FCC into their practice; identify what facilitated and enabled pediatric oncology nurses to implement FCC; and discern the barriers and challenges that were present in their setting when implementing FCC. A qualitative approach utilizing person-centered interviewing was used to collect data. Nurses (N=20) from the Alberta Children‟s Hospital were recruited through purposeful convenience sampling and were then interviewed. Five major themes were identified from the data set: ACH support f FCC, How participants defined FCC, Establishing FCC, Enhancing FCC, and Barriers and Challenges to providing FCC. Recommendations for future research and implications for practice and education are offered. / xii, 191 leaves ; 29 cm