This thesis explored the lives of carers of disabled people, and the research process itself within the collaborative framework of a support group. It used as its data sources an extensive review of the literature, interview transcripts and fieldnotes from carers, participants from the local service system, and the records of meetings and activities of the Group over 5 years. The study highlights the way public discourse on deinstitutionalisation has so captured our consciousness on care of disabled people that the personal reality of care in the family home has been effectively lost. It traces the disordering discourses of disablement and their link with constructions of caring. The personal reality of care and the isolating nature of this union of caring and disablement was the primary research focus. This may be characterised by social loss, and a lifestyle bound up with disablement which involves a search for a supportive or caring culture. The isolation and exclusion of carers occurs behind the screens of apparently caring institutions such as marriage, family, community and the service system. In the search for a caring cuture carers find their lives bound up with that of state and service systems which offer some hope of a supportive response. Instead they invariably find that the culture is an alien one. The research informed attempts of the Group to explore improved forms of caring culture, and more relevant public policy approaches. The study attempted to bridge the gap between the process of knowledge construction and discourse, and the material experience of carers / Doctor of Philosophy (PhD)

<p>The aim of the study was to examine the background and prerequisites for social services responsibility for carers according to the carers’ section in the Social Services Act. How the legislation is perceived and implemented in practice was also studied. The study’s theoretical basis was jurisprudence and the sociology of law. Preparatory work and other sections of importance for the interpretation of the carers’ section in the Social Services Act were also scrutinized. Interviews with four municipal politicians and four local civil servants were conducted. Various factors which affect the prerequisites for the social services duty of care towards carers were identified in the study. By studying the direct effects of legislation various indirect effects were also highlighted. The results showed that legislation is a weak instrument of control in municipalities’ planning and implementation of support for carers. Therefore social services responsibility for carers is unclear and imprecise. For carers themselves it is difficult to know what support they can demand or ask for from social services – municipalities have to offer support for carers but the carers’ section does not give carers any legal right to support.</p>

The aim of the study was to examine the background and prerequisites for social services responsibility for carers according to the carers’ section in the Social Services Act. How the legislation is perceived and implemented in practice was also studied. The study’s theoretical basis was jurisprudence and the sociology of law. Preparatory work and other sections of importance for the interpretation of the carers’ section in the Social Services Act were also scrutinized. Interviews with four municipal politicians and four local civil servants were conducted. Various factors which affect the prerequisites for the social services duty of care towards carers were identified in the study. By studying the direct effects of legislation various indirect effects were also highlighted. The results showed that legislation is a weak instrument of control in municipalities’ planning and implementation of support for carers. Therefore social services responsibility for carers is unclear and imprecise. For carers themselves it is difficult to know what support they can demand or ask for from social services – municipalities have to offer support for carers but the carers’ section does not give carers any legal right to support.

The aim of this study was to identify differences in how the service respite care in ordinary housing is offered to people who are caring for or supporting relatives with dementia in nine municipalities in a region in southern Sweden. The study has focused on organizational factors that may affect the use of the service and the theoretical aspects of professional discretion and assessment principles in social work. To examine this, data was collected from a semi-structured survey (n = 59) directed to assistance officers and chief managers. Secondary quantitative data from a mapping of the nine municipalities support for people with dementia and their relatives was also included in the study. The methods used to analyse data were statistical analysis and quantitative content analysis. The span between equal and individual care have been studied to gain perspective on how local assistance officers and chief managers can adapt the availability and configuration of the service, in relation to the guidelines and the individual's needs. The results of the study show that there are differences in how municipalities offer respite care in ordinary housing for the informal carers and on what grounds they have access to it. There are also differences in the range of the service in some of the municipalities. Respondents estimate that they have wide professional discretion to adapt the service to individual needs, while they feel that the municipality's guidelines should be followed. Furthermore, the results show that use of the service is relatively low in the studied municipalities. To increase the use, respondents believe that security, confidence and trust are especially important in the relationship between the staff in home care services and the carers.