• Refine Query
  • Source
  • Publication year
  • to
  • Language
  • 2
  • Tagged with
  • 2
  • 2
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • 1
  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
1

Patient Engagement in Autism Research / Facilitators and Barriers Contributing to Patient Engagement in Autistic Children’s Research

Alicia Hoi Ying, Liu January 2022 (has links)
Background: Marginalized population groups are more likely to be under-represented in autistic children’s research. Rationale: Our understanding of the low levels of research engagement among autistic children from these marginalized groups is limited. Objectives: (1) to examine some of the under-represented populations in autism children’s research; (2) to assess the facilitators and barriers contributing to patient engagement in autistic children’s research; (3) to suggest considerations for the development of a more equitable approach to autistic children’s research. Methods: A scoping review was conducted on studies published during January 2011-December 2021 in five electronic research databases by two reviewers in duplicate. English qualitative/quantitative/mixed methods studies that engaged autistic children aged 2-18 and/or their parents as research participants or in the process of patient-oriented research were included. Results: Some of the under-represented marginalized autistic children populations identified from the 21 included studies were: (1) those living in developing/under-developed countries, (2) those who received autism services from centres that do not collaborate with researchers, (3) families of ethnic minority in Western countries, (4) autistic children who received late diagnosis, (5) families whose first language is not English, (6) male parents of autistic children, (7) female autistic children, (8) families with low household income who are not enrolled in governmental healthcare financial support program and (9) those who lack technological literacy skills. Facilitators of patient engagement were: (1) building trust-based relationships among stakeholders, (2) engaging patients throughout research development, and (3) patient engagement in research funding processes. The barriers were: (1) allocation of research funding, (2) identity conflict, (3) applicability of research evidence, and (4) social stigmatization towards autism. Discussion: To enhance patient engagement in autistic children’s research, policymakers, researchers and funders should prioritize participant’s needs in all stages of the research process. Conclusion: The diverse identities autistic children carry should be better acknowledged. An equity approach to research is needed. / Thesis / Master of Public Health (MPH) / Autistic children from certain marginalized population groups are less likely to be engaged in research. This thesis aims to examine the facilitators and barriers contributing to this phenomenon. As predicted, several child and family characteristics, socio-economic factors, and contextual research structures appear to be associated with patient engagement in autism research. Several recommendations are made for policymakers, researchers and funders on ways to prioritize autistic populations’ needs, enhance patient engagement, and promote a more equitable approach to autism research.
2

Interaction Effects of Child Weight Status and Parental Feeding Practices on Children’s Eating Disorder Symptomatology

Schmidt, Ricarda, Hiemisch, Andreas, Kiess, Wieland, Hilbert, Anja 06 April 2023 (has links)
(1) Background: Research on parental feeding practices and non-normative eating behavior including loss of control (LOC) eating and eating disorder psychopathology indicated separate associations of these variables with child weight status, especially in early childhood. This study cross-sectionally examined interaction effects of restriction, monitoring, pressure to eat, and children’s weight status on disordered eating in children aged 8–13 years. (2) Methods: A population-based sample of N = 904 children and their mothers completed the Eating Disorder Examination Questionnaire for Children and the Child Feeding Questionnaire. Child anthropometrics were objectively measured. Hierarchical linear and logistic regression analyses were conducted for cross-sectionally predicting global eating disorder psychopathology and recurrent LOC eating by feeding practices and child weight status for younger (8–10 years) and older (11–13 years) ages. (3) Results: Restriction x Child weight status significantly predicted global eating disorder psychopathology in younger children and recurrent LOC eating in older children. Monitoring x Child weight status significantly predicted eating disorder psychopathology in older children. A higher versus lower child weight status was associated with adverse eating behaviors, particularly in children with mothers reporting high restriction and monitoring. (4) Conclusions: Detrimental associations between higher child weight status and child eating disorder symptomatology held especially true for children whose mothers strongly control child food intake.

Page generated in 0.0876 seconds