Thesis (M.S.)--Brandeis University, 2009. / Title from PDF title page (viewed on May 29, 2009). Includes bibliographical references.

Thesis (M.S.)--Brandeis University, 2009. / Title from PDF title page (viewed on May 29, 2009). Includes bibliographical references.

Genetic counselors are healthcare professionals who work with patients and families affected by or at risk for conditions with a genetic cause or component. They act as purveyors of genetic and genomic testing and support the translation of test results into targeted and personalized medical care. Innovations, which arise and are introduced into practice continuously, compel genetic counselors to update their skills, knowledge, and approach quickly to ensure adequate and appropriate care of patients. The purpose of this study was to explore the professional learning strategies utilized by genetic counselors, with particular attention to learning which occurs in response to innovation. Utilizing critical incident questionnaires, interviews, and a database of credits accrued for continuing education, this study sought to contribute to a detailed understanding of genetic counselors’ professional learning and how strategies may vary by specialty or years of experience. Genetic counselors were found to utilize reflection to identify learning needs arising within uncertain, complex, and ambiguous circumstances of practice, and match those needs to appropriate learning strategies. Prized learning strategies included reading to gather information, discussion with colleagues to curate alternative perspectives and past experiences, and experimentation to actively test ongoing apprehension. Through strategies which were permeable, complementary, and active, genetic counselors demonstrated their abilities to synergize learning, practice, and novel, complex, ambiguous, and uncertain environments.

abstract: Patients who attend genetic counseling appointments report high anxiety and varied satisfaction levels following their appointments. It has been suggested in previous literature that some of the increase in anxiety and reduction in satisfaction is caused by lack of prior information. Here, I investigated whether providing patients with a glossary of genetic terms prior to their counseling appointment improves patient satisfaction and reduces anxiety in an oncology genetic counseling appointment. I surveyed 96 patients attending their first genetic counseling appointment at Banner MD Anderson Cancer Center and analyzed 92 patients for which I had complete data. Patients were randomly selected to receive one of two folders, containing either an educational document or an educational document and a glossary comprised of ten genetic terms. Each patient was given a post-counseling survey at the end of the counseling appointment to assess their anxiety and satisfaction levels. I did not observe a statistically significant difference in levels of anxiety or satisfaction, but the data are consistent with increased satisfaction for patients who received a glossary. Interesting, the data are also consistent with decreased anxiety levels for patients who did not receive a glossary. Furthermore, I did observe differences in reported satisfaction with patients who had college experience and patients that did not have any college experience. / Dissertation/Thesis / Masters Thesis Biology 2018

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Thesis (M.S.)--Brandeis University, 2009. / Title from PDF title page (viewed on May 29, 2009). Includes bibliographical references.