Decisions concerning psychiatric medication are complex and often involve a protracted process of trial and error. The serious and enduring nature of side effects associated with psychiatric medication demands that medical and experiential expertise is shared in a way that is supportive of the longer term recovery journey. Historically poor concordance rates point to a lack of trust and difficulties in sharing decisions constructively. This Ph.D. explores views and experiences of shared decision making for psychiatric medication management amongst mental health service users and practitioners. The study was conducted in a community mental health service, in the UK. A participatory methodology was employed, within a social constructionist paradigm. Service users and a carer were involved in all phases of the research process. Thirty qualitative interviews were undertaken with different stakeholders: psychiatrists, community psychiatric nurses, and service users. A thematic analysis was employed. In addition, an applied conversation analysis was undertaken on four recorded outpatient medication related meetings. Enablers of and barriers to shared decision making were found at three levels of analysis: the interaction, the relationship, and the system. Many divergent discourses were apparent across these levels, both within and between the different stakeholder groups. A typology of involvement is proposed and discussed, from fractured passivity through to active self- management. The barriers to collaborative practice identified in these findings, and the structural factors at work in the mental health system in particular, were seen to explain the gap between policy ideals and current practice. Strong therapeutic relationships were found to be a vital enabler, comprising of: a formation of trust, practitioners knowing and believing in service users’ potential, and ‘walking the journey together’. Shared decision making in this study is found to be a dynamic process over time, involving two (or more) participants in a complex interplay. The thesis emphasizes the interaction between structure and agency in shared decision making in psychiatric medication management and highlights how power is enacted in the context of shared decisions in a community setting. Original theoretical, methodological and practical contributions to knowledge are presented and discussed.

The purpose of this project was to implement an educational program that provided psychiatric nurses with the knowledge and skills to engage patients with a diagnosis of schizophrenia in self-care management regarding medication and treatment adherence. The theory employed in the project was the educational theory. Evidence of effectiveness came from a pre- and postintervention assessment of nurses' knowledge and confidence in teaching about medication, along with a pre- and postassessment of knowledge gained as a result of the educational intervention. Pre- and posteducational rates of patient rehospitalization for medication nonadherence were compared. The results indicated a 15% rate of readmission of schizophrenia patients prior to the educational sessions. The 30-day readmission rate decreased to approximately 5% after the educational sessions. Based on these results, it was concluded that the educational project intervention had a positive impact on improving knowledge and insight of the nurses about nonadherence to medication among patients with schizophrenia. The positive social impact of improving nurses' knowledge of educating schizophrenic patients are increased patient well-being and reduced social costs associated with relapse and readmission. Recommendations from this project include that nurses should educate patients with schizophrenia on how to adhere to medication directives and the importance of doing so.

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Cette recherche aborde la médication psychiatrique à partir du point de vue des usagers. Des entrevues en profondeur ont été réalisées auprès de dix personnes utilisatrices en provenance d’une ressource communautaire et alternative en santé mentale. Les répondants éprouvent ou ont éprouvé des problèmes importants de santé mentale. La majorité des usagers de notre échantillon consomme des neuroleptiques. Les participants sélectionnés ont cheminé avec l’approche de la gestion autonome de la médication en santé mentale (GAM). La GAM constitue un terrain fertile, car l’approche favorise la réflexion critique, la diversité de pratiques autour de la médication psychotrope. Un état des connaissances portant sur l’expérience subjective de la médication est présenté. Les effets de la médication sur les personnes et leur contexte de vie ainsi que les aspects symboliques ont été analysés. Parmi les effets majeurs de la médication, on compte : l’effet de « gel », la grande fatigue, les difficultés d’attribution, le désir d’arrêt et les effets paradoxaux. La médication peut avoir des effets positifs ou négatifs sur l’entourage, le travail, les études ou autres implications sociales. Le rapport des usagers relatif à la médication a évolué vers un usage planifié, modulé et moindre. À cet effet, les dix usagers sont passés d’une phase de « novice » à une « d’expert ». Les résultats de cette recherche indiquent que la notion d’observance au traitement doit être revisitée et la notion d’efficacité élargie. Cette étude qualitative démontre que les versants « intérieurs » de la médication, l’expérience subjective et l’intersubjectif apportent une perspective plutôt rare, mais riche, du médicament en tant qu’objet social. / This research looks at psychiatric medication from the perspective of service users. In-depth interviews were conducted with 10 service users from a community-based, alternative mental health resource. The respondents experience or have experienced serious mental health problems. The majority of service users in our sample take neuroleptics. Selected participants followed the mental-health approach known as GAM: Gaining Autonomy & Medication Management. GAM provides a perfect ground, since this approach encourages critical thinking and promotes diverse practices around psychotropic medication. Current knowledge around the subjective experience of medication is presented. The effects of medication on people and their life contexts are analyzed, as well as their symbolic aspects. Among the main effects of medication are: the “anaesthetizing” effect, intense fatigue, difficulties of attribution, the desire to quit and paradoxical effects. Medication can have positive or negative effects on one’s circle of family and friends, work, studies or other social commitments. The relationship between service users and their medication has evolved toward a planned, adapted and reduced use. In this sense, the 10 service users went from a “novice” phase to that of “expert”. Results from this research show that the notion of treatment compliance must be revisited, and the concept of efficiency, broadened. This research shows that the “interior” dimensions of medication, the subjective experience and intersubjectivity provide rare and rich insights into medication as a social object.

Cette recherche aborde la médication psychiatrique à partir du point de vue des usagers. Des entrevues en profondeur ont été réalisées auprès de dix personnes utilisatrices en provenance d’une ressource communautaire et alternative en santé mentale. Les répondants éprouvent ou ont éprouvé des problèmes importants de santé mentale. La majorité des usagers de notre échantillon consomme des neuroleptiques. Les participants sélectionnés ont cheminé avec l’approche de la gestion autonome de la médication en santé mentale (GAM). La GAM constitue un terrain fertile, car l’approche favorise la réflexion critique, la diversité de pratiques autour de la médication psychotrope. Un état des connaissances portant sur l’expérience subjective de la médication est présenté. Les effets de la médication sur les personnes et leur contexte de vie ainsi que les aspects symboliques ont été analysés. Parmi les effets majeurs de la médication, on compte : l’effet de « gel », la grande fatigue, les difficultés d’attribution, le désir d’arrêt et les effets paradoxaux. La médication peut avoir des effets positifs ou négatifs sur l’entourage, le travail, les études ou autres implications sociales. Le rapport des usagers relatif à la médication a évolué vers un usage planifié, modulé et moindre. À cet effet, les dix usagers sont passés d’une phase de « novice » à une « d’expert ». Les résultats de cette recherche indiquent que la notion d’observance au traitement doit être revisitée et la notion d’efficacité élargie. Cette étude qualitative démontre que les versants « intérieurs » de la médication, l’expérience subjective et l’intersubjectif apportent une perspective plutôt rare, mais riche, du médicament en tant qu’objet social. / This research looks at psychiatric medication from the perspective of service users. In-depth interviews were conducted with 10 service users from a community-based, alternative mental health resource. The respondents experience or have experienced serious mental health problems. The majority of service users in our sample take neuroleptics. Selected participants followed the mental-health approach known as GAM: Gaining Autonomy & Medication Management. GAM provides a perfect ground, since this approach encourages critical thinking and promotes diverse practices around psychotropic medication. Current knowledge around the subjective experience of medication is presented. The effects of medication on people and their life contexts are analyzed, as well as their symbolic aspects. Among the main effects of medication are: the “anaesthetizing” effect, intense fatigue, difficulties of attribution, the desire to quit and paradoxical effects. Medication can have positive or negative effects on one’s circle of family and friends, work, studies or other social commitments. The relationship between service users and their medication has evolved toward a planned, adapted and reduced use. In this sense, the 10 service users went from a “novice” phase to that of “expert”. Results from this research show that the notion of treatment compliance must be revisited, and the concept of efficiency, broadened. This research shows that the “interior” dimensions of medication, the subjective experience and intersubjectivity provide rare and rich insights into medication as a social object.