Thesis (Ph.D.)-University of KwaZulu-Natal, Durban, 2008. / Women globally, and especially in sub Saharan Africa, are disproportionately affected by HIV and AIDS. Factors driving the HIV and AIDS pandemics include the oppression of women and gender inequality. Despite an intensified focus on women and girls in an attempt to reduce vulnerability to HIV little real progress has been made. This is in part because the sophisticated analysis of risk, vulnerability and our understanding of the pandemics is not match by equally sophisticated responses to prevention, care, treatment and support. Power over / male domination, evident at every level of society, fuels the pandemics, and makes women vulnerable. Using feminist understandings of power and domination this thesis explores the notion of subverting power. Through a series of case studies the notion of negative and positive power is explored; positive power includes power with, power to and power within. Examples of women’s resistance individually and collectively using the different types of power are highlighted. The thesis demonstrates that that women are not powerless and can and do affect change in their lives in all sites of struggle, that is can increase bodily autonomy, improve intimate relationships and challenge inequality in the households and community. Based on the learnings from the case study a theoretical model that addressed power as problem and solution in the context of HIV and AIDS is presented.

HIV/AIDS remains overpoweringly an illness of the marginalized and stigmatized in / Thesis (M.Ed.) - University of KwaZulu-Natal, 2007.

Purpose: To explore sexual practices of married women, which make them vulnerable to HIV infection in a rural setting, and the implications such practices have for the HIV/AIDS epidemic. Methodology: An ethnographic approach was used to explore the phenomenon of, which was sexual practices of married women, both ancient and contemporary. Unstructured interviews and focus group discussions were undertaken. The researcher applied the principle of theoretical saturation and a total of fifty participants were included in the study. All the interviews were taped and transcribed. Data analysis was done manually by the researcher, using themes and sub-themes. Findings: Married women engage in short term sexual relationships with secret lovers which are either concurrent or frequent while their husbands are away on migrant labour. A number of factors that cause women to engage in such risky sexual practices were identified. Some of these factors included scarcity of men due to migration and economical resources, the fact that women cannot negotiate safe sex due to gender and cultural factors; limited knowledge of infections particularly HIV/AIDS, life skills including their sexual rights and how to exercises these rights, and economic skills. Recommendations included the designing of an intervention program to sensitise and empower women on factors that make them vulnerable to HIV infection. Conclusions: Married women in the rural KwaZulu-Natal indulge in multiple concurrent or successive extramarital partnerships in the absence of their migrant men. These sexual practices place them in a vulnerable position to get HIV infection as they engage in risky sexual behavior without condom use. They also have fear of being rejected by their secret lovers and their own husbands because of women's economic dependency on men. / Thesis (M.A.)-University of KwaZulu-Natal, Durban, 2009.

Thesis (MA)--University of Stellenbosch, 2004. / ENGLISH ABSTRACT: The HIV/AIDS pandemic is steadily growing throughout the world. Global estimates have revealed that forty million people are living with HIV/AIDS. Approximately 5.3 millions South Africans have been indicated to be living with the illness and within South Africa HIV/AIDS is having catastrophic effect. The burden of the HIV/AIDS epidemic has not fallen evenly. In South Africa, African women have borne the brunt of the illness. This study presents a focus on developing more effective ways of caring and therefore impacting the health of Black South African women living with HIV. Social support understood broadly as different aspects of relationships in which needs are met and individuals feel cared for, loved and valued (Cobb, cited in Friedland, McColl, & Renwick, 1996) was indicated as having a powerful impact on health. For this reason social support was considered crucial in the development of effective strategies of care. Studies examining the role of social support in the management of chronic illness such as HIV/AIDS underscore the ability of social support to provide a sense of health within illness. From within a South African context, however, a gap in social support research has been apparent. Although frameworks for understanding social support as a broad concept were available, social support research failed to provide adequate foundations for understanding social support in terms that could implicate strategic intervention and contribute to the development of more effective strategies of care. The aim of this study was to develop a deeper understanding of the lived experience of social support for a sample of nine Black South African women living with HIV. The study was conducted qualitatively within a phenomenological paradigm. A phenomenological paradigm encouraged participants, through in-depth interviewing, to provide information based on their own lived experiences of social support. The interviews were then transcribed and analysed using rigorous data analysis methods. Initial findings were presented to the sample and then developed further. Final findings were written up as rich descriptions of the lived experience of social support for the sample. Fourteen themes emerged as comprising constituent aspects of social support. Descriptions of the fourteen themes, including health care professionals, partners, family/children, support groups, meeting others needs, story telling, Memory Box Project, media and books, organisations within the community, activities, the community, being involved in research and spirituality, provide rich understandings of the interpersonal relationships constituting the lived experience of social support for the sample. A polarity was identified in the lived experience of social support. Interactions had the potential to be satisfactory and supportive as well as non-supportive. The research findings are discussed within a greater theoretical body of knowledge and considered in light of three contexts considered influential in impacting the lived experience of social support. The study assisted in the development of a culturally contextual understanding of the lived experience of social support. This understanding has implications for effective intervention strategies seeking to purposefully care for those living with HIV in South Africa / AFRIKAANSE OPSOMMING: Die MIV/vigs-pandemie neem wêreldwyd steeds toe. Internasionale beramings dui daarop dat sowat 40 miljoen mense tans met MIV/vigs saamleef. Altesame 5,3 miljoen Suid-Afrikaners ly na raming aan die siekte en dit het ’n katastrofiese uitwerking. Wat bevolkingsgroepe betref, is die siekte egter nie eweredig versprei nie. In Suid-Afrika is dit die swart bevolkingsgroep, en in die besonder die swart vrou, wat die meeste deur die siekte geaffekteer word. Hierdie studie fokus op die potensiële ontwikkeling van doeltreffender versorgingsmetodes wat dan ook die lewensgehalte sou kon verbeter van swart Suid-Afrikaanse vroue met MIV/vigs. Sosiale steun het ’n sterk invloed op gesondheid. Hierdie steun verwys na die verskillende aspekte van verhoudings wat geaffekteerde individue vervuld, versorg en gelief laat voel (Cobb soos aangehaal in Friedland, McColl, & Renwick, 1996). Daarom word sosiale steun as belangrik beskou in die ontwikkeling van doeltreffende versorgingstrategieë. Verskeie studies oor die rol van sosiale steun in die bestuur van chroniese siektes soos MIV/vigs, bevestig dat sosiale steun ’n deurslaggewende rol speel in die vestiging van ’n gevoel van gesondheid binne ’n siektetoestand. Binne die Suid-Afrikaanse konteks blyk daar egter ‘n gebrek aan navorsing te wees wat betref die rol van sosiale steun. Hoewel daar wel werk beskikbaar is wat die rol van sosiale steun as ’n breë konsep verklaar, bied navorsing op hierdie gebied nog nie ’n geskikte grondslag vir ’n beter begrip van sosiale steun wat betref strategiese intervensie en die bydrae wat dit kan lewer tot doeltreffender versorgingstrategieë nie. Die doel van hierdie studie was om ‘n groter begrip te ontwikkel vir sosiale steun soos beleef deur ’n steekproef van nege swart Suid-Afrikaanse vroue met MIV. Dit studie is kwalitatief uitgevoer vanuit ’n fenomenologiese paradigma. Deur die voer van diepte-onderhoude binne hierdie fenomenologiese paradigma is deelnemers aangemoedig om inligting te verskaf oor hulle eie ervaring van sosiale steun. Die onderhoude is vervolgens getranskribeer en geanaliseer deur middel van streng data-analise-metodes. Daar is terugvoering oor die aanvanklike bevindinge gegee aan die vroue in die steekproef en die data is hierna nog verder ontwikkel. Die finale bevindinge is in die studie weergegee as ’n omvangryke beskrywing van die steekproef se deurleefde ervaring van sosiale steun. Veertien temas is geïdentifiseer wat kernaspekte van sosiale steun omvat. Hierdie temas sluit onder meer in gesondheidsorgwerkers, metgeselle, familie/gesinne/kinders, steungroepe, behoeftevoorsiening, die vertel van stories, die "Memory Box"-projek, die media en boeke, gemeenskapsorganisasies, aktiwiteite, die gemeenskap, betrokkenheid by navorsing, en geesteslewe. ’n Beskrywing van die veertien temas het bygedra tot ’n veel groter begrip van die interpersoonlike verhoudings wat deel uitgemaak het van die deelnemers se beleefde ervaring van sosiale steun. Daar is egter ’n polariteit geïdentifiseer ten opsigte van hierdie beleefde ervaring van sosiale steun. Dit het geblyk dat interaksie potensieel bevredigend en ondersteunend van aard kan wees, maar ook afbrekend. Die navorsingsresultate is verder bespreek binne ‘n uitgebreide teoretiese kennisraamwerk en is beskou in die lig van drie kontekste wat as belangrik geag word betreffende die invloed daarvan op die beleefde ervaring van sosiale steun. Hierdie studie het bygedra tot die ontwikkeling van groter begrip binne kulturele konteks vir die beleefde ervaring van sosiale steun. Hierdie begrip is belangrik vir doeltreffende intervensie.

Thesis (MPhil (Public Management and Planning))--University of Stellenbosch, 2010. / ENGLISH ABSTRACT: The research was conducted to explore the experiences of people living with Acquired Immunodeficiency Syndrome (AIDS) (PLWAs), especially women, as well as the factors influencing their non-participation in development projects aimed at improving their socio-economic status. The study was conducted amongst PLWAs who are members of the Tembisa Main Clinic and Winnie Mandela Clinic support groups in Tembisa, South Africa. The researcher was motivated to conduct the research because in her work as a social worker she is confronted daily with PWLAs who are from disadvantaged backgrounds and are struggling to make ends meet. Initiatives have been undertaken to try and encourage self–reliance and improve the health status of these women by developing food gardens to provide them with fresh vegetables and possible income sources from these gardens. The reluctance of members of two support groups of PLWAs to stay involved in these projects encouraged the researcher to explore these issues. The researcher consulted various sources to obtain literature on the factors influencing non-participation in development projects. In addition she undertook a qualitative study, wherein twenty participants participated. The data from this study was then interpreted and compared to the literature. The findings of this study highlighted several factors such as discrimination, local beliefs, stigma and lack of support, which influence the non- participation of PWLAs in sustainable development projects. The findings of this research also indicate that developments projects often fail to thrive because of topdown decisions about the projects, the fact that there is no start-up funding available for the projects and participants who become demotivated to participate. The research therefore concludes with recommendations in order to address these problems. / AFRIKAANSE OPSOMMING: Die navorsing is onderneem om die ondervinding van mense, veral vroue, wat met Verworwe Immuniteitsgebrek Sindroom (VIGS) lewe, te ondersoek, asook die faktore wat hulle daarvan weerhou om deel te neem aan ontwikkelingsprojekte wat daarop gemik is om hul sosio-ekonomiese status te verbeter. Die studie is onderneem onder pasiënte wat lede was van ondersteuningsgroepe by Tembisa Hoofkliniek en Winnie Mandela Kliniek in Tembisa, Suid-Afrika. Die navorser is gemotiveerd om die studie te onderneem omdat sy daagliks in haar werk as sosiale werker gekonfronteer is deur mense wat met VIGS lewe, wat uit minder bevoorregte agtergronde kom en wat sukkel om te oorleef. Inisiatiewe is onderneem om hierdie vroue se selfstandigheid te bevorder en om hul gesondheidstatus te verbeter deur groente tuine te ontwikkel om hulle van vars groente te verskaf, asook moontlike inkomstebronne uit hierdie tuine. Die onwilligheid van die lede van twee ondersteuningsgroepe om in hierdie projekte betrokke te bly, het die navorser aangemoedig om hierdie aangeleentheid verder te ondersoek. Die navorser het verskeie bronne geraadpleeg om literatuur te verkry oor die faktore wat die nie-deelname in ontwikkelingsprojekte beïnvloed. Sy het ook kwalitatiewe studie onderneem waaraan twintig respondente deelgeneem het. Die data van hierdie navorsing is daarna geïnterpreteer en met die literatuur vergelyk. Die bevindinge van hierdie navorsing het verskeie faktore uitgelig wat die niedeelname beïnvloed van mense wat met VIGS lewe, soos diskriminasie, plaaslike gelowe, stigma en gebrek aan ondersteuning. Die navorsing het ook bevind dat ontwikkelingsprojekte dikwels nie floreer nie as gevolg van die ‘topdown’ besluitneming oor die projekte en omdat daar nie genoegsame vooraf befondsing beskikbaar is vir die projekte nie en die deelnemers dus demotiveer om verder deel te neem. Die navorsing sluit dus af met voorstelle om hierdie probleme aan te spreek.

The study aims to explore women's psychosocial needs and concerns following an HIV positive diagnosis. It also seeks to understand nature and various sources of care and support that women need for learning how to live with an HIV positive diagnosis. Finally, to understand what women need from HIV/AIDS health care and social service providers. In order to achieve these aims, a sample of 12 HIV positive women age between 20 and 40 was approached and interviewed at the Centres for Disease Control Clinic (CDC) in one of the local hospital in Pietermaritzburg. A qualitative research approach using semi- structured in-depth interviews was used in the study. The findings of the study reveal that HIV positive women are still faced with a range of psychosocial needs, different to that of HIV infected men. Their main psychosocial concerns centre on the welfare of their children rather their own health. Women fear rejection from their sexual relationships and as a way of coping with this, they choose to abstain from intimate relationships. Many women receive limited support from their families, health, and social welfare systems. / Thesis (M.Soc.Sc.)-University of KwaZulu-Natal, Pietermaritzburg, 2004.

The focus of this study is on the experiences of a small sample of local women who have been recently diagnosed with HIV. The aim of the research was to give these women an opportunity to express their first-hand, personal accounts of living with HIV. Five isiXhosa-speaking women were recruited and interviewed. These accounts were collected and analysed within in the methodological framework of Interpretative Phenomenological Analysis, a qualitative approach that is becoming increasingly popular in the broad fields of health and clinical psychology. Data was analysed for meaningful units, which were interpreted inductively and hermeneutically, and categorised into super-ordinate themes. Five themes within the participants’ experiences of living with HIV were identified: (1) experiences of diagnosis, (2) experiences of stigma, (3) social support, (4) coping strategies, and (5) HIV as one of many assaults to self. Implicated in these experiences are the ways in which these women have appraised themselves and their situation after an HIV-positive diagnosis, appraisals that are shaped by HIV-related stigma. A variety of negative emotional reactions are common following the diagnosis, often compounded by the direct experiences of HIV-related stigma. Women in the study adopted different kinds of coping strategies based on the resources and social support available to them. Also significant is that for these women who had typically endured a variety of traumatic life events, a positive diagnosis was simply one of many life challenges

Thesis (DPhil (Psychology))—University of Stellenbosch, 2006. / Statistics show that young, heterosexual, low-income women are the fastest growing HIVinfected population in South Africa and in the rest of the world. Despite the rapidly growing numbers of women with HIV (human immunodeficiency virus) and AIDS (acquired immune deficiency syndrome), there is a scarcity of research that focuses primarily on how poor minority and disadvantaged women of colour experience being HIV-positive, how these women actually live and cope with their diagnosis. Furthermore, no research studies on minority groups, such as the Coloured women in the Western Cape, exploring these issues have been reported. Consequently, there is an urgent need for research studies in South Africa to explore the range of discourses revealed by low-income and minority women regarding their lives and experiences of HIV/AIDS, in order to generate understanding and knowledge which could contribute to possible interventions, support and care. The present study aimed to: 1) explore the psychosocial concerns and mental health needs of HIV-infected low-income Coloured mothers in everyday life; 2) construct a testable Grounded Theory regarding the illness experience of low-income Coloured mothers; and 3) recommend guidelines for health workers. The study was a systematic analysis and documentation of how the illness (HIV/AIDS) was constructed in narratives of one particular group of women in South Africa. Eleven suitable and willing HIV-infected Coloured mothers were recruited by means of convenience and theoretical sampling. The research study was conducted within a socialconstructionist framework where the focus was on how HIV-infected, low-income Coloured women make sense of their world and illness experience. Grounded Theory was applied within the framework of qualitative research to analyse the data and to explore the participants’ constructions of the illness. As qualitative measure, a semi-structured in-depth interview schedule was developed according to Grounded Theory protocol. To reach the aims of the present study, questions focused on specific behaviours, experiences, thoughts and feelings that related to living with a positive HIV-diagnosis. In the participants’ accounts of their illness experience, two dominant discourses were identified: a discourse of HIV/AIDS, within which the illness was constructed as an stigmatised, incurable and deadly illness; as a shameful illness that someone should be blamed for; and as being associated with secrecy, silence, separation, pain and suffering, loss, and loneliness, as well as a discourse of mothering, what it means to be a “good” woman/mother; constructed as someone that should primarily take care of her children and family, and not be separated from them, or neglect or abandon them through illness or death. It is suggested that the two dominant discourses found in the participants’ accounts of their illness experiences, namely the meaning of HIV/AIDS as an illness (a stigmatised, incurable, and deadly illness, a shameful and blameworthy illness, an illness of secrecy, silence, separation, pain and suffering, loss, and loneliness), and the imperatives of mothering, what it means to be a “good” woman/mother (the primary caregiver of children, someone who is connected, physically strong, healthy and productive, and someone who is able to cope with her caregiving responsibilities even when in distress herself) are irreconcilable. It seems that these distressing and disempowering experiences of being HIV-infected, while also being a primary caregiver and mother of children, caused the participants in the present study severe psychological distress and suffering. Given these discourses and the context of the participants’ lives within their specific socio-economic circumstances, namely their lack of emotional and social support from friends and family, abusive relationships, substance abuse, economic hardships, absence of treatment options, as well as their experience of an incapacitating, incurable, stigmatised illness causing them severe physical and psychological distress, it was argued that the majority of the participants in the present study were in some state of depression and were in need of psychosocial support and mental healthcare.

Thesis (MA)--Stellenbosch University, 2005. / ENGLISH ABSTRACT: An exploratory study was conducted to determine the psychosocial stressors of women living with HIV/AlDS. The study also included the utilisation of group work by social workers to support HIV positive women. The exploratory study was also conducted to determine HIV positive women's experiences in a support group. The researcher's interest in group work, as well as her involvement with a support group with HIV positive women, is the motivation for the study. The aim of the study is to provide an explanation of the psychosocial stressors that HIV positive women experience and also to capture their experiences regarding the support group they attend. Nine psychosocial stressors, namely anger, fear, loss, grieve, guilt, denial and disclosure, depression, suicidal behaviour and anxiety, were included in the literature study. The advantages, disadvantages and components of group work, as well as comparisons of effective and ineffective groups, were highlighted. The research also focused on planning a group for women with HIV/AlDS, with special attention given to the needs assessment, the purpose of the group, the group composition and the structure of the group. The value of group work with HIV positive women was investigated. The universum was HIV positive women at the Walvis Bay Multi-Purpose Centre. The qualitative research method that was used took the form of structured interviews. The results of this study generally confirmed the findings of the literature study. Recommendations include ways in which social workers can assist HIV positive women not only on an individual basis but also especially in a group setting, and recommendations concerning future research. The importance of future research with HIV positive women was especially recommended. / AFRIKAANSE OPSOMMING: 'n Verkennende studie is onderneem om die psigososiale stresfaktore wat HIV positiewe vroue ondervind, te bepaal. Die studie het ook maatskaplike werkers se gebruik van groepwerk om HIV positiewe vroue te ondersteun, ondersoek. Die navorsing is voorts onderneem om HIV positiewe vroue se ervarings van 'n ondersteunersgroep te bepaal. Die navorser se belangstelling in groepwerk, en haar betrokkenheid by 'n ondersteunersgroep vir HIV positiewe vroue, was die motivering om die studie te onderneem. Die doel met die studie is om die psigososiale stresfaktore wat HIV positiewe vroue ondervind, te beskryf en te verduidelik, en ook om sommige van die ervarings wat sulke vroue in 'n ondersteunersgroep ondervind, te boekstaaf. Nege psigososiale stresfaktore, naamlik woede, vrees, verlies, droefheid, skuldgevoel, ontkenning en onthulling, depressie, selfmoordgedrag en angs, is in die literatuurstudie bestudeer. Die komponente en voor- en nadele van groepwerk, asook 'n vergelyking van effektiewe en oneffektiewe groepe is ook ingesluit. Die beplanning van 'n groep vir HIV positiewe vroue is benadruk, met spesiale verwysing na die behoeftebepaling, en die doel, die samestelling en die struktuur van die groep. Die waarde van groepwerk vir HIV positiewe vroue is ook ondersoek. Die universum is HIV positiewe vroue by die Walvisbaai Multi-Purpose Centre. Die kwalitatiewe navorsingsmetode wat gebruik is, is gestruktureerde onderhoude. Die resultate van die studie het in die algemeen die bevindinge van die literatuurstudie onderskryf. Aanbevelings sluit in wyses waarop maatskaplike werkers HIV positiewe vroue nie alleen op 'n individuele basis nie, maar ook in groepsverband kan ondersteun, asook moontlike gebiede vir verdere navorsing. Die belang van verdere navorsing met HIV positiewe vroue word veraI beklemtoon.

Leprosy in biblical times was a stigmatised skin disease. It was not an easily recognisable skin disease because any skin disease was suspected of being leprosy . However leprosy as a skin disease could not be hidden , because it showed quite easily . People who had contracted leprosy were considered impure and unclean and were cast out of society. Today however, we have a cure for people with leprosy and it is not considered a terminal disease. However, we have indeed an incurable disease, namely AIDS. My question is, how do we consider people with AIDS today, especially women. Are they being treated as unclean, even though we cannot see the disease, or are they also the outcasts of our society today? My guess is that women are the victims today, as much as they were in biblical times, rather than the perpetrators. Women living with AIDS today is what motivated me to investigate the ancient biblical times to see how women at that time coped with an incurable disease in a society that treated them as outcasts. Thus , my study will focus on women with leprosy in ancient biblical times , but also will include a section on women with AIDS today for the sake of relevance. / Thesis (M.Th.)-University of Natal, Pietermaritzburg, 2003.