Bakgrund: Antalet personer med demenssjukdom i Sverige beräknas uppgå till 150 000. Utav dessa vårdas 55 procent i hemmet av anhöriga. De anhörigas roll och funktion som vårdare i hemmet blir alltmer centralt, då vård och omsorg flyttas från det offentliga rummet till det privata. Att träda in i rollen som anhörigvårdare förändrar livssituationen avsevärt och allt planeras kring demenssjukdomens villkor. Syfte: Att sammanställa och belysa forskning som beskriver hur de anhöriga upplever sin situation av att vårda en anhörig som drabbats av en demenssjukdom. Metod: En litteraturöversikt där fem kvantitativa och sex kvalitativa artiklar analyserats. Resultat: Artikelanalysen resulterade i tre teman:  en ny livssituation, förändrad relation och känslomässigt påfrestande. I resultatet framkom att anhöriga rapporterade ohälsa. Diskussion: Anhöriga är en utsatt grupp, som behöver mycket stöd för att de ska orka axla rollen som anhörigvårdare. För att de ska kunna ge den demenssjuke god vård, krävs ett samarbete mellan den anhörige och vården. Kunskapen i studien är användbar för sjuksköterskan och kan användas som ett verktyg för ökad förståelse i mötet med den anhörige. / Background: The numbers of people with dementia in Sweden are estimates at 150 000. Out of these 55 percent cared for a relative at home. The role and function as a caregiver in home are becoming more centralized, when health care move from the public sphere to private enter the role of careers changing life situation considerably and everything is planned around the dementia illness. Aim: To collate and illustrate research that describes how the relative experiences their situation of caring for a relative with dementia. Method: A literature survey in which five quantitative and six qualitative articles were analyzed. Results: Article analysis resulted in three headings: a new life situation, changes in relationships and emotional trying. The results revealed that caregivers reported illness. Discussion: Relatives are a vulnerable group in need of much support to maintain the role as a caregiver. To be able to provide the best dementia care requires a coperation between caregivers and health care. Knowledge in the study is useful for the nurse and can be used as a tool for better understanding of the meeting with the relative.

Objective – Some of the most vulnerable children and youths in our country are those in out of home care, and these children demonstrate higher rates of psychopathology and fare more poorly in school and in social relationships than their peers. Typically, when studying at risk populations, negative outcomes are examined, thereby ignoring those who do well despite their vulnerability. These children, who demonstrate positive patterns of functioning and development despite their exposure to adversity, are considered resilient. The objective of this study was to identify factors associated with a resilient outcome among children and youths in out of home care. Method – The study sample was comprised of 417 children 10 to 15 years old in Ontario who had been removed from their homes of origin and placed in out of home care. Predictor variables were selected based on previous research findings in the area of resilient outcome. In the cross-sectional study, a series of sequential logistic regression analyses were conducted to identify factors associated with a resilient outcome among children in out of home care. These children were then followed one year later. In the longitudinal study, another series of sequential logistic regression analyses were used to identify variables that were related to future resilient outcomes among the same children in out of home care. Results – The findings showed that many of the independent variables predicted resilient outcome on the different dimensions. Furthermore, overall resilient outcome was best predicted by the foster parental report of high sociability. Conclusion – The findings in the present study confirmed that there exists a subset of resilient children among children in out of home care. The findings allowed for the identification of some factors related to resilient outcome among this population. The practical implications of these findings are discussed.

Objective – Some of the most vulnerable children and youths in our country are those in out of home care, and these children demonstrate higher rates of psychopathology and fare more poorly in school and in social relationships than their peers. Typically, when studying at risk populations, negative outcomes are examined, thereby ignoring those who do well despite their vulnerability. These children, who demonstrate positive patterns of functioning and development despite their exposure to adversity, are considered resilient. The objective of this study was to identify factors associated with a resilient outcome among children and youths in out of home care. Method – The study sample was comprised of 417 children 10 to 15 years old in Ontario who had been removed from their homes of origin and placed in out of home care. Predictor variables were selected based on previous research findings in the area of resilient outcome. In the cross-sectional study, a series of sequential logistic regression analyses were conducted to identify factors associated with a resilient outcome among children in out of home care. These children were then followed one year later. In the longitudinal study, another series of sequential logistic regression analyses were used to identify variables that were related to future resilient outcomes among the same children in out of home care. Results – The findings showed that many of the independent variables predicted resilient outcome on the different dimensions. Furthermore, overall resilient outcome was best predicted by the foster parental report of high sociability. Conclusion – The findings in the present study confirmed that there exists a subset of resilient children among children in out of home care. The findings allowed for the identification of some factors related to resilient outcome among this population. The practical implications of these findings are discussed.

<p><strong>Bakgrund:</strong> Antalet personer med demenssjukdom i Sverige beräknas uppgå till 150 000. Utav dessa vårdas 55 procent i hemmet av anhöriga. De anhörigas roll och funktion som vårdare i hemmet blir alltmer centralt, då vård och omsorg flyttas från det offentliga rummet till det privata. Att träda in i rollen som anhörigvårdare förändrar livssituationen avsevärt och allt planeras kring demenssjukdomens villkor. <strong>Syfte:</strong> Att sammanställa och belysa forskning som beskriver hur de anhöriga upplever sin situation av att vårda en anhörig som drabbats av en demenssjukdom. <strong>Metod:</strong> En litteraturöversikt där fem kvantitativa och sex kvalitativa artiklar analyserats. <strong>Resultat:</strong> Artikelanalysen resulterade i tre teman:  <em>en ny livssituation, förändrad relation och känslomässigt påfrestande.</em> I resultatet framkom att anhöriga rapporterade ohälsa. <strong>Diskussion:</strong> Anhöriga är en utsatt grupp, som behöver mycket stöd för att de ska orka axla rollen som anhörigvårdare. För att de ska kunna ge den demenssjuke god vård, krävs ett samarbete mellan den anhörige och vården. Kunskapen i studien är användbar för sjuksköterskan och kan användas som ett verktyg för ökad förståelse i mötet med den anhörige.</p> / <p><strong>Background:</strong> The numbers of people with dementia in Sweden are estimates at 150 000. Out of these 55 percent cared for a relative at home. The role and function as a caregiver in home are becoming more centralized, when health care move from the public sphere to private enter the role of careers changing life situation considerably and everything is planned around the dementia illness. <strong>Aim:</strong> To collate and illustrate research that describes how the relative experiences their situation of caring for a relative with dementia. <strong>Method:</strong> A literature survey in which five quantitative and six qualitative articles were analyzed. <strong>Results:</strong> Article analysis resulted in three headings: <em>a new life situation, <em>changes in relationships and <em>emotional trying. </em></em></em>The results revealed that caregivers reported illness. <strong>Discussion:</strong> Relatives are a vulnerable group in need of much support to maintain the role as a caregiver. To be able to provide the best dementia care requires a coperation between caregivers and health care. Knowledge in the study is useful for the nurse and can be used as a tool for better understanding of the meeting with the relative.</p>

Thesis (Ph. D.)--Open University. / A book by the author, "Talking about care", based on her thesis, is also available.

Thesis (Ph.D.)--University of Texas at Arlington, 2009.

Thesis (Ph.D.)--Virginia Commonwealth University, 2009. / Prepared for: Dept. of Health Administration. Title from title-page of electronic thesis. Bibliography: leaves 182-192.

Objective: The current study aimed to examine the psychological distress of family caregivers of patients with psychosis following a stress-coping model as well as a self-regulation model. Methods: A cross-sectional correlational study was conducted in a psychiatric out-patient clinic of a local hospital. 26 caregivers were recruited. Associations among their psychological distress, appraisal of caregiving experience, illness perception, coping style and care burden were explored. Results: Psychological distress was found to be significantly correlated to negative appraisal of caregiving, perceived consequences on patient, perceived consequences on relative, perceived control by relative and care burden. Preliminary analysis showed that a combination of four factors, including negative appraisal of caregiving, perceived consequences on relative, perceived control by relative and care burden, significantly predicted psychological distress (〖R 〗^2= 0.36, F(4,21) = 2.97, p < 0.05). Among the predictors, negative appraisal of caregiving was the single strongest predictor of distress (〖R 〗^2 = 0.28, F(1,24) = 9.18, p < 0.01). Conclusion: The psychological wellbeing of family caregivers were influenced by both factors suggested by the stress-coping model and the self-regulation model. Findings from the present study provided preliminary evidence for developing caregiver-centered intervention that focused on appraisal of caregiving experience and illness perception in order to reduce the distress of caregivers. Further studies would be recommended to explore and differentiate the impact of appraisal of caregiving, coping style and illness perception on psychological distress in the caregiving experience for patients with psychosis. / published_or_final_version / Psychological Medicine / Master / Master of Psychological Medicine

No description available.

This study explores the coping mechanisms of mothers caring for adolescent children with cerebral palsy. This study attempted to address a gap in the literature pertaining to understanding negative and positive ways of coping related to mothers and the specific pr oblems they have to deal with when caring for adolescents with cerebral palsy . The qualitative study foc uses on experiences and feelings directly obtained from mothers and it looked at what coping mechanisms benefit mothers whilst they are caring for their adolescent child with cerebral p alsy, what factors could compromise the mother’s coping style and how adolescence impacts on the mother’s ways of coping. The research revealed that mothers tended to use either emotion - focused ways of coping which was more maladaptive, or problem - focused ways of coping which were more adaptive ways of coping. A number of coping mechanisms were identified which appeared to benefit mothers, some of these include obtaining support from the medical profession as well as obtaining so cial support. The findings illustrated that there were particular ‘poor’ facilitative factors that could compromise the mothers coping style. Facilitative factors either influenced mothers to use more problem - focused ways of coping or more emotion - focused ways of coping. It was found that both these ways of coping were link ed to different defenc e mechan isms. This study found that adolescence placed more stress on the mother since new issues relating to adolescence emerged and had to be managed. The implications of these findings for management and care of mothers in these situations are discussed. It i s hoped that the present findings will contribute to assisting clinicians in being able to focus on the important areas when working in this field. / Thesis (M.A.)-University of KwaZulu-Natal, Durban, 2009.