I Sverige föds ca 90 000 barn per år och cirka 10 % behöver vård på en neonatalavdelning. Orsakerna till det kan vara många, men vanligt är att barnen som drabbas, är för tidigt födda och då är extra utsatta pga. sin omognad. Syftet med studien var att ta reda på pappans upplevelse att vårda sitt barn på en neonatalavdelning. En kvalitativ forskning med innehållsanalys som metod valdes. Sju stycken pappor som hade vårdat sitt barn på en neonatalavdelning intervjuades med en frågeställning ”Hur upplevde du att vårda ditt barn på en neonatalavdelning”? Resultatet delades in i tre kategorier som ”vilja skapa anknytning till sitt barn”, ”känsla av otillräcklighet” och ”behov av att känna trygghet” med tillhörande underkategorier. I studien framkom att pappan tycker att det är viktigt att få vara nära barnet och vill gärna ta ansvar för vården. De var mycket nöjda med vården och hade tillit till vårdpersonalen men upplevde att de skulle velat haft mer stöd.  Det framkom även att de tyckte att det var frustrerande att vilja vara på flera ställen samtidigt. Med denna studie hoppas författarna kunna öka kunskapen som ska främja ett individuellt anpassat stöd för en bättre omvårdnad av det nyfödda barnet. / In Sweden, about 90 000 children per year are born and about 10% of these need to be taken care in neonatal intensive care unit. The causes can be many, but the most common reason is that the children who suffer, are prematurely born and are extra vulnerable due to their immaturity. The purpose of the study was to find out the father's experience of caring for their child in a neonatal intensive care unit. A qualitative research using content analysis method was chosen. Seven fathers who had to provide care of their child in a neonatal department were interviewed with a question "How you did your experience to take care for your child at a neonatal department?" The results were divided into three categories such as "like to create ties to their child," "sense of inadequacy" and "need to feel safe" with its sub-categories. The study revealed that the father thinks that it is important to be close to the child and would like to take responsibility for the health care. They were very satisfied with the care and had trust in the caregivers, but felt that they would have had more support. The fathers also experienced frustration of the wish to be in several places simultaneously. In this study, the authors hope to raise awareness to promote a personalized support for a better care of the newborn baby.

<p>I Sverige föds ca 90 000 barn per år och cirka 10 % behöver vård på en neonatalavdelning. Orsakerna till det kan vara många, men vanligt är att barnen som drabbas, är för tidigt födda och då är extra utsatta pga. sin omognad. Syftet med studien var att ta reda på pappans upplevelse att vårda sitt barn på en neonatalavdelning. En kvalitativ forskning med innehållsanalys som metod valdes. Sju stycken pappor som hade vårdat sitt barn på en neonatalavdelning intervjuades med en frågeställning ”Hur upplevde du att vårda ditt barn på en neonatalavdelning”? Resultatet delades in i tre kategorier som ”vilja skapa anknytning till sitt barn”, ”känsla av otillräcklighet” och ”behov av att känna trygghet” med tillhörande underkategorier. I studien framkom att pappan tycker att det är viktigt att få vara nära barnet och vill gärna ta ansvar för vården. De var mycket nöjda med vården och hade tillit till vårdpersonalen men upplevde att de skulle velat haft mer stöd.  Det framkom även att de tyckte att det var frustrerande att vilja vara på flera ställen samtidigt. Med denna studie hoppas författarna kunna öka kunskapen som ska främja ett individuellt anpassat stöd för en bättre omvårdnad av det nyfödda barnet.</p><p> </p> / <p>In Sweden, about 90 000 children per year are born and about 10% of these need to be taken care in neonatal intensive care unit. The causes can be many, but the most common reason is that the children who suffer, are prematurely born and are extra vulnerable due to their immaturity. The purpose of the study was to find out the father's experience of caring for their child in a neonatal intensive care unit. A qualitative research using content analysis method was chosen. Seven fathers who had to provide care of their child in a neonatal department were interviewed with a question "How you did your experience to take care for your child at a neonatal department?" The results were divided into three categories such as "like to create ties to their child," "sense of inadequacy" and "need to feel safe" with its sub-categories. The study revealed that the father thinks that it is important to be close to the child and would like to take responsibility for the health care. They were very satisfied with the care and had trust in the caregivers, but felt that they would have had more support. The fathers also experienced frustration of the wish to be in several places simultaneously. In this study, the authors hope to raise awareness to promote a personalized support for a better care of the newborn baby.</p>

The primary motivation of this PhD by publication has been the apparent disconnect between the metrics of hospital quality of care at national and board level and patients’ experiences. Exploration of the gap led to the realisation of two key points. Firstly, the concept of healthcare quality continually evolves. Secondly, the NHS Scotland Measurement Framework does not include a measure of patient experience at the microsystem level (e.g. hospital ward). This is needed to counterbalance easier to obtain metrics of quality (e.g. waiting times). Resource tends to follow measurement. Papers 1 and 2 were exploratory, investigating theoretical and practical aspects of measuring quality of hospital care at the clinical microsystem level. With the associated Chapters, they highlighted both the necessity and the possibility of measuring the patient experience at the micro level of the healthcare system. They also drew attention to the inadequacy of “satisfaction” as a metric, leading to closer examination of “experience” as the decisive metric. This required the development of a systematic review protocol (Paper Three), then a systematic review (Paper Four). The review (Paper Four) examined the utility (validity, reliability, cost efficiency, acceptability and educational impact) of questionnaires to measure the patient experience of hospital quality of care, with a newly devised matrix tool. Findings highlighted a gap for an instrument with high utility for use at the clinical microsystem level of healthcare. Paper Five presents the development and preliminary psychometric testing of such an instrument; the Care Experience Feedback Improvement Tool (CEFIT). The thesis provides, as well as the matrix tool and CEFIT, theoretical and methodological contributions in the field of healthcare quality. It contributes to an aspiration that the patient’s voice can be heard and acknowledged, in order to direct improvements in the quality of hospital care.