The impact of sleep on quality of life (QoL) has been well documented; however, there is a great need for reliable QoL measures for persons with obstructive sleep apnea (OSA). We compared the QoL scores between the 36-Item Short Form of the Medical Outcomes Survey (SF-36), Calgary Sleep Apnea Quality of Life Index (SAQLI), and Functional Outcomes Sleep Questionnaire (FOSQ) in persons with OSA.

Bakgrund: Endometrios är en kronisk inflammatorisk sjukdom som uppskattas drabba 10 procent av alla personer med livmoder i fertil ålder. Sjukdomen har setts påverka flera aspekter i livet och kan orsaka stort lidande hos individen. Syfte: Syftet med denna litteraturöversikt var att undersöka hur personer med endometrios upplever att olika aspekter livskvaliteten påverkas av sjukdomen. Metod: Litteraturöversikten baserades på vetenskapliga artiklar publicerade i databaserna PubMed och CINAHL. Efter kvalitetsgranskning av 23 artiklar återstod 17, varav två kvalitativa och 15 kvantitativa. Resultaten från de inkluderade studierna gick sedan igenom och delades upp under rubriker utifrån de aspekter av livskvalitet som framkom. Huvudresultat: Endometrios visades ha en negativ påverkan på de drabbades liv och vardag. Kvinnor med endometrios skattade signifikant lägre generell livskvalitet och hälsorelaterad livskvalitet än kvinnor utan sjukdomen. De vanligast förekommande symtomen var olika typer av smärta vilka sågs ha en signifikant negativ påverkan på livskvaliteten och det dagliga livet, som nedsatt produktivitet inom arbete och utbildning. Endometrios innebar även psykiska begränsningar i form av antingen minskat generellt välmående eller sämre emotionell funktion. Gällande socialt nätverk visade flera studier att kvinnor med endometrios upplevde en negativ påverkan på relationer och/eller deras sociala liv. Normalisering och okunskap kunde bidra till försening i diagnos och påverkan på livskvalitet. Även vårdpersonalens kunskap inom ämnet ansågs vara otillräcklig i många fall. Slutsats: Kvinnor med endometrios hade lägre livskvalitet än kvinnor utan sjukdomen. Vidare forskning kring sjukdomen kan förbättra behandling och påskynda diagnostisering, vilket kan påverka den fysiska, psykiska och sociala funktionen hos individen. Detta kan minska kostnaderna vid såväl sjukskrivning som lägre arbetsproduktivitet samt frekventa vårdbesök relaterade till feldiagnostisering och vårdfördröjning. / Background: Endometriosis is a chronic inflammatory disease estimated to occur in 10 percent of the population with uterus of reproductive age. The disease has been observed to affect many aspects of life and causing great suffering for the individual. Aim: The aim of this literature review is to examine how people with endometriosis are experiencing how different aspects of quality of life is affected by the disease. Method: The literature review was based on scientific articles published in PubMed and CINAHL. After examining the quality of 23 articles 17 remained, including two qualitative and 15 quantitative studies. The results of the included studies were broken down and assorted into subgroups depending on which aspects of quality of life mentioned. Main Results: The result showed that endometriosis had a negative impact on the daily lives of those suffering of the disease. Women with endometriosis stated significantly lower overall quality of life and health-related quality of life than women without the disease. The most commonly reported symptoms were different types of pain which had a significant negative impact on quality of life and daily life, such as reduced work and education productivity. Endometriosis could also lead to mental limitations as decreased general wellbeing or emotional function. Regarding the social aspects, multiple studies showed that women with endometriosis experienced that the disease had a negative influence on relationships and/or their social life. Normalization and insufficient knowledge about the disease could contribute to delay in diagnosis and impact the quality of life. The knowledge of health care personnel was also seen inadequate in many cases. Conclusion: Women with endometriosis had lower quality of life than women without the disease. Further research could improve treatment and speed up diagnosis, affecting the physical, psychological and social functioning of the individual. This could reduce the costs from both sick leave and decreased work productivity as well as frequent health care visits related to misdiagnosis and delay of treatment.

Background: Disease-specific patient-based questionnaires are being used increasingly to evaluate treatment outcomes in coronary heart disease (CHD) from the patient's perspective. However, most have been developed to evaluate health-related quality of life (HRQoL) in medically rather than surgically treated patients and many have not been rigorously evaluated against required standards. There are currently no validated questionnaires to measure patient- based outcomes after coronary revascularisation, the surgical treatment for CHD. Objectives: To develop a new patient-based instrument, the Coronary Revascularisation Outcome Questionnaire (CROQ), to measure health outcomes and HRQoL before and after coronary artery bypass graft surgery (CABG) and percutaneous transluminal coronary angioplasty (PTCA). To evaluate the psychometric properties of the CROQ using classical psychometric methods. Design: Psychometric study. Subjects: A total of 725 (79% male) patients undergoing CABG and 643 (71% male) patients undergoing PTCA at three hospitals in the UK. Methods: Qualitative methods (literature review, review of existing instruments, patient interviews, and expert opinion) were used to develop two versions of the eROQ (CROQ-CABG and CROQ-PTCA). Two field tests were then conducted by postal survey to patients before and 3-months after revascularisation firstly, to identify possible items for elimination (item reduction) and secondly, to evaluate the psychometric properties (reliability, validity, responsiveness) of the item- reduced CROa in independent samples. Results: The CROQ was acceptable to patients, satisfied tests of scaling assumptions, showed good internal consistency, test-retest reliability, validity, and responsiveness. 4 Conclusions: The CROQ is a new l psychometrically rigorous patient-based measure of outcome for coronary revascularisation. The CROQ has many potential uses in evaluative research l such as in clinical trials of effectiveness I and as a routine clinical audit tool to assist providers of CABG and PTCA in monitoring the outcomes of care

Abstract IMPACT OF ALTERNATIVE FINANCING PROGRAMS ON QUALITY OF LIFE AND EMPLOYMENT OUTCOMES OF INDIVIDUALS WITH DISABILITIES By: Amy Nicole Dye Davis This study investigated the effect of assistive technologies purchased through Alternative Financing Programs (AFP) for individuals with disabilities on quality of life, independence in the home and community, and employment. In fiscal year 2000, AFPs received federal grants under the Technology-Related Assistance for Individuals with Disabilities Act (after it was repealed and renamed the AT Act) to provide financial loans to persons with disabilities to enable them to purchase assistive technologies (AT). In fiscal year 2002, Congress appropriated funds to support grants to increase access to telework for individuals with disabilities. There are 33 AFPs located across the U.S. and territories that use said funding to provide alternative financing for persons with disabilities so that the aforementioned opportunities are possible. This study also examined telework, defined as a way to reduce or eliminate barriers to employment or self-employment. Telework, irrespective of the circumstance or initial motivation, has the potential to circumvent the need to navigate the traditional workplace. As a result, telework could raise the standards for equality in the job market for persons with disabilities. An examination of AFP clients delineated loan acceptance and rejection rates, goals for acquiring assistive technologies, and employment outcomes for said individuals with disabilities. Determining the reasons why AFP clients needed assistive technology and how they planned to use it defined predictors to successful employment outcomes. Finally, the overall effectiveness of the AFPs with respect to increasing quality of life, independence, and employment rates for persons with disabilities was assessed. Examining employment outcomes as they are linked to public policy is puissant and a connection not previously pursued. This study found statistically significant associations between quality of life and employment in that persons with disabilities who were AFP applicants reported a higher quality of life if they were employed. Also found, was a statistically significant association between quality of life and independence levels in that persons with disabilities who reported increased independence at home or in the community also reported having a better quality of life.

Improving family quality of life is an important goal when working with families of children with autism. Researchers have attempted to measure changes by developing indices of quality such as affect, stress, and confidence. The purpose of this study was to examine the effects of a group parent-coaching program on measures aimed at addressing quality: a) parent confidence, stress and affect ratings; b) child affect ratings; c) the frequency of coordinated joint attention (CJA); and d) parent report of satisfaction and efficacy. Over the course of four weeks, the coaching program involved group presentations, discussions, video sharing, and problem solving, and individual in-vivo coaching sessions regarding specific child skill development. Results from the five parent-child dyads suggested increases in areas associated with quality of life. Results are discussed in the context of quality themes and mixed methods research.

A research report submitted to the faculty of health sciences, University of the Witwatersrand, Johannesburg, in partial fulfillment of the requirements for the degree of master of medicine in family medicine October 2017 / MT2018

Thesis (M.S.)--Boston University

No description available.

Thesis (Ph. D.)--University of Hong Kong, 2007. / Title proper from title frame. Also available in printed format.

This study addressed gaps in the literature regarding the lack of information about the degree and extent of the relationships among symptom burden, specific symptoms, and health-related quality of life (HRQL). The sample included 89 adults receiving care for colorectal cancer in an outpatient setting. Data for this cross-sectional study were collected over a four month period using the Modified Ambulatory Care Flow Sheet (MACFS), the Rotterdam Symptom Checklist- Modified, numerical rating scales for pain and coping, and the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Cancer 30. Results showed that the MACFS was reasonably valid and internally consistent and that symptom burden and number of symptoms were significantly abut weakly correlated with HRQL. Specific symptoms most significantly correlated with HRQL were insomnia, fatigue, pain, nausea and vomiting. Findings support the use of the MACFS to assess symptoms and HRQL in the study population.