Diss. (sammanfattning) Stockholm : Karol. inst., 2002. / Härtill 4 uppsatser.

The aims of this licentiate thesis were to explore and describe female and male patients’ conceptions of integrity within health care and to illuminate the conceptions from a gender as well as a personal space boundary perspective. A qualitative design with a phenomenographic approach was used. The participants, 17 male (Study I) and 15 female patients (Study II), all of whom had undergone medical or surgical care, were strategically selected and interviewed. The identified conceptions were also analysed from a gender as well as a personal space boundary perspective. Three description categories emerged among the male patients (Study I); self-respect, dignity and confidence, while maintaining the self, dignity and confidence were the description categories found among the female patients (Study II). Male patients’ description of self-respect and female patients’ description of maintaining the self were for the most part similar although there were some differences. The conceptions revealed that integrity involves having the courage to set boundaries and having control over the private sphere, one’s self and one’s situation. While the male patients emphasised selfbelief and being alone, their female counterparts stressed that preserving one’s identity was essential in order to maintain the self. Dignity concerned being respected, and the male patients also described dignity as being seen as a trustworthy and whole person, while the women described it as not being exposed. Both male and female patients described confidence, which was related to handling patient information in a confidential way, trusting the professional caregivers, participating as well as balancing or changing the boundaries of integrity if necessary. The male patients also described confidence as being free. The personal space boundary perspective was useful for explaining the process of respecting the self by opening or closing outgoing and incoming boundaries around the self. The patients had to consider who, when and to what degree others should have access to their personal spaces. The way in which the professional caregivers interacted with the patient influenced the openness of the boundaries.

<p>The aims of this licentiate thesis were to explore and describe female and male patients’ conceptions of integrity within health care and to illuminate the conceptions from a gender as well as a personal space boundary perspective. A qualitative design with a phenomenographic approach was used. The participants, 17 male (Study I) and 15 female patients (Study II), all of whom had undergone medical or surgical care, were strategically selected and interviewed. The identified conceptions were also analysed from a gender as well as a personal space boundary perspective.</p><p>Three description categories emerged among the male patients (Study I); self-respect, dignity and confidence, while maintaining the self, dignity and confidence were the description categories found among the female patients (Study II). Male patients’ description of self-respect and female patients’ description of maintaining the self were for the most part similar although there were some differences. The conceptions revealed that integrity involves having the courage to set boundaries and having control over the private sphere, one’s self and one’s situation. While the male patients emphasised selfbelief and being alone, their female counterparts stressed that preserving one’s identity was essential in order to maintain the self. Dignity concerned being respected, and the male patients also described dignity as being seen as a trustworthy and whole person, while the women described it as not being exposed. Both male and female patients described confidence, which was related to handling patient information in a confidential way, trusting the professional caregivers, participating as well as balancing or changing the boundaries of integrity if necessary. The male patients also described confidence as being free.</p><p>The personal space boundary perspective was useful for explaining the process of respecting the self by opening or closing outgoing and incoming boundaries around the self. The patients had to consider who, when and to what degree others should have access to their personal spaces. The way in which the professional caregivers interacted with the patient influenced the openness of the boundaries.</p>

In der Behandlung der zervikalen Dystonie wird die Therapie mit Botulinumtoxin (BTX) erfolgreich angewendet. Neben dieser Therapie werden von Patienten oft alternative Therapien (CAM [Complementary and Alternative Medicine]) angesprochen und ausprobiert. Diese Studie geht der Frage nach, wie häufig CAM-Therapien genutzt werden, wie deren Wirkung bewertet wird und ob es Prädiktoren für die Therapiewahl gibt. Zur Datenerhebung wurden 265 Fragebögen von zwei Patientengruppen ausgewertet. Gruppe 1 (n=101) bestand aus Patienten der Botulinumtoxinsprechstunde des Universitätsklinikums Leipzig und der Paracelsus Klinik Zwickau. Gruppe 2 (n=165) wurde aus Mitgliedern des Selbsthilfeverbandes Bundesverband-Torticollis e.V. rekrutiert. Bei 86% der Patienten wurde die Therapie mit BTX angewendet. Von den Therapiemöglichkeiten der CAM wurden am häufigsten physikalische Therapien (Massagen n=171) genannt. Am besten bewertet wurden jedoch, neben der BTX-Therapie, spezielle physiotherapeutische sowie psychotherapeutische Verfahren. Die CAM-Therapien wurden häufig in Kombination mit der BTX-Therapie angewendet und von Patienten, deren Erkrankung einen langen chronischen Verlauf vorwies (>10 Jahre). Als Prädiktoren für die Wahl einer CAM-Therapie zeigten sich eine Zugehörigkeit zur Gruppe 2, aufgetretene Nebenwirkungen im Rahmen der BTX-Therapie, männliches Geschlecht und erhöhter Stress bei den Erkrankten. Außerdem fand sich ein signifikanter Unterschied zu einem höheren Bildungsabschnitt und Arbeit in gehobeneren Berufsgruppen bei Patienten, die vermehrt CAM Therapie anwenden. Zusammenfassend wurden CAM-Therapien, neben der Behandlung mit BTX, häufig von den Befragten angewendet. Hohe Zufriedenheitswerte erzielte eine Kombination mit physiotherapeutischen Verfahren oder Psychotherapie. Die Wahl von CAM-Therapien ist von der Erkrankungsdauer, Bildungslage und finanziellen Ressourcen abhängig.:1 EINLEITUNG 5 2 STAND DER FORSCHUNG 6 2.1 Definitionen 6 2.2 Epidemiologie 7 2.3 Pathologie 8 2.4 Klinisches Bild 11 2.5 Therapie 13 3 FRAGESTELLUNG UND HYPOTHESEN 24 4 STICHPROBE UND METHODE 25 4.1 Stichprobe 25 4.2 Erhebungsinstrument 26 4.3 Statistische Auswertung 28 5 ERGEBNISSE 30 5.1 Soziodemographische Daten 30 5.2 Krankheitsbezogene Merkmale 33 5.3 Therapie 35 5.4 Prädiktoren für die Therapiewahl 42 6 DISKUSSION 45 6.1 Das Patientenkollektiv 45 6.2 Diskussion der Botulinum-Toxin-Therapie 47 6.3 Diskussion der alternative Therapien 48 6.4 Diskussion der Prädiktoren für die Therapiewahl 54 6.5 Kritik 58 6.6 Schlussfolgerungen und Empfehlungen 59 7 ZUSAMMENFASSUNG 61 8 LITERATURVERZEICHNIS 64 9 ANLAGEN 72 9.1 Tabellen- und Abbildungsverzeichnis 9.2 Fragebogen 9.3 Erklärung der eigenständigen Abfassung der Arbeit 9.4 Curriculum Vitae 9.5 Veröffentlichungen und Vorträge 9.6 Danksagung