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Purpose: To explore perceptions and initial outcomes of patients with rotator cuff-related pain to a pain education session. Materials and Methods: Ten individuals with persistent rotator cuff-related pain (≥3 months duration) attended an individual pain education session. They completed patient-reported outcomes measures on a weekly basis, three weeks prior and three weeks following the session. Individual semi-structured interviews were conducted three weeks following the pain education. Interviews were recorded, transcribed verbatim, and analyzed using the General Inductive Approach. Results: There were two over-arching key themes: firstly, ‘Participants’ Perspectives’ of the session generated four themes: Improved understanding of ‘the whole’; Mindful self-awareness; Taking charge; “The pain is still there”. Their understanding of pain was reconceptualised, evident by their ability to describe the role of neurophysiological mechanisms, stress and general well-being towards their pain. The second over-arching key theme, ‘Participants’ Recommendations’, had two themes: Integrating neuroscience with pathoanatomical knowledge and Educating other health professionals. Pain levels decreased post-pain education compared to pre-pain education. Conclusions: Following the pain education session, participants had greater understanding of factors influencing their shoulder pain. Pain education, in addition to pathoanatomical information may be useful as part of treatment for persistent rotator cuff-related pain.

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The present study used a mixed methodology approach to understand factors that predict and promote health related quality of life (HRQOL) for parents of youth with Autism Spectrum Disorders (ASD). The first component of the study used quantitative analyses to determine the extent to which study variables predict HRQOL for parents of youth with ASD (N = 365). Findings show that HRQOL is positively impacted by increased total annual household income, increased age of the child with ASD, male gender, and tangible support. HRQOL was negatively impacted by increased age of the parent, increased parental perceptions of burden, and use of maladaptive coping strategies. The second phase of the study incorporated qualitative methodology to describe the lived experience of parents (N = 8). Qualitative interviews solicited perceptions of parents regarding HRQOL. Further, qualitative analyses identified sources of parental support, how parents feel about support from varying professionals, and potential supportive interventions toward which they are amenable but cannot currently access. Directions for future research and implications for improving HRQOL for parents of youth with ASD are discussed. The results of the current study can be used to guide and inform supportive services targeted at parents of youth with ASD to improve their HRQOL.

The relationship between two types of religiousness (progressive and orthodox) and marital relationships was investigated using qualitative data from a sample of 26 Christian couples (13 progressive and 39 orthodox individuals) from California and New England. The focus of the study was individuals' frameworks of values and goals (moral order) and the ontological views behind them. Text analysis, t-tests for between-group differences of coded results, and phenomenological analysis were used. Results indicated that couples in the progressive group had Non-transcendent Selfhood as a basic moral order and engaged in mutual loving-kindness to respect and care for each other primarily in the form of a horizontal marital relationship. The couples in the orthodox group had Transcendent God Primacy as a basic moral order and, in addition to loving-kindness (horizontal relationship) toward the spouse, engaged in Transcendent Religious Striving (a vertical movement) as their main religious activity. Spouses in the orthodox group supported, strengthened, and shared the striving of each other. The substantive difference found in the types of being religious and their effects on marital relationships extends the understanding of the link between religion and marriage.

The study aimed to explore the perceptions of primary caregivers as they manage their child’s transition to kindergarten. The study used a mixed-methods explanatory sequential design consisting of two phases. In phase 1, 64 primary caregivers of children transitioning to kindergarten completed the Kindergarten Caregiver Perceptions survey. Phase 1 participants were recruited from K-Camp, a program designed to support families and children during the transition. Descriptive statistics were analyzed to identify the concerns of caregivers, investigate their desired information and support, examine their involvement in transition activities, and understand caregivers’ perceived level of self-efficacy in managing their child’s transition to kindergarten. Additionally, quantitative data was used to analyze the relationship between caregivers’ previous experience managing the transition, their feelings toward school, and their concerns, involvement, and self-efficacy in managing their child’s transition to kindergarten. Phase 2 participants were selected using maximum variation sampling from phase 1. Six caregivers participated in one-on-one interviews about their perceptions of their child’s transition, focusing on their experiences, self-efficacy in managing their child’s transition, involvement, and the impact of COVID-19 on their child’s readiness for kindergarten. Quantitative findings imply that caregivers have few concerns regarding their child’s transition to kindergarten; desire information that relates to kindergarten expectations to help in preparation efforts; are more likely to be involved in low-intensity, whole-group transition activities; and are less likely to be involved in individualized transition support practices. In general, caregivers feel confident and supported as they manage their child’s transition to kindergarten. Statistical analyses revealed a significant negative correlation between caregivers’ previous experience and their concerns, as well as a significant positive correlation between caregivers’ previous experience and self-efficacy and between caregivers’ feelings toward school and self-efficacy. Qualitative findings, presented as narrative portraits, preserve the unique personal qualities within each case and explain in detail the rich facets of caregivers’ experiences. The current study illustrates the need for schools to form early relationships with caregivers to understand their situation, assess their needs, and identify barriers so that targeted support can be provided to families as needed.

Objectives: The aim of this study was to gain a thorough understanding of parents’ perceptions of and experiences with the care networks surrounding young children (<=12 years) with inherited metabolic diseases (IMDs). Methods: In this mixed methods study, parent participants created a ‘care map’ depicting their child’s network of care providers. We analyzed care maps using social network analysis. A subset of parents participated in a semi-structured interview. We analyzed interviews thematically and integrated quantitative and qualitative results narratively. Results: Sixty parents contributed care maps and 10 participated in interviews. Parent-drawn care networks were large with few connections between providers. Parents felt responsible for creating and maintaining care networks and for coordinating care. They valued providers who trusted them as part of their child’s health care team. Conclusions: Our findings highlight the complexity of care for children with IMDs and can inform the design of interventions to improve care.

There is scarce research that implement a formal framework when evaluating usability evaluation methods such as heuristicevaluation. This paper aimed to explore and compare the results of a heuristic evaluation performed by end-users and a heuristicevaluation performed by experts. Both heuristic evaluations took place in the context of forestry industry where a mobileapplication developed to give harvest operators performance feedback was evaluated. A thorough literature review for researchregarding evaluation of UEM was a crucial first step. The outcome of this produced an evaluation framework that included threecriteria, Relevance, Frequency and Timeliness. These criteria were used to analyse the results from the heuristics evaluationsperformed by the two groups, using mixed methods. The quantitative analysis concluded that the evaluation performed by theend-users had a higher frequency and relevance value, and that the evaluation performed by the expert group had higher valuefor their solution rate in the timeliness criteria. Furthermore, the qualitative analysis held within the criteria timeliness concludedthat the two groups identified different types of usability problems, confirming previous research performed on different types ofheuristic evaluators.

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