Thesis (Ph. D.)--University of Chicago, Dept. of Education, March, 2001. / Includes bibliographical references. Also available on the Internet.

Background Qualitative longitudinal research (QLR) has a long history in the social sciences, where its theoretical basis is well established. Qualitative longitudinal (QL) methods are gaining popularity in health care research for exploring the dynamic experience of illness. However, methodological development of QLR is limited within the health literature, and there are very few studies examining the experience of people with colorectal cancer (CRC). Moreover, such studies describe the experiences of those surviving CRC and the voices of those with advanced disease who are approaching the end of their lives remain largely unheard. Aim and objective This study explores the potential of QL interviewing to examine the experiences of those with advanced, metastatic, CRC. I investigate how QL interviews can be best utilised to explore the participants’ accounts of their experiences. I specifically examine the added value and costs of a flexible approach with regard to the frequency and timing of longitudinal interviews. Analytical approaches to QL data are examined to determine their overall value. Methods Sixteen patients with metastatic CRC and eight of their family carers participated in narrative interviews at three time points over the course of a year. The study was designed to include two groups of participants. The first, a routine interval group where interviews were carried out at regular intervals of six months; the second, a flexible interval group where there was an interview at baseline followed by monthly phone calls to track changes in the participants’ circumstances, with a view to conducting the interview as change was occurring. The data were analysed at each time point, and longitudinally using narrative and thematic techniques. Findings The QL design enabled a trusting relationship to evolve, such that private accounts of experience were disclosed. Thus, a nuanced and contextualised understanding of the experience of metastatic CRC materialised. Overall the accounts of CRC were characterised by uncertainty, yet at the same time death was a certainty. Over time, this dual narrative led to participants feeling themselves to be in an ambiguous and liminal state. Some participants described a loss of sense of self, yet others maintained their identity. The work that participants carried out to manage their sense of self changed, as they moved from a collective to an individual identity. In the flexible interval group, monthly telephone calls produced an even more profound research relationship and further enriched the accounts. However, early interviews were only conducted on two occasions and more ethical issues arose as a result of the increased contact. Conclusions By exploring the potential of QL methods, this study has developed the methodology for researching the experiences of those with serious illness. QL interviewing elicits a deep understanding of metastatic CRC that appreciates notions of temporality, process and change. Regular contact with participants between interviews can further enrich the accounts, and is a useful strategy for tracking changes given the unpredictable nature of advanced disease. This thesis showcases the cross-sectional and longitudinal opportunities that QL analysis presents; yet also highlights how longitudinal narrative analysis allows a story to unfold over time which reflects the beginning, the middle and for some the end of the illness experience. Although QL analysis is time consuming, and more contact can amplify ethical issues, the benefits outweigh the constraints.

Thesis (D.P.H.)--University of Michigan, 1994.

Thesis (Naval Engineer and M.S.)--Massachusette Institute of Technology, 2004. / Available from National Technical Information Service, Springfield, Va., 2004. Includes bibliographical references (p. 92). Also available online.

Thesis (D.P.H.)--University of Michigan, 1994.

Thesis (Ph. D.)--University of Southern California, 1996. / Includes bibliographical references (leaves 334-344).

Thesis (Ph. D.)--University of Wisconsin--Madison, 1959. / Typescript. Abstracted in Dissertation abstracts, v. 20 (1960) no. 10, p. 4095. Vita. eContent provider-neutral record in process. Description based on print version record. Includes bibliographical references (leaves 313-318).

Thesis (Ph. D.)--University of Chicago, 2002. / Includes bibliographical references (leaves 249-265). Also available on the Internet.

Thesis (Ph. D.)--University of Chicago, 2002. / Includes bibliographical references (leaves 249-265).

Academic researchers in many disciplines are facing difficulties in disseminating their research outputs beyond the academic community. Particularly, Information Systems (IS) academic researchers have been struggling to make their research more relevant to practice. The diversity of IS research means that should be a wide audience within and beyond academia who could benefit from IS research outputs. This audience includes educators, practitioners, patients, etc. How IS relevant to practice is a central dilemma of IS research. Research relevance is classified according to dimensions such as interesting, implementable, current, accessible “Article style” by many IS scholars. These dimensions are important to be investigated as some academic papers are yet to be beneficial to an audience beyond academia. The Accessible dimension is the focus of this study where accessible means the academic papers should be readable and understood in terms of tone, style, structure, and semantics by the potential audience beyond the academic community. This study investigates the barriers that limit academic researchers in disseminating and communicating their research outputs beyond academia. This study aims to design a communication method to assist academic researchers in disseminating and communicating their research outputs beyond academia. This study consists of three phases, in the first phase a qualitative method is applied by interviewing academics in the Information System and Computing Department at Brunel University to gain a better understanding of how and why academics disseminate beyond academia. Based on communication theories a research framework is adapted to analyse and explain the interview data. In the second phase, short videos are recorded of 10 academics where each explains one of their papers. In the third phase, two different groups are interviewed to evaluate the 10 short videos in regards the Information Quality (IQ) dimensions (i.e. appropriate amount of information, format, and timeliness). By using the thematic analysis technique the academics highlighted three barriers that limit them to disseminate and communicate their research outputs beyond academia. The three barriers are the message (i.e. academic structure and language of research papers), channel (i.e. academic journal and conferences), and social system (i.e. lack of Incentives, lack of time, and lack of support). Moreover, academics emphasised the vital role of feedback loop in their communication with target audience beyond academia. The 10 short videos are designed to overcome two of these barriers (i.e. message and channels). Each short video is evaluated by its academic author on one hand and the potential audience/stakeholders of the short video from the other hand (e.g. practitioners). Thus, the academic authors of the video suggest some changes by adjusting the video structure and adding some examples for more explanations of their research papers. Also, authors concerned about format particularly the visual elements of the video which have to be completely matched with the title of the video. However, the opinions of potential audiences vary based on their information need. For example, some practitioners are concerned with the practical information, in other words, practitioners seek the applicable part of the information provided in the short video (i.e. how to apply something); and others watch the short video to increase their awareness of a particular topic. This study will assist academic researchers to focus on how to disseminate their research outputs to audience/stakeholders beyond academia using media tools (i.e. video). Also, it provides a novel method of disseminating and communicating their research outputs beyond the academic community. Moreover, this study helps to create an interaction platform that enables academic researchers to build a collaborative framework and a mutual understanding with the audience beyond academia.