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Breast cancer is the leading cause of death in women ages 35-54. A research consensus has been published stating that breast conserving therapy or surgery (BCT/BeS) and mastectomy treatments for T1 breast cancers yield comparable recurrence and survival rates. Standards of medical practice for various diseases and conditions are known, but very little if any, information or research exists on individual hospital medical practice. This study focused on the grassroots level of health care by investigating local treatment protocols, patient/physician beliefs and actual treatments chosen concerning early diagnosis of breast cancer. / Ed. D.

Darbo tikslas – įvertinti pacientų nuomones apie teisės į informaciją užtikrinimą stacionarinėse asmens sveikatos priežiūros įstaigose. Tyrimo metodika. Atliekant tyrimą naudotas duomenų rinkimo metodas buvo anoniminė anketinė pacientų apklausa. Naudojant anoniminę anketą apklausti atsitiktinės atrankos metodu atrinkti keturių Kauno apskrities ligoninių pacientai. Buvo apklausiami tyrimo dieną Vidaus ligų ir Chirurgijos profilių skyriuose hospitalizuoti pacientai. Iš viso apklausti 264 pacientai (atsako dažnis 69,1 proc.). Statistinei duomenų analizei panaudoti 261 tinkamai užpildytos anketos duomenys. Statistinė duomenų analizė atlikta naudojant „IBM SPSS Statistics 21“ programą. Rezultatai. Dauguma pacientų (70,5 proc.) teigė, kad jiems buvo suteikta informacija apie jų ligą. 64 proc. apklaustųjų atsakė, jog jiems buvo suteikta informacija apie medicininių tyrimų rezultatus. Apie savo ligos gydymo metodus buvo informuoti kiek daugiau nei pusė pacientų (52,5 proc.). Su galimomis teigiamomis ir neigiamomis gydymo pasekmėmis buvo supažindinta taip pat tik pusė (50,6 proc.) pacientų. Net penktadaliui (20,3 proc.) apklaustų pacientų nebuvo suteikta informacija apie gydymo pasekmes. Didelė dalis (65,5 proc.) respondentų supranta visą pateiktą informaciją apie gydymą, tyrimus ir pan. Iš 34,5 proc. apklaustųjų, kurie iš dalies suprato arba visai nesuprato jiems pateiktos informacijos, tik 62,2 proc. pasakė gydytojui ko nesuprato. Savo nuomonę gydytojui, kai priimami gydymo... [toliau žr. visą tekstą] / Aim of the study – to analyze patients’ opinions about their right to information assurance while receiving hospital treatment. Methods. Data for the study was collected by getting patients to fill out anonymous questionnaires. Four randomly selected Kaunas region hospitals were picked by probabilistic selection. Hospitalized patients from Internal medicine and Surgical departments were questioned. Total of 264 patients were questioned (response rate – 69.1%). 261 questionnaires were filled out correctly and were used in statistical analysis. Data analysis was performed with „IBM SPSS Statistics 21“ package. Results. Most of the patients (70.5%) claimed that they had received all information about their disease. 64% stated that they were informed about medical test results. 52.5% were informed about the methods of treatment. Only half of the patients (50.6%) were informed about health risks and benefits of their treatment. 20.3% were not informed about possible outcomes of the treatment. 65.5% of the patients reported that they understand all provided information about the treatment. Out of 34.5% of patients, who partially understood or did not understand the information given to them, only 62.2% informed the doctors about the lack of understanding. Only 28% of patients expressed their opinion about the treatment to the doctor when decisions are made. 54.4% did not participate in the decision making at all. Out of those, who participated in the decision making, 59.7%... [to full text]

<p>Focus of Thesis This thesis focuses on the initial stages of developing the Ontario Decision Aid in Rectal Cancer for Stage II and III patients (ODARC). The ODARC is a DA meant to facilitate relevant information exchange among physicians and patients. Such a tool should enhance patient knowledge and accuracy of treatment expectations by effectively conveying to patients relevant information on treatment options and associated benefits and risks. The ODARC is designed for use during a physician-patient consultation. The ODARC prototype development was guided by a workbook on developing & evaluating patient DAs published by O’Connor & Jacobsen (for efficiency we will call this the Workbook).24 This latter document provides detailed instructions for a 7-step DA development process including: 1) assess patient and provider need 2) assess DA feasibility 3) define objectives of the DA 4) identify the framework to guide DA development 5) select tailored methods of decision support to be used in the DA 6) select the designs and measures to evaluate the aid and, 7) plan dissemination.24 In this thesis we have created a prototype ODARC as informed by Steps 1 to 5 of the Workbook. The last two steps covering evaluation and dissemination are beyond the scope and available resources of this current research effort, and can be considered as future research endeavours. This will be reviewed in the final chapter.</p> / Master of Science (MSc)